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Re: Help! Can Depolupron destroy a once solid relationship??

From: Danner (anonymous@obgyn.net)
Sat Dec 22 02:01:45 2001


hi greg, i'm deanna. i'm 22 and i have endo. i've also had it for years, but was just recently diagnosed via laparoscopy.

i'm about to have my 2nd shot of depolupron. although i have only just recently started this treatment, the side effects have hit me fast and hard. i have headaches, nausea, hot flashes, night sweats, and i feel as if i'm on an emotional rollercoaster.

i've found that this disease, although a serious one, is often chalked up to an exaggeration, as you said. i know that in my case, even now, drs., family and friends have a very hard time understanding. i applaud you tremendously for coming this far and caring so much as to ask for help. its not an easy thing. i'm married and i am also lucky enough to have a husband who is supportive. talking helps so much. through good communication, i have come to realize that endo is also extremely stressful for the woman's partner. you also are suffering. and it is painful.

as far as your girlfriend, well, of course, i can't speak for her. no one can. it is possible that the lupron is making her feel differently about her entire life. unfortunately, you will just have to give her her space. i know it's hard. you obviously love her a great deal. but know that you have helped her so much. she may not be able to express her gratitude right now, or much of anything for that matter. unfortunately, this disease is very hard on everyone involved. but continue to be there for her. let her know that its ok to be unsure of her life for now. she may be scared. being that i'm around the same age, i know that its so frightening to have to face something like this when your so young.

now that i have written much more than i planned, i will leave you with one final thought. know that you are a good person. so many don't understand. and she is lucky to be blessed with you in her life, in any capacity...

i send prayers that everything will work out for the best. feel free to email me anytime if you need to talk and you can email me directily at katiejohn@hvc.rr.com. or your girlfriend too. there is a wonderful chat room at http://www.jenniferlewis.com. i felt totally alone until i found this site. its filled with wonderful, loving women who suffer everyday from endo. they are so supportive and to know that they completely understand has helped me more times than i can count. its open to men as well, so you or your girlfriend are more than welcome to stop by if you need to talk, or if you have any questions. it really has become a haven for me.

again, good luck

>----- Original Message -----
From: "Greg" <anonymous@obgyn.net> To: "Multiple recipients of list ENDO" <anonymous@obgyn.net> Sent: Friday, December 21, 2001 3:46 PM Subject: Help! Can Depolupron destroy a once solid relationship??

> I am in college and have been with my girlfriend for just over 2 years
> now. I am 23 and she is 21. When the relationship first started, I
> noticed that she had extreme pains during her period. Before this time
> most of her family and doctor just dismissed her pains as normal or over
> exaggeration on her part! As I talked more to her, I found out that she
> has had these pains ever since her first period and has lived with it
> every month for the last 5-6 years. After a few months of watching her
> suffer with this, I told her that this cannot be normal and that she
> should see an ob/gyn. At first she only mentioned her problem to her
> family doctor whom then boosted her birth control pills again and again
> over the course of a year hoping to clear her pains and break through
> bleeding; but all this did was to make her condition worse. Finally,
> after pressuring her and her pressuring her parents, she went to an
> ob/gyn and they performed laproscopic surgery and found she had endo. At
> that time, they lasered the lesions and let her heal. However, a month
> later she was still spotting and having pain. So this past August her
> gyno started her on Depolupron, one shot a month for six months. Now,
> this semester I can see that she has changed drastically from the person
> I once knew. She has all the side effects of the depolupron; the hot
> flashes, depression, mood swings and no sexual energy. In addition, she
> now tells me that she does not feel the same way for me anymore, which I
> believe is stemming from the side effects of these shots. However, she
> does not make this connection and believes that the feelings she has
> been having, over the last few months, are her true feelings and not
> those caused by the depo. Her ob/gyn has also not enforced in her mind
> how bad the side effects of these shots can be and would be. Therefore,
> I am the only person telling her that these side effects would cause the
> problems we are now having, but she does not think to listen to me
> because no one else is telling her the same.
> My question then is, Am I in the right to believe that the depolupron is
> what is causing her to feel so differently towards the relationship? Is
> this something that usually happens when one is on these powerful shots?
> In addition, is there anything to do or anyone to talk to, to help us
> through this time?
>




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