ENDO Messages for December, 2001: Re: stage 4 endo and kidney pain?

Re: stage 4 endo and kidney pain?

From: anonymous (anonymous@obgyn.net)
Sun Dec 23 22:30:02 2001

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Previous message: Heather: "Re: I have some endo questions"
In reply to: Jill: "stage 4 endo and kidney pain?"

Jill: Yes, I think its possible to that the kidney pain is related to the endo -- I experience intermittent left sided kidney pain and have read of many endo sufferers who experience kidney pain with their endo. Some sufferers have endo on their ureters, etc., which may be a cause of kidney pain. I haven't had a lap in which my kidneys were checked out, so I can't give you any concrete answers except that it is not at all unusual for Stage 3/4 endo sufferers to also have kidney pain. Re treatment -- the best treatment re surgery is finding an experienced endo specialist who excises (cuts out) the endo. The best treatment re diet includes cutting out all dairy, eggs, red meat, soy products, phytoestrogens, excess caffeine, chocolate, highfat foods, etc.. Lupron tends not to be a favored treatment because it is 1) simply a stopgap treatment (taken for 6 months and then the endo flares again following cessation of lupron), and 2) it is a very powerful drug which was originally prescribed for prostate cancer patients. So first thing I would do in your shoes is change my diet and start searching for an endometriosis specialist/laparascopic surgeon. Depending on where you live, you may be fortunate enough to have one in your vicinity. You could post your city and state so that the women here may suggest some docs. I do know that Redwine is in Oregon. Albee/Lyons in Atlanta. Reich in New York and PA. Cook/Metzger and Adamson is California. You could also go to the website http://www.womenssurgery.com for a list of lap specialists throughout the states.

At Fri, 21 Dec 2001, Jill wrote: >
>Yesterday I had my first laproscopic surgery, and the doctor found that
>I have stage 4 endo. I have had terrible menstrual cycles since I was
>young and I had a suspision that I might have it, but I am a little bit
>nervous knowing that it is stage 4. I am 28 and the symptoms I have had
>include varying pain throughout the month, and I also have had an
>ovarian cyst which burst (it's the reason I had the surgery), I also
>have kdney pain but my doctor doesn't seem to think it is related to the
>endometriosis. Has anyone else experienced kidney pain with endo? Also
>she wants to start me on lupron for 2 months at first. I get migranes
>with the pill.....will I get them with lupron....does anyone know of any
>alternatives to hormone therapy for endo?????? I'm kind of lost any info
>would be greatly appreciated!
>
>Thanks...Jill

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Previous message: Heather: "Re: I have some endo questions"
In reply to: Jill: "stage 4 endo and kidney pain?"

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