Re: Endo Treatment
From: Alexa (anonymous@obgyn.net)
Sat Oct 6 02:03:12 2001
Dear Sybille,
I will try my best to give you the details about my treatment, but It’s
been such a long time since the diagnosis that I’m not sure if I can
remember everything. And to be honest, my doctors were very vague about
where the endo was found etc and the stage that it was in. If you’d
like I can try to obtain that info from my doctor next time I see him
and get back to you on that.
I was diagnosed by laparoscopy in June of 1998, I was 19 years old and
had been experiencing the extreme pain since I was 15. I was put on
Birth Control at 15 to attempt to manage the pain. That would work for
a while, but then the pain would just come back two fold. Then, the
doctors would change the brand of birth control and the pain would
dissipate again for about a year, but it always came back. I played the
game of switching birth control brands, a total of 5 times, until I was
19 and diagnosed with endo. That’s when my treatment began. Right now
I am taking Nordette Birth Control and have been since June of 1998 and
have not had cause to change with the combination of the coumadin. My
PT’s are normal at around 14. I will try to obtain more info for you
from my doctor as soon as possible.
Good luck with your treatment and I’ll pray that you too can become pain
free.
Best Wishes,
Alex Brough
At Mon, 1 Oct 2001, anonymous@obgyn.net wrote:
>
>Alex,
>thank you very much that message and you're the first one I have to get relieve for that long!!!!
>If I'm allowed would you mail me your personal dates , that is interesting for the med.profesionals as well.
>What stageing were you when your endo was diagnosed?
>If any surgery was done : what was done?
>What age are you?
>What are the PTs youre kept in?
>Do you have any other deseases than endo?
>Where was your endo present?
>What pill are you taking?
>
>I would love to hear from you .
>Sybille Lichtenstein (Nurse)
>mail: anonymous@obgyn.net
>
>anonymous@obgyn.net wrote:
>
>> I was diagnosed with Endometrioses three years ago after visiting
>> several doctors and specialists for severe menstrual pain that wasn't
>> relieved from over the counter drugs or birth control pills. I would
>> miss work and/or school every month during my menstrual cycle. The
>> doctors all told me that there is really no purpose to undergo surgery
>> to have the endo removed, because it would just come back. My concern
>> is mostly for pain relief. I was able to find a great specialist who
>> was experimenting with a combination of drugs and allowed me the
>> opportunity to try it.
>>
>> Most doctors are very skeptical about this treatment method and most
>> would not recommend it, but I full heartedly believe that my pain has
>> subsided for the past 3 years soley in part to this treatment. As soon
>> as I started treatment the monthly cramps and severe pain subsided.
>>
>> The treatment is to take Coumadin ( a blood thinner ) and birth control
>> pills simutaneously. Coumadin can be a very dangerous drug if not taken
>> properly and monitored. Most Physicians don't recommend this treatment
>> method because birth control contains Vitamin K (which is a blood
>> clotter) and coumadin is a blood thinner, therefore contradicting each
>> other. But, if you already have blood that is thicker than normal, but
>> not enough to clot, it doesn't hurt to thin it out just a little.
>>
>> My doctor started me out on 5mg of Coumadin a day and after having a
>> prothrombin time (PT) he found that this was way too much and if I had
>> cut myself I could have blead to death. The doc adjusted my dose to
>> 2mg/day and testing continued weekly for a month, my PT's were just
>> right so testing was moved to once a month. After 3 months of good
>> tests we started testing only quarterly. My PT's have been good ever
>> since, and I have experienced a wonderful relief.
>>
>> I hope this might help some people seeking pain relief from
>> Endometrioses. Please respond to this forum if you have any questions.
>>
>> --
>> Alex Brough
>>
>lonlich
--
Alex Brough
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)