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Re: danazol
From: anonymous (anonymous@obgyn.net)
Fri Feb 1 22:56:45 2002
Something which *may* help with your pain -- try eliminating all dairy,
eggs, phytoestrogens (beans, soy products, etc), highfat foods, red
meat, excess caffeine, etc. -- try it to see if it at least somewhat
helps to alleviate your pain. You should notice a difference within a
few weeks.
At Fri, 1 Feb 2002, Wanda wrote:
>
>sorry I am late in responding...
>
>A hystorectomy does not guarntee no pain from Endo. Estrogen is the fuel to
>the fire, so to speak, for Endo.
>My advice and that is all that it is.....Find another Dr...maybe someone
>that is an expert with Endo...
>If that is not feasible....
>
>There are other treatments...such as Depo-Provera, Lupron, Continous BCP's.
>You have a number of options...Everyone body is diffrent and no one reacts
>the same way to a treatment.
>You may want to do some reasearch on your own!! That way when you see the
>Dr....you are educated as well. A good place to start is a book called
>Endometriosis; A sourcebook. And the Endometriosis Association.
>
>Hugs,
>Wanda
>
>>>----- Original Message -----
>From: <anonymous@obgyn.net>
>To: "Multiple recipients of list ENDO" <anonymous@obgyn.net>
>Sent: Thursday, January 31, 2002 12:51 AM
>Subject: danazol
>
>> I was diagnosed 5 years ago with endo and the doctor that diagnosed me
>> put me on what he said was the only treatment for endo which is a pill
>> called Danazol but after being on that at 800 mg daily I seen my family
>> doctor and had tests done and they came back and the doctor said I had 1
>> year to live. it seems that the doctor that put me on the pills
>> neglected to let me know the side effects which is after so long it will
>> take away all the functions of your liver and kidneys. They took me off
>> the pills and tried vioxx for the pain but nothing seems to help. They
>> had tried the deplovera shot to stop the periods to see if that would
>> help stop the spreading and the pain. Now I don't know if there is
>> anything else that I can try because here in New Brunswick they say
>> there isn't much for treatmeant. The only thing that I can think of is
>> a hysterectomy. Caan anyone help answer some of my questions? Is there
>> anything else besides the Hystorectomy? Or where I have my own family
>> now with 2 kids should I have it done? Would it make life alot easier?
>> The pain and the bleeding is unbearable is there something that works
>> for pain?
>>
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