ENDO Messages for September, 2001: (((((YEN)))))))

(((((YEN)))))))

From: suzanne (anonymous@obgyn.net)
Tue Sep 4 02:17:30 2001

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Dear Yen, When I had my hyst the (inexperienced) ob/gyn found it on my left ovary, my cervix and had adenomyosis. In subsequent surgery with endo specialist, it was found on/in my bowel requiring bowel resection, also rectal nodule, vaginal lesions and cul-de-sac involvement. Endo was also found on my bladder and ureters, my broad, round and utersacral ligaments and my entire peritoneum was infiltrated. I had nausea and indigestion which I attribute to the intestinal endometriosis. When I was on the pill for years I experienced morning sickness symptoms, but that may have been caused by the pill itself. I don't know on that one.

My endo specialist explained that the nausea was probably caused by irritation of my colon. My lower gi system was not working well and affected my upper gi as well. I practically lived on zantac but over time that was ineffective too.

I did not have any occult hernias, or diverticulitis either. I did have severe adhesions caused from 26 years of misdiagnosis, but my doctor excised those and did 2nd look lap 5 days later and again removed any recurrent adhesions. Have you thought about adhesions also. They can be as painful as the endo, and if you have both - that's a double whammy.

Hope this helps some in your search for answers.

your friend, suzanne

At Mon, 3 Sep 2001, Yen wrote: >
>(((Hi Suzanne and All))):
>Suzanne, I've recently communicated with a couple of others who have
>shared the same success as you with your endo doc:o).
>Suzanne, can you please tell me once again in what locations endo was
>found in you, whether you required bowel/intestinal resections (if yes,
>how many and where -- also, what about intestinal implants), if you also
>had diaphragmatic endo, AND whether you experienced severe nausea and
>indigestion on a daily basis??? If yes to the nausea and indigestion,
>did it worsen with coffee consumption? What about with the bc pill --
>although you probably weren't on the bc pill since having the hyst lol
>-- okay, did it worsen with hormone replacement if you were taking
>those??!
>Oh, almost forgot, did you also have those occult hernias which Metzger
>is known to repair in her endo patients (and if yes, did your endo doc
>repair that as well?)?
>Given my questions to you, that, in itself, tells you quite a bit as to
>how I'm doing;o). I don't know what is going on with me -- endo, IC,
>hernia, etc.. Pain flares if I ingest the wrong thing -- but the nausea
>and indigestion became a constant since a few months ago. If it weren't
>for Prevacid (to take care of/mask the nausea and indigestion -- though
>not completely, but GREAT compared to living w/o the Prevacid), twice
>daily, I don't know where I'd be at this point. Have gone on the
>doc-merry-go-round and have received some conflicting info. Would hate
>to have endo surgery only to find out its not endo which plagues me.
>I'm confused, to say the least.
>(((Love))),
>Yen
>
>At Sun, 2 Sep 2001, suzanne wrote:
>>
>>Yen, thank you for the positive note. I am always on the side of
>>helping women with endo. I have thought of you and hope all is well
>>with you. How are you doing?
>>
>>--
>>suzanne
>>

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