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Re: Endo at 20

From: Kim (anonymous@obgyn.net)
Mon Dec 3 10:42:17 2001


HI THERE. I READ YOUR POSTING AND I TOO TOOK DIANE 35 FOR MY ENDO. I HAD TO STOP TAKING IT BECAUSE IT DIDN'T HELP MY PAIN AND I STILL HAD ALOT OF PAIN.I HAVE HAD ENDO FOR 9 YEARS,I HAVE HAD 6 LAPS DONE FOR ENDO, I HAD MY RIGHT OVARY REMOVED BECAUSE OF ENDO. I WAS TOLD THAT I WOULD NEVER HAVE ANY CHILDREN BECAUSE OF THE ENDO AND BECAUSE I HAD ONLY ONE OVARY. I PROVED THEM WRONG BECAUSE I HAD 2 CHILDREN 16 MONTHS APART. MY ENDO HAS RETURNED AND I SUFFERED REALLY BAD. MY GYNACOLOGIST PUT ME ON A DRUG CALLED AMITRIPTYLINE, IT IS USED FOR ALL KINDS OF PAIN AND SO FAR IT HAS HELPED ME. I STILL GET A DAY WHEN I HAVE PAIN, BUT OVERALL I HAVE BEEN GOOD. I WAS ONLY 22 WHEN I WAS DIAGNOSED WITH ENDO AND I KNOW IT IS A HARD THING TO LIVE WITH. I WANT YOU TO KNOW THAT YOU CAN E-MAIL ME ANYTIME WITH ANY QUESTIONS YOU HAVE OR IF YOU JUST WANT TO TALK. I WOULD REALLY LIKE TO HEAR FROM YOU. TAKE CARE. YOUR ENDO FRIEND, KIM.

>From: anonymous@obgyn.net (Kasia)
>Reply-To: anonymous@obgyn.net
>To: Multiple recipients of list ENDO <anonymous@obgyn.net>
>Subject: Endo at 20
>Date: Sun, 2 Dec 2001 17:50:00 -0600
>
>I'm back with more questions. I'm 20, diagnosed with endo nearly 3
>months ago. It was severe, stage 4 or possibly 5! I didn't think stage
>5 existed! Anyway, my GYN cut it all out during the laparoscopy. After
>the lap I was put on the pill-Diane 35-but allowing for a week break.
>During that week, I got my period and was in so much pain that even
>prescription painkillers didn't help-they just knocked me out! So I went
>back to my GYN and he told me to take Diane coninuously. At the moment
>I've nearly finished the second pack of active pills and yesterday I
>experienced some spotting, which I understand is normal. But the pain
>that came with it was unbearable. Does this mean that the pill isn't
>working for me? Or maybe the endo has come back?
>
>Thanks for any advice!
>




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