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Re: Hysterectomy...No relief!!!!!!!!!!...Kristy B.From: Cheri (anonymous@obgyn.net)Tue Dec 18 07:50:18 2001
At Mon, 17 Dec 2001, Rose wrote: > >At Sun, 16 Dec 2001, Kristy wrote: >> >>I haven't written on any mesage boards for quite sometime....I did not >>want to be one of those people who got all fired up and then just went >>away.... >>But Iam in big trouble now and cannot believe this is happening to >>me...I am drowning in a sea of apathy....in a sea of complete >>dibelief...I cannot beleive that the nightmare I read so often is >>happening to me...Doctor's who are arrogant and not knowledgable about >>endo....I did have a hysto about 5 weks ago...my Dr. assured me I'd >>be/fine,,,2 weeks later the horrible burning and weird pain in my legs >>is back...my doc's nurse yelled at me and said "you have nothing in >>you...you can't be in pain...it is because your brain is not accustomed >>to being without pain meds!!!!!!!!!!!!!!!I cannot believe this1 I want >>to scream up and down or even have imagined worse.....1and 1/2 years of >>pain and people telling me it was in my head...So now I cannot even get >>any pain meds from her because it cannot be adhesions or endo...all my >>insides are gone......I think it was Lauren Rossiter who warned me about >>getting too excited about my doc just because everyone said how good she >>is....Oh well...How do I tell a gyno she doesn't know too much about >>this disease.....I cried all day that day...this nurse started yelling >>at me because I told her I was in pain..So here I am ...no health >>ins.(my husband died)...no income...no(I had to move in with my >>mother)...and just had my organs cut out for nothing....OH >>WELL!!!!!!!!!!!!!!! > >Kristy, You must feel so isolated and confused!!! I know how it feels to >experience pain and have doctors make out that it must mostly be in your >mind. For me, burning pain is the trademark of endometriosis - >especially when it appears to be spreading to a new area. It is an >agonising burning which is hard to describe and even harder to get rid >of with the right medication. > >I too, had a hyst recently. Even if visible endo is removed there may >still be diseased areas left behind. Few surgeons would guarantee a >total cure. So keep trying to communicate with your doctor. I believe >your pain is real and you must to. I still have the disease and still >have very real pain, only less frequently than before. It is always >worth recording your pain on a score of 0 to 10. If you do this for a >few weeks or, even better, months, you will have something to show the >doctor. I think that this helps when you find communication is becoming >difficult. Rmember also, that you are still recovering from your >surgery and that can take many months. > >best wishes Rose Kristy... you are in my prayers and am sending you the worlds BIGGEST, WARMEST , hug as well as the thought to get another oppinion..it is like finding that right man you must search and go through some bad doctors before you find the one for you..good luck :-) pain free wishes cheri
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