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Re: Beware of Clinical Research Of Washington
From: Yen (anonymous@obgyn.net)
Sat Sep 1 23:51:20 2001
(((((((HI SUZANNE!!!!!))))) and ALL))):
Suzanne, "you go girl" LOL!!! Dearest Suzanne, it is great to "see" you!
Thanks for maintaining your wings -- and sharing your wisdom:o).
Love,
Yen
At Sat, 1 Sep 2001, suzanne wrote:
>
>I am posting this message to all women with endo about what I have found
>out about Clinical Research of Washington. And above all because I care
>so much about all women with endo.
>
>I received information on this study a couple weeks ago via e-mail. They
>contacted me out of the blue, but when I called the number I realized
>how they had contacted me. They are the University of Washington
>Reproductive Endocrinology Dept. I saw them a couple times before I had
>surgery with an endo specialist which eradicated all my endo and I now
>enjoy an endo & pain free life after that surgery. Some "old-timers"
>such as Belle, Marlene and Angie (adrite) remember me.
>
>Anyways, I will outline the details of the study verbatim here:
>
>The drug is called Exemestane and is developed by Pharmacia and Upjohn.
>Protocol #971-FEH-0564-001.
>
>About the drug: Exemestane works by suppressing estrogen production,
>which inhibits ovulation and the build up of the endometrium wall.
>
>Side effects: When given Exemestane in doses exceeding 25 mg for an
>extended period of time some patients experienced dysphonia (deepening
>of the voice), alopecia (hair loss), hirsutism (excessive body hair),
>hot flashes, increased sweating, nausea, constipation, dizziness,
>asthenia (leg weakness), leg edema, allergic reactions.
>
>You must agree to participate in the study for at least 5 months and 18
>visits total. Receive medical examinations, ultrasounds, and study
>medication at no cost to you. Complete survey and questionnaires.
>Receive blood drawn two of which will require at least a 12-hour visit.
>Attend clinics at least 2 hours in length each. Keep a diary of your
>bleeding pelvic pain.
>
>But here's the good news . . .
>
>You will receive compensation of $270 per 12 hour PK visit and every
>other visit will be compensated at $20 per visit.
>
>Sounds Lupron like to me, sounds like they need guinea pigs too, and
>they are willing to pay us for using experimental drugs on us. Haven't
>we been through enough already. In my opinion they are trying to prey
>on us, especially those of which are not able to have children.
>
>>From the amount of posts on this forum alone, they seem desperate. What
>they might not realize is that WE know what works and doesn't work in
>the world of endo. WE are watchdogs for one another and inform and
>support EACH OTHER.
>
>Just had to post this for my own peace of mind and because I care about
>all of you. I suffered from misdiagnosed endo for 26 years and don't
>want any of you to go through what i went through.
>
>take care, suzanne
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