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Re: Whos Going to Teach My Doctor About Endometriosis : An Article written about Endo and published
From: AJ (anonymous@obgyn.net)
Fri Aug 31 17:54:30 2001
Katie,
I'm guessing that it may be the Endometriosis Association site. I know
that in the book written by their founder, that she mentions this. She
even has a cartoon called Endo Joe, where a man suffers from endo. It's
a way to get a smile that's for sure.
Take Care and God Bless,
AJ
At Fri, 31 Aug 2001, Katie wrote:
>
>That reminds me of something I saw on a website. Does anyone know where
>it is because I don't remember. It talks about how if there was a
>disease that threatened men's fertility and their ability to hold a job
>and threatened castration, etc., then there would be a lot more
>publicity and people would work harder to do something about it besides
>just give us drugs that put us into menopause. That last part I added
>though. If anyone has seen that and can tell me where it is, please let
>me know because that quote is so true. But doctors do seem to be a lot
>more educated about it now and I've found quite a few good doctors that
>really care. But there are still too many that don't and are completely
>clueless. Katie.
>
>At Fri, 31 Aug 2001, B.Browne wrote:
>>
>>Hi Angels,
>>
>>I thought you might like to see an article thats been published this
>>year, around the world and it has also been very well recieved. I hope
>>you all find it useful and if you want to send it to your local news
>>papers and also have it published..Please just leave the Copy Right and
>>Credits intact and you have my blessing to reproduce.
>>Pain Free Wishes to all,
>>
>>Belle
>>
>>went in for one of her surgeries, she taped a note to her stomach,
>>pleading with doctors not to take her female parts. Queen Victoria was
>>heard to have said " The only time she felt good, was while she was
>>pregnant " They say... thats the reason why she had so many childern.
>>
>>Endometriosis was first reported in roughly 1600 BC. It is now 2001 and
>>we are no closer to finding what causes this disease or how to treat it
>>and there is no cure in sight.
>>This female disease, which effects conservatively 1:10 women or nearly
>>90 million women world wide. There are many theories and one is that
>>dioxins play a huge roll in endometriosis, with their effect or damage
>>to the sufferer's Immune systems.The oldest theory is retrograde
>>mensturation but that is getting more unlikely. The disease being
>>Genetic ,is becoming more favourable. No matter what causes this
>>debilitating and painful disease, we need more people educated,
>>especially within the medical community.
>>With a ratio of 1:10, there it is every chance that we all know someone
>>suffering from Endometriosis. Whether its your Wife, Mother, Sister,
>>Aunty, Cousin or even Inlaws. There is a chance that one of your family
>>members might end up suffering this incurable, insidious disease.
>>
>>The doctors don't know how to treat it, with the exception of excisional
>>surgery and removal of the disease. But so few doctors know how to
>>perform this surgery.Which is said to be the most difficult surgery,
>>harder than cancer to remove.
>>Endometriosis is an auto immune disease, where misplaced endometrial
>>tissue, which belongs inside the uterus, is found outside the uterus.
>>This misplaced endometrial tissue, bleeds internally, the blood has no
>>where to escape to and so it causes swelling and irritation and then
>>this all in turn, causes debilitating, unbearable pain. Later forming
>>adhesions and often causing infertility. Infact Endometriosis is the
>>leading cause of infertility in the world and some patients do present
>>with no pain and only infertility, this makes the disease even harder to
>>understand and diagnose. Some women with severe disease have no pain or
>>symptoms besides infertility and others who have minimal disease, have a
>>huge amount of pain. The only Consistency with Endometriosis is the
>>Inconsistencies.
>>
>>There is a desperate need for education, not only for the public to be
>>aware but mainly amongst the medical community it general. None of them
>>seem to be able to handle or treat an Endometriosis Sufferer. When a
>>doctor doesn't know or understand something and he can't go and look it
>>up, due to the lack of updated information in the medical books
>>available, then he can't be the God, that he thought he was or wants to
>>be. If thats the case and he feels like a failure, this can be very
>>bruising to a training doctor's ego, let alone the best Gyneacologist,
>>who is not up todate on a disease, which is becoming way out of hand.
>>There are only a couple of handfuls.. of recognized Endometriosis
>>Specialists worldwide, they are just few and far between.
>>The doctors who have branched into Endometriosis, have either worked in
>>infertility or as endocrinologist's or a gyneacologist who has branched
>>into endoscopic surgery( keyhole surgery) These doctors are very hard to
>>find and sufferers need all the help they can get at finding them.
>>Otherwise many sufferers get onto a merry-go-round of continuous
>>surgeries, each causing more adhesions and more pain and if all their
>>disease is not excised and every bit cut out, it can only take a few
>>weeks to a month before it may all grow back. The patient then again
>>presents in pain and surgery is the only way to check on the disease.
>>The patient is very quickly labelled a complainer or even a
>>hypochondriac. So ofcourse they give into more surgery.
>>It is a terrible merry-go-round to get on and then to get off it, can be
>>very hard, by then all the damage has been done. Some women are
>>reporting up to over 20 surgeries. If they had had a recognized endo
>>surgeon, in the first place, for their first surgery, they may have been
>>put into remission, in the early years of their disease.
>>
>>Endometriosis Sufferers are encouraged to join their local Endometriosis
>>Association and organizations in their country.
>>A good place to start is at the website http://www.endometriosis.org or
>>Http://www.endocenter.org Go to the Support page on this site
>>http://www.endometriosis.org and it lists alot of the Endometriosis
>>Association's or Organizations all over the world.
>>There is also a Great first ever made, Up todate Documentary called
>>Endometriosis The Inside Story go to
>>http://www.endometriosis.org/html/video.html and you can read all about
>>it and its reviews or even how to order it.
>>There is help out there but you have to look hard for it and researching
>>Endometriosis is the sufferer's best weapon, against this insidious and
>>extremely painful disease. Get educated and quickly.
>>
>>By Belle Browne R.N., Copy Right 2001 .
>>
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