ENDO Messages for September, 2001: Re: Interstitial Cystitis

Re: Interstitial Cystitis

From: Yen (anonymous@obgyn.net)
Wed Sep 19 23:43:26 2001

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Dear Mindy, Actually, I do think I recall reading something about hormonal changes and IC -- if I recall correctly (don't quote me on it), I believe IC was said to flare when women experienced a decrease in estrogen levels. I don't recall where I read this, but do recall reading it at more than one website -- I had (late one night) done an IC search on Yahoo and came across a number of websites. Perhaps if you did a Yahoo search +IC+estrogen , then perhaps you would find such articles. Re the IC flare occurring after surgery -- I don't know but I recall another endo sis experiencing an IC flare following her surgery -- she had endo removed from her bladder at that surgery. I wonder whether having the bladder endo removed triggers a flare since the bladder is irritated from the surgery???

Re your surgery with Dr. R, is all of your endo pain gone? From where did he find and remove endo? Did you have endo on your colon, ureter, kidney, diaphragm, etc. or was it all in your pelvic cavity? Did both of your ovaries have endo involvement?

Can you describe to us the difference between your endo pain and your IC pain?

Sorry for so many questions Mindy, but I am particularly interested :o).

Re the IC again lol, I found the IC websites to be quite helpful re lists of "trigger food/beverages/etc.".

I look forward to reading your answers.

Thanks Mindy :), Yen

At Wed, 19 Sep 2001, Mindy M wrote: >
>Hello! I have not posted to the board in so long. Some of you knew that
>after my surgery with Dr. R I was still having pain....turns out to be
>IC....amazingly enough many women, including women on this board, have
>it as well. Who knew a lot of the pain I was having was coming from the
>IC. There were days I could not walk and I had so much pain before my
>surgery I couldn't tell what or where it was coming from after
>surgery!!! However, my pain level decreased significantly after my
>surgery...Thanks to
>Dr. R!!! I can now tell the difference from my endo pain and ic pain!
>
>My question to you is, has anyone come accross information regarding IC
>and hormonal changes? I do have mild bladder pain during my period and
>during mid cycle and my current Dr. says IC can be aggravated by
>hormonal changes. I challenge this....how can the bladder be aggravated
>by hormones!!!!
>
>Thanks,
>Mindy :-)
>
>PS: I have checked ichelp.com and couldn't find anything regarding
>hormones and ic....did I miss it?

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