ENDO Messages for August, 2001: Re: Newbie/Introduction & Questions

Re: Newbie/Introduction & Questions

From: Clinical (anonymous@obgyn.net)
Fri Aug 31 14:56:27 2001

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At Fri, 5 Feb 1999, Annie wrote: >
>Kim, Grimace,
>I completely understand. When I went in for my last surgery to remove
>completely all of my female organs, I wanted to save some of my eggs to
>possibly have a serrogant mother have a child for me. My sister has a
>nursing friend who was going to school to become a nurse in the baby ward,
>she did not want to have any children herself but to better understand her
>job she wanted to go through the experience and was willing to do that.
>However, my DR talked my out of it and made me feel stupid because after
>all I already have 3 children. I can kick myself for not believing in my
>decision more. If there still is a chance for you to conceive, than I
>wouldn't make any quick decisions. Besides, if you do get pregnant, than
>your endo would subside, probably for quite a while. I know that I am not
>a DR, but since I have alot of experience, through my 10 years of trials,
>every DR has a different opinion and option. There is always new
>developments with endo, and always, I mean always a new way of looking at
>things. You can always have your lap done to have your tube removed
>anytime. It doesn't have to be on the 11th. You will know when you made
>the right decision. Maybe you should talk to your local University about
>this. Here in Seattle we have a great University that I would recommend to
>anyone who has more researching to do.
>Bye, and good luck, remember, your tube might not be the breading ground
>for the endo and that that might just be his expert opinion.
>Annie Smith
>BUCKSIE@Prodigy.net
>-----Original Message-----
>From: anonymous@obgyn.net <anonymous@obgyn.net>
>To: Multiple recipients of list <anonymous@obgyn.net>
>Date: Friday, February 05, 1999 4:02 AM
>Subject: Newbie/Introduction & Questions
>
>>Hello all...I am new to the list and have been reading the posts for the
>past
>>week or so. I appreciate so much being able to learn through other's
>>experiences with endo and to know that I am not alone!!
>>
>>A little background on myself (long story, short version)...I am 30 and
>have
>>been diagnosed with stage IV endo with severe adhesions for ten years.
>I've
>>had two laparotomies and two laps (three surgeries in 1991 and one in
>1994).
>>My right tube and ovary were removed when I was 21 (the gyn wanted to do a
>>hysterectomy but I wouldn't let him). I did a 6 month cycle of Depot
>Lupron
>>in 1993 which helped "kill off" some endo. My husband and I have tried
>Clomid
>>and Pergonal together with IUI to try and get pregnant. So far, so
>success.
>>My RE is recommending IVF but we simply cannot afford the out of pocket
>>expense.
>>
>>I have a couple of questions that I would welcome everyone's comments on:
>>
>>**I'm scheduled for another lap on 2/11. My RE has encouraged me to have
>my
>>remaining tube removed as it just "causes me problems" and is a "breeding
>>ground". (At my last lap, adhesions were holding the tube flat against the
>>back of my pelvis.) My fear is I am giving up my last chance at pregnancy
>>without IVF. Should I stick to my guns and have him just clean it out
>and/or
>>free it up from any adhesions? Has anyone else been encouraged to have
>their
>>tubes removed?
>>
>>**I also have a nodule of scar tissue or adhesions on the cul de sac (not
>sure
>>of the proper terminology?) that causes me a lot of pain (together with
>IBS,
>>it is a real joy!). Is this nodule something that could be removed through
>>the lap? I don't believe it was there at my last lap in 1994.
>>
>>**After my second laparotomy, the doc (not the one I see now) told me that
>he
>>had "severed the nerve to my bladder" ON PURPOSE because he felt it helped
>>with pain management. Now and for the rest of my life, I really have to
>>concentrate to urinate. Sometimes, it will take me up to 5 minutes to
>start
>>to go. Has anyone else ever heard of such a thing? I almost think he made
>a
>>mistake and told me he did it on purpose to cover himself.
>>
>>Sorry, if I have rambled...thanks for listening.
>>
>>Kim G., Wichita, Kansas
>>

Dear Annie,

There is a new study starting in September for endometriosis using a new medication. This is NOT a lupron like drug. It has very few side effects and is a new approach to the treatment of endometriosis. All medical expenses are covered. The study lasts for 3 months. If interested call Clinical Research of Washington at 206-923-2878.

--
Clinical Research of Washington
Tel 206-923-2878
Fax 206-937-3526
E-mail:   anonymous@obgyn.net

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