Re: (((((YEN)))))))
From: suzanne (anonymous@obgyn.net)
Thu Sep 6 10:13:01 2001
Yen, please feel free to e-mail me at living@nwlink.com and we can talk
more about symptoms if you wish.
--
suzanne
At Tue, 4 Sep 2001, Yen wrote:
>
>Dear Suzanne and All:
>Suzanne, thanks so much for providing the details re your endo journey.
>Did you have the nausea and indigestion on a daily basis before endo
>surgery, and were those symptoms alleviated following the surgery?
>I am trying to figure out what is going on with me. Two docs have told
>me that endo and nausea/indigestion are unrelated/two separate problems.
>Upon brainstorming, a medical professional did suggest the possibility
>of intestinal partial blockage -- I'll call my gastro doc and ask about
>that possibility.
>Also scary, is that someone I know just passed away due to ovarian
>cancer -- now I'm getting paranoid because endo symptoms are so similar
>to ovca.
>So your intestinal endo affected the bowel but not the small intestine?
>Since you didn't mention diaphragmatic endo, I'm assuming that you did
>not have it. A more personal question which you may feel more
>comfortable answering privately (yentag@hotmail.com), what were your
>b.m.'s like?
>LOL, I guess that will do for now LOL. Suzanne, sorry to bog you down
>with so many questions, but I'm on a mission LOL.
>Love,
>Yen
>
>At Tue, 4 Sep 2001, suzanne wrote:
>>
>>Dear Yen, When I had my hyst the (inexperienced) ob/gyn found it on my
>>left ovary, my cervix and had adenomyosis. In subsequent surgery with
>>endo specialist, it was found on/in my bowel requiring bowel resection,
>>also rectal nodule, vaginal lesions and cul-de-sac involvement. Endo
>>was also found on my bladder and ureters, my broad, round and utersacral
>>ligaments and my entire peritoneum was infiltrated. I had nausea and
>>indigestion which I attribute to the intestinal endometriosis. When I
>>was on the pill for years I experienced morning sickness symptoms, but
>>that may have been caused by the pill itself. I don't know on that one.
>>
>>My endo specialist explained that the nausea was probably caused by
>>irritation of my colon. My lower gi system was not working well and
>>affected my upper gi as well. I practically lived on zantac but over
>>time that was ineffective too.
>>
>>I did not have any occult hernias, or diverticulitis either. I did have
>>severe adhesions caused from 26 years of misdiagnosis, but my doctor
>>excised those and did 2nd look lap 5 days later and again removed any
>>recurrent adhesions. Have you thought about adhesions also. They can
>>be as painful as the endo, and if you have both - that's a double
>>whammy.
>>
>>Hope this helps some in your search for answers.
>>
>>your friend, suzanne
>>
>>At Mon, 3 Sep 2001, Yen wrote:
>>>
>>>(((Hi Suzanne and All))):
>>>Suzanne, I've recently communicated with a couple of others who have
>>>shared the same success as you with your endo doc:o).
>>>Suzanne, can you please tell me once again in what locations endo was
>>>found in you, whether you required bowel/intestinal resections (if yes,
>>>how many and where -- also, what about intestinal implants), if you also
>>>had diaphragmatic endo, AND whether you experienced severe nausea and
>>>indigestion on a daily basis??? If yes to the nausea and indigestion,
>>>did it worsen with coffee consumption? What about with the bc pill --
>>>although you probably weren't on the bc pill since having the hyst lol
>>>-- okay, did it worsen with hormone replacement if you were taking
>>>those??!
>>>Oh, almost forgot, did you also have those occult hernias which Metzger
>>>is known to repair in her endo patients (and if yes, did your endo doc
>>>repair that as well?)?
>>>Given my questions to you, that, in itself, tells you quite a bit as to
>>>how I'm doing;o). I don't know what is going on with me -- endo, IC,
>>>hernia, etc.. Pain flares if I ingest the wrong thing -- but the nausea
>>>and indigestion became a constant since a few months ago. If it weren't
>>>for Prevacid (to take care of/mask the nausea and indigestion -- though
>>>not completely, but GREAT compared to living w/o the Prevacid), twice
>>>daily, I don't know where I'd be at this point. Have gone on the
>>>doc-merry-go-round and have received some conflicting info. Would hate
>>>to have endo surgery only to find out its not endo which plagues me.
>>>I'm confused, to say the least.
>>>(((Love))),
>>>Yen
>>>
>>>At Sun, 2 Sep 2001, suzanne wrote:
>>>>
>>>>Yen, thank you for the positive note. I am always on the side of
>>>>helping women with endo. I have thought of you and hope all is well
>>>>with you. How are you doing?
>>>>
>>>>--
>>>>suzanne
>>>>
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