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Beware of Clinical Research Of WashingtonFrom: suzanne (anonymous@obgyn.net)Sat Sep 1 00:27:49 2001
I am posting this message to all women with endo about what I have found out about Clinical Research of Washington. And above all because I care so much about all women with endo. I received information on this study a couple weeks ago via e-mail. They contacted me out of the blue, but when I called the number I realized how they had contacted me. They are the University of Washington Reproductive Endocrinology Dept. I saw them a couple times before I had surgery with an endo specialist which eradicated all my endo and I now enjoy an endo & pain free life after that surgery. Some "old-timers" such as Belle, Marlene and Angie (adrite) remember me. Anyways, I will outline the details of the study verbatim here: The drug is called Exemestane and is developed by Pharmacia and Upjohn. Protocol #971-FEH-0564-001. About the drug: Exemestane works by suppressing estrogen production, which inhibits ovulation and the build up of the endometrium wall. Side effects: When given Exemestane in doses exceeding 25 mg for an extended period of time some patients experienced dysphonia (deepening of the voice), alopecia (hair loss), hirsutism (excessive body hair), hot flashes, increased sweating, nausea, constipation, dizziness, asthenia (leg weakness), leg edema, allergic reactions. You must agree to participate in the study for at least 5 months and 18 visits total. Receive medical examinations, ultrasounds, and study medication at no cost to you. Complete survey and questionnaires. Receive blood drawn two of which will require at least a 12-hour visit. Attend clinics at least 2 hours in length each. Keep a diary of your bleeding pelvic pain. But here's the good news . . . You will receive compensation of $270 per 12 hour PK visit and every other visit will be compensated at $20 per visit. Sounds Lupron like to me, sounds like they need guinea pigs too, and they are willing to pay us for using experimental drugs on us. Haven't we been through enough already. In my opinion they are trying to prey on us, especially those of which are not able to have children.
>From the amount of posts on this forum alone, they seem desperate. What Just had to post this for my own peace of mind and because I care about all of you. I suffered from misdiagnosed endo for 26 years and don't want any of you to go through what i went through. take care, suzanne
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