Re: Interstitial Cystitis (Yen & Mindy)
From: Marlene (anonymous@obgyn.net)
Thu Sep 27 15:19:03 2001
Hi ladies *smiles*:
Just came across a site that discusses the hormonal connection with IC.
http://www.ic-network.com/guestlectures/vliet.html
I hope you find it helpful.
Best regards and wishes
--
Marlene
At Wed, 19 Sep 2001, Yen wrote:
>
>Dear Mindy,
>Actually, I do think I recall reading something about hormonal changes
>and IC -- if I recall correctly (don't quote me on it), I believe IC was
>said to flare when women experienced a decrease in estrogen levels. I
>don't recall where I read this, but do recall reading it at more than
>one website -- I had (late one night) done an IC search on Yahoo and
>came across a number of websites. Perhaps if you did a Yahoo search
>+IC+estrogen , then perhaps you would find such articles.
>Re the IC flare occurring after surgery -- I don't know but I recall
>another endo sis experiencing an IC flare following her surgery -- she
>had endo removed from her bladder at that surgery. I wonder whether
>having the bladder endo removed triggers a flare since the bladder is
>irritated from the surgery???
>
>Re your surgery with Dr. R, is all of your endo pain gone? From where
>did he find and remove endo? Did you have endo on your colon, ureter,
>kidney, diaphragm, etc. or was it all in your pelvic cavity? Did both
>of your ovaries have endo involvement?
>
>Can you describe to us the difference between your endo pain and your IC
>pain?
>
>Sorry for so many questions Mindy, but I am particularly interested :o).
>
>Re the IC again lol, I found the IC websites to be quite helpful re
>lists of "trigger food/beverages/etc.".
>
>I look forward to reading your answers.
>
>Thanks Mindy :),
>Yen
>
>At Wed, 19 Sep 2001, Mindy M wrote:
>>
>>Hello! I have not posted to the board in so long. Some of you knew that
>>after my surgery with Dr. R I was still having pain....turns out to be
>>IC....amazingly enough many women, including women on this board, have
>>it as well. Who knew a lot of the pain I was having was coming from the
>>IC. There were days I could not walk and I had so much pain before my
>>surgery I couldn't tell what or where it was coming from after
>>surgery!!! However, my pain level decreased significantly after my
>>surgery...Thanks to
>>Dr. R!!! I can now tell the difference from my endo pain and ic pain!
>>
>>My question to you is, has anyone come accross information regarding IC
>>and hormonal changes? I do have mild bladder pain during my period and
>>during mid cycle and my current Dr. says IC can be aggravated by
>>hormonal changes. I challenge this....how can the bladder be aggravated
>>by hormones!!!!
>>
>>Thanks,
>>Mindy :-)
>>
>>PS: I have checked ichelp.com and couldn't find anything regarding
>>hormones and ic....did I miss it?
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