ENDO Messages for February, 2002: Re: danazol

Re: danazol

From: Wanda (anonymous@obgyn.net)
Fri Feb 1 06:26:17 2002

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sorry I am late in responding...

A hystorectomy does not guarntee no pain from Endo. Estrogen is the fuel to the fire, so to speak, for Endo. My advice and that is all that it is.....Find another Dr...maybe someone that is an expert with Endo... If that is not feasible....

There are other treatments...such as Depo-Provera, Lupron, Continous BCP's. You have a number of options...Everyone body is diffrent and no one reacts the same way to a treatment. You may want to do some reasearch on your own!! That way when you see the Dr....you are educated as well. A good place to start is a book called Endometriosis; A sourcebook. And the Endometriosis Association.

Hugs, Wanda

>----- Original Message -----
From: anonymous@obgyn.net To: "Multiple recipients of list ENDO" <anonymous@obgyn.net> Sent: Thursday, January 31, 2002 12:51 AM Subject: danazol

> I was diagnosed 5 years ago with endo and the doctor that diagnosed me
> put me on what he said was the only treatment for endo which is a pill
> called Danazol but after being on that at 800 mg daily I seen my family
> doctor and had tests done and they came back and the doctor said I had 1
> year to live. it seems that the doctor that put me on the pills
> neglected to let me know the side effects which is after so long it will
> take away all the functions of your liver and kidneys. They took me off
> the pills and tried vioxx for the pain but nothing seems to help. They
> had tried the deplovera shot to stop the periods to see if that would
> help stop the spreading and the pain. Now I don't know if there is
> anything else that I can try because here in New Brunswick they say
> there isn't much for treatmeant. The only thing that I can think of is
> a hysterectomy. Caan anyone help answer some of my questions? Is there
> anything else besides the Hystorectomy? Or where I have my own family
> now with 2 kids should I have it done? Would it make life alot easier?
> The pain and the bleeding is unbearable is there something that works
> for pain?
>

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