(((Marlene)))
From: suzanne (anonymous@obgyn.net)
Tue Sep 4 02:27:29 2001
Dear Marlene, I am so glad to hear from you! I have thought of you often
and hope things are getting better. I am doing fantastic - all the pain
and suffering seems like a distant memory or bad dream.
Still trying to get up north for a trip. My friends from Oregon will be
at Forest Lake for the whole months of October. Would love to join
them. I will let you know.
Let's keep in touch, suzanne
At Mon, 3 Sep 2001, Marlene wrote:
>
>Hi Suzanne:
>
>It's good to see you!!!!
>
>I hope things are still going well with you and you've enjoyed your
>summer with your family and did a lot of fishing and camping *smiles*.
>
>Thank you for checking into this research and letting us know this would
>be done as well as the side affects created by the drug.
>
>If your still going to be up in the great white north or passing
>through...email me and maybe we can arrange to meet for coffee.
>
>Take Care and Warm hugssss
>
>--
>Marlene
>
>At Sat, 1 Sep 2001, suzanne wrote:
>>
>>I am posting this message to all women with endo about what I have found
>>out about Clinical Research of Washington. And above all because I care
>>so much about all women with endo.
>>
>>I received information on this study a couple weeks ago via e-mail. They
>>contacted me out of the blue, but when I called the number I realized
>>how they had contacted me. They are the University of Washington
>>Reproductive Endocrinology Dept. I saw them a couple times before I had
>>surgery with an endo specialist which eradicated all my endo and I now
>>enjoy an endo & pain free life after that surgery. Some "old-timers"
>>such as Belle, Marlene and Angie (adrite) remember me.
>>
>>Anyways, I will outline the details of the study verbatim here:
>>
>>The drug is called Exemestane and is developed by Pharmacia and Upjohn.
>>Protocol #971-FEH-0564-001.
>>
>>About the drug: Exemestane works by suppressing estrogen production,
>>which inhibits ovulation and the build up of the endometrium wall.
>>
>>Side effects: When given Exemestane in doses exceeding 25 mg for an
>>extended period of time some patients experienced dysphonia (deepening
>>of the voice), alopecia (hair loss), hirsutism (excessive body hair),
>>hot flashes, increased sweating, nausea, constipation, dizziness,
>>asthenia (leg weakness), leg edema, allergic reactions.
>>
>>You must agree to participate in the study for at least 5 months and 18
>>visits total. Receive medical examinations, ultrasounds, and study
>>medication at no cost to you. Complete survey and questionnaires.
>>Receive blood drawn two of which will require at least a 12-hour visit.
>>Attend clinics at least 2 hours in length each. Keep a diary of your
>>bleeding pelvic pain.
>>
>>But here's the good news . . .
>>
>>You will receive compensation of $270 per 12 hour PK visit and every
>>other visit will be compensated at $20 per visit.
>>
>>Sounds Lupron like to me, sounds like they need guinea pigs too, and
>>they are willing to pay us for using experimental drugs on us. Haven't
>>we been through enough already. In my opinion they are trying to prey
>>on us, especially those of which are not able to have children.
>>
>>>From the amount of posts on this forum alone, they seem desperate. What
>>they might not realize is that WE know what works and doesn't work in
>>the world of endo. WE are watchdogs for one another and inform and
>>support EACH OTHER.
>>
>>Just had to post this for my own peace of mind and because I care about
>>all of you. I suffered from misdiagnosed endo for 26 years and don't
>>want any of you to go through what i went through.
>>
>>take care, suzanne
>
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