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Re: Why me, why now?

From: Nathalie (anonymous@obgyn.net)
Tue Sep 25 05:15:38 2001


Hi Jade, Don't despair, it may get better or you'll learn to deal with it slowly. Day by day my dear. I was in your same shoes last December when I was first diagnosed with endo by mistake during a surgery to take out a large cyst on my left ovary. I too panicked when I first researched "endometriosis" and cried and felt helpless after countless, horrific, and unbelievable stories. Slowly, I took a deep breath and reevaluated my situation. As bad as it is to say, I am not as bad as some women, but I am not painfree either. Your mom has a point, she said it would be okay. Perhaps b/c she did not experience the same pain as you, and she was able to conceive. It's a case by case basis (as my months of researched has shown). Every woman is different. Some may have no pains at all, be able to conceive, yet have endo; others, tremendous pain and infertile, or tremendous pain and fertile. Some women pregnancy works, others not. I have a woman in my support group who has had a hysterectomy, has suffered for many years now (she's in her early fifties)who still has severe bleeding monthly (figure that out). But then again, I know someone who had a baby and has not suffered since. Another woman in another group, took a nasal spray (I forget the name at the momnet) and has been painfree for 10 years, although she is infertile. So, don't worry too much. Assess YOUR situation. It might not be that bad. Most stories we hear of are not so pleasant outcomes. Our support group is trying to get some positive experiences gathered up. Think, most who have had positive events, do not search for forums or groups because they don't need it and sometimes don't think of finding groups to post their encouragement. My situation is still yet to be unravelled. I too want children, I am only 23yrs and was told last year to start soon on having children. But then there's IVF to turn to as an aid if not. Everyday is a different story. As now I am well enough to sit at the computer and type and hopefully give you some hope. I hope it's working. You can check out the Endometriosis Association in Milwaukee which is pretty much the head (or mother) of all chapters. It is very helpful: http://www.endometriosisassn.org This is the first time I find this forum, and I find it very useful still in my case. Continue to look for support. You can always write me too. Take care, Nathalie



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