ENDO Messages for October, 2001: Re: BCP's, Lupron, Lap., where do I go from here? :(

Re: BCP's, Lupron, Lap., where do I go from here? :(

From: anonymous@obgyn.net
Thu Oct 11 14:31:49 2001

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Dear Olivia, sorry to hear you are in such low level at this moment. But decitions have to be made ever and ever again, specially with that desease. You are welcome here at any time. Don't worry to moan, here are we coming for that- because in the "normal world" , we have very little room. I'm diagnosed 12 years And after my first surgery I had a second look .And after that I had to go back 1/2 year later again with endometriomas - because medical traetment don't help them. I suggest you should go back and get a propper scan first and than make a desition , but after the next Lap and hormonal endo traetment , I was at least 1 year pain free - they took out deep endo as well and I was delighted for that year. This form of therapy was then redone 3 times and after the last it lasts 2 years,even. I don't know what you feel better with , personally , but when I had found a good clinic and good docs I could handle the desease always a lot easier.

So nobody can tell you what desition is the right for you, but I found surgery was always the best way to keep the pain in control. If you want you can mail me at any time lonlich@eircom.net (((hug)) Sybille anonymous@obgyn.net wrote:

>
> My dear sweet endo friends,
> I'll tell you my story in a "nut-shell". I've suffered from endo for
> the last 10 plus years. I was FINALLY diagnosed a year ago November
> 2nd. At that time the surgeon cauterized all the implants he could
> find. I then went on a nine month course of Lupron...which I'm happy to
> say..did work. But now..my Lupron is done and my Gyn. has put me back
> on BCP's. Well...I'm in as much pain as I ever was...I can feel my
> symptoms "coming back" as I type, does endo come back this fast? I guess
> my other question is...what next? My Gyn. has mentioned a repeat
> laparoscopy. I'm questioning this...I mean...the 1st. lap didn't help
> all that much..why would a second? I mean..a lap. a year..do women do
> that? Doc. also mentioned pregnancy...and don't get me wrong..I wan't
> children more than anything..but now is just not a good time for my
> husband and I to go down that road. I guess I'm searching for anyone
> who's been in my position..what did you do? I am also looking for a
> friend or friends that can actually relate to me..my family and friend's
> are getting sick of this constant endo thing...they just don't
> understand how painful,depressing, and terrible this disease is. Well..I
> guess that's it...I sure hope that someone can help me? Take care
> everyone..and I hope to hear from you soon.
>

lonlich

Next message: anonymous@obgyn.net: "Re: endo pain after total hyst."
Previous message: Tammi: "endo pain after total hyst."
Maybe in reply to: Olivia: "BCP's, Lupron, Lap., where do I go from here? :("
Next in thread: Amanda: "Re: BCP's, Lupron, Lap., where do I go from here? :("

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