ENDO Messages for December, 2001: Re: Fw: Contemplating Hystorectomy( VALERIE & KIM )

Re: Fw: Contemplating Hystorectomy( VALERIE & KIM )

From: charity (anonymous@obgyn.net)
Fri Dec 14 14:47:55 2001

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At Tue, 14 Aug 2001, Maryanne wrote: >
>At Tue, 14 Aug 2001, Rachael wrote:
>>
>>Hi...
>>
>>I too was diagnosed with endo 13years ago. The doctor told me 10%
>>chance
>>of children. I am very fortunate to have two beautiful ones, girl 10
>>and
>>boy 3.....both we unexpected.....After almost yearly laps and D & C's,
>>and
>>also, a round of endo on my stomach wall.....I opted for the hyst. in
>>April
>>of 2000 at the age of 31....initial it was just a partial LAVH of the
>>uterus......well, my endo and mulitple cysts forced me to have my right
>>ovary removed in Jan of 2001, within a week, had symptoms on the left
>>side....I
>>fought with my doctor for 2 months to remove the left ovary.....(this I
>>had
>>asked him to do when he removed the right one)......he was very hesitant
>>to
>>say the least because of my age and the fact of putting me in Menopause
>>at
>>such a young age, but these were risks I was willing to take........so,
>>in
>>March of 2001, again, I went in for ANOTHER operation....thank God for
>>such
>>as supportive family and husband, would not have been able to do all of
>>this
>>without them.......My doctor has prescibed the Estraderm 0.1 mg patch
>>which
>>I have decided NOT to take.....for my own reasons......I am happy to say
>>I have felt WONDERFUL......yes, I have had some mild left sided pain
>>(fells
>>like ovualtion)....but that is all.......I have read the posts pro and
>>con
>>regarding a hyst.
>>
>>No one can tell you what is RIGHT for YOUR BODY but YOU!!!!!!
>>
>>I am just here to tell you that I CHOSE to do this and DO NOT REGRET MY
>>DECISION.
>>
>>Of course there are symptoms of menopause to deal with, hot flashes,
>>mood swings
>>etc., but IN MY OPINION, these are much easier to deal with than living
>>in pain
>>everyday.........Best of Luck to you and the decision that you make for
>>YOU!!!
>>
>>Just thought I would let you know a little about MY EXPERIENCES......
>>Hi ladies, I've posted my experiences before,hope no one minds a repeat. I'm 38 (3 kids)& I had a TAH w/BSO and I don't regret it. I am on ERT because the hot flashes, night sweats & insomnia were killing me faster than the endo was. I am not on a high dose,and I do take calcium supplements.(important)Once in awhile I have mild discomfort, but nothing like it was before.Rachael is right, only you can decide what is right for you.Good luck & take care.
>>At Tue, 14 Aug 2001, Lauren wrote:
>>>
>>>Dear Valerie & Kim,
>>>I too am contemplating a hysterectomy. I have three children aged 13, 9 and
>>>ababy of two(also a miracle baby) So God has blessed us with children, I
>>>would dearly love another baby, but it is not a practical idea for us, so
>>>perhaps the hyst is a good option. Valerie, like you I am not confused about
>>>the operation itself, I understand all that, it's what happens afterwards. I
>>>have heard from many women on this board that it comes back again if you
>>>take HRT, I have also read about battles with HRT and ovarian remnant
>>>syndrome etc. All of this is scary and worrying. The only sure thing that I
>>>can figure out is that you have no more periods, but it does not seem to
>>>solve your other problems.Is it worth it ? I do not know, I am so confused,
>>>I just wish somebody had an answer for me. It is major surgery, and there is
>>>no turning back, how does one know you ave made the right decission ? Let's
>>>keep in touch and share ideas, as you say we are all three in the same boat.
>>>((((ANGEL HUGS))))
>>>LAUREN
>>>

>>>>>>>----- Original Message -----
>>>From: Valerie <anonymous@obgyn.net>
>>>To: Multiple recipients of list ENDO <anonymous@obgyn.net>
>>>Sent: Tuesday, August 14, 2001 1:58 PM
>>>Subject: Re: Contemplating Hystorectomy
>>>
>>>> At Tue, 25 May 1999, Kim wrote:
>>>> >
>>>> >Ten years ago,at age 18, I was diagnosed with endo. Unfortunately, I am
>>>> >not one of the lucky women that have endo without pain. I also have
>>>> >recurring fibroids so the medicines that can subside endo causes my
>>>> >fibroids to grow large enough that I had to have a myomectomy in 1995.
>>>> >It was the size of a cantelope.
>>>> >
>>>> >Now that I have a husband, we have debated the issue that we do not want
>>>> >to have children. It really was not a debate but a mutual decision. He
>>>> >has one from a previous marriage and having only him is fine with me. We
>>>> >both have decided that we do not wish to go through the anguish of
>>>> >trying to conceive and go through the expense of invitro. We would both
>>>> >rather have the peace of mind that I am in good health than the
>>>> >possibility of losing each other from the tension that endo can bring
>>>> >on.
>>>> >
>>>> >Now at age 28, I have found out that I have elevated to another stage of
>>>> >endo and three fibroids. I do not want to place my husband in a
>>>> >horrible position of having to deal with an insane woman. I took the
>>>> >Zolodex with hormone replacement and the Lupron and boy oh boy did the
>>>> >Lupron mess with me. I was fine with the Zolodex but after the
>>>> >therapy...the huge fibroid came.
>>>> >
>>>> >I am contemplating having a hystorectomy but have heard that it is not a
>>>> >cure all and there are no guarantees. If anyone out there has had
>>>> >similar problems...please let me know how things went with you. I am
>>>> >not confused about the surgery just the aftermath. I do not want to
>>>> >have all this re-occur.
>>>> >
>>>> >God bless all who have endo and thanks for your comments.
>>>> >
>>>> >Kim
>>>> Hi Kim,
>>>> I am pain as we speak. This is the second time of dealing with endo. I
>>>> must say though this is worse than the first time. I thought being
>>>> tired was because of not getting enough rest, little did I know that it
>>>> is one of the wonderful side effects. Until I started really
>>>> researching endo, I didnt know what I have been going through is the
>>>> norm.
>>>>
>>>> Like I said I stay tired, memory loss (also caused by the 6 month
>>>> treatment of Lupron shots)joint pain, when I ovulate I swell so big I
>>>> look like I am 5 months pregnant, not to mention when I start me period.
>>>> Oh my, the list goes on.
>>>>
>>>> I never realized what this desease could do to a woman, I am trying very
>>>> hard to hold down a full time job. I fight sleep at my desk everyday. I
>>>> just want this stuff to go away forever. As you are too! And it sounds
>>>> like 1000's of other women are in our boat also.
>>>>
>>>> I am seriously considering a historectomy, I have an 11 year old and a 2
>>>> year old (my maricle baby in more ways than one). Although I want a
>>>> daughter I dont see it happening. I have to be thankful for what I
>>>> have, some people have no children and the Lord has blessed me with two.
>>>>
>>>> Please, once you make a decision let me know I would like to hear from
>>>> you.
>>>>
>>>> Sincerely,
>>>> Valerie
>>>>
>Valerie

I have had years of problems and I am currently on the Lupron shots.I also go to School and keep thinking I am loosing my mind because I can not remember the smallest things or even what I have studied the nite before I was courious where you learned of the side effects of the lupron shot. It sure explains my abset mindedness lately I myself have not been a big fan of the shot I am going in for a hysterectomy in four days I hope its the answer because after 11 years of tubal scrapings and meds that don't work the sergery is my last option. I have been blessed with a 12 year old son and a 8 year old daughter(my miracle) I could not ask for anything else Good luck to all of you ... >
>--
>Maryanne
>

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