ENDO Messages for December, 2001: Re: stage 4 endo and kidney pain?

Re: stage 4 endo and kidney pain?

From: Dena (anonymous@obgyn.net)
Sat Dec 22 10:34:18 2001

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Hi Jill,

I too am 28 with stage 4 endo. My endo was discovered during a lap to remove a large cyst on my ovary. The laparoscopy turned into a laparotomy. Two and a half months later, I am about to have my second Lupron injection and continue to have pain in my left kidney. I have made it clear to my doctor throughout that the pain in my kidney was most bothersome. My doctor ran numerous tests and found nothing. The only conclusion he can come to is that the kidney pain is from the adhesions.

Again, like yourself, I have had trouble with headaches. When I began the Lupron the headaches intensified. I have recently begun add back therapy with the estradiol patch twice a week. My headaches are much less severe. Only once in a while will I get a good one. Have you tried Fioricet? If I take two it is guaranteed to go away but I get a little loopy. One is enough to take the edge off and still be able to perform at work.

I have heard many horror stories about Lupron. I realize I have not been on it for long, but the side effects aren't that bad for me. I take a lot of vitamins every day and I truly believe that I wouldn't be feeling this good without them....Can't forget the Calcium especially! The only things that are really bothersome are recent memory loss and insomnia. I can't remember simple things, common words, etc. It's so frustrating.

Sorry for the novel. I hope some of this helps you.

-- Dena

At Fri, 21 Dec 2001, Jill wrote: > >Yesterday I had my first laproscopic surgery, and the doctor found that >I have stage 4 endo. I have had terrible menstrual cycles since I was >young and I had a suspision that I might have it, but I am a little bit >nervous knowing that it is stage 4. I am 28 and the symptoms I have had >include varying pain throughout the month, and I also have had an >ovarian cyst which burst (it's the reason I had the surgery), I also >have kdney pain but my doctor doesn't seem to think it is related to the >endometriosis. Has anyone else experienced kidney pain with endo? Also >she wants to start me on lupron for 2 months at first. I get migranes >with the pill.....will I get them with lupron....does anyone know of any >alternatives to hormone therapy for endo?????? I'm kind of lost any info >would be greatly appreciated! > >Thanks...Jill

--
Dena

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In reply to: Jill: "stage 4 endo and kidney pain?"
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