Re: Beware of Clinical Research Of Washington (((Suzanne)))
From: Marlene (anonymous@obgyn.net)
Mon Sep 3 12:21:55 2001
Hi Suzanne:
It's good to see you!!!!
I hope things are still going well with you and you've enjoyed your
summer with your family and did a lot of fishing and camping *smiles*.
Thank you for checking into this research and letting us know this would
be done as well as the side affects created by the drug.
If your still going to be up in the great white north or passing
through...email me and maybe we can arrange to meet for coffee.
Take Care and Warm hugssss
--
Marlene
At Sat, 1 Sep 2001, suzanne wrote:
>
>I am posting this message to all women with endo about what I have found
>out about Clinical Research of Washington. And above all because I care
>so much about all women with endo.
>
>I received information on this study a couple weeks ago via e-mail. They
>contacted me out of the blue, but when I called the number I realized
>how they had contacted me. They are the University of Washington
>Reproductive Endocrinology Dept. I saw them a couple times before I had
>surgery with an endo specialist which eradicated all my endo and I now
>enjoy an endo & pain free life after that surgery. Some "old-timers"
>such as Belle, Marlene and Angie (adrite) remember me.
>
>Anyways, I will outline the details of the study verbatim here:
>
>The drug is called Exemestane and is developed by Pharmacia and Upjohn.
>Protocol #971-FEH-0564-001.
>
>About the drug: Exemestane works by suppressing estrogen production,
>which inhibits ovulation and the build up of the endometrium wall.
>
>Side effects: When given Exemestane in doses exceeding 25 mg for an
>extended period of time some patients experienced dysphonia (deepening
>of the voice), alopecia (hair loss), hirsutism (excessive body hair),
>hot flashes, increased sweating, nausea, constipation, dizziness,
>asthenia (leg weakness), leg edema, allergic reactions.
>
>You must agree to participate in the study for at least 5 months and 18
>visits total. Receive medical examinations, ultrasounds, and study
>medication at no cost to you. Complete survey and questionnaires.
>Receive blood drawn two of which will require at least a 12-hour visit.
>Attend clinics at least 2 hours in length each. Keep a diary of your
>bleeding pelvic pain.
>
>But here's the good news . . .
>
>You will receive compensation of $270 per 12 hour PK visit and every
>other visit will be compensated at $20 per visit.
>
>Sounds Lupron like to me, sounds like they need guinea pigs too, and
>they are willing to pay us for using experimental drugs on us. Haven't
>we been through enough already. In my opinion they are trying to prey
>on us, especially those of which are not able to have children.
>
>>From the amount of posts on this forum alone, they seem desperate. What
>they might not realize is that WE know what works and doesn't work in
>the world of endo. WE are watchdogs for one another and inform and
>support EACH OTHER.
>
>Just had to post this for my own peace of mind and because I care about
>all of you. I suffered from misdiagnosed endo for 26 years and don't
>want any of you to go through what i went through.
>
>take care, suzanne
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