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Whos Going to Teach My Doctor About Endometriosis : An Article written about Endo and publishedFrom: B.Browne (anonymous@obgyn.net)Fri Aug 31 02:35:41 2001
Hi Angels, I thought you might like to see an article thats been published this year, around the world and it has also been very well recieved. I hope you all find it useful and if you want to send it to your local news papers and also have it published..Please just leave the Copy Right and Credits intact and you have my blessing to reproduce. Pain Free Wishes to all, Belle
went in for one of her surgeries, she taped a note to her stomach, pleading with doctors not to take her female parts. Queen Victoria was heard to have said " The only time she felt good, was while she was pregnant " They say... thats the reason why she had so many childern. Endometriosis was first reported in roughly 1600 BC. It is now 2001 and we are no closer to finding what causes this disease or how to treat it and there is no cure in sight. This female disease, which effects conservatively 1:10 women or nearly 90 million women world wide. There are many theories and one is that dioxins play a huge roll in endometriosis, with their effect or damage to the sufferer's Immune systems.The oldest theory is retrograde mensturation but that is getting more unlikely. The disease being Genetic ,is becoming more favourable. No matter what causes this debilitating and painful disease, we need more people educated, especially within the medical community. With a ratio of 1:10, there it is every chance that we all know someone suffering from Endometriosis. Whether its your Wife, Mother, Sister, Aunty, Cousin or even Inlaws. There is a chance that one of your family members might end up suffering this incurable, insidious disease. The doctors don't know how to treat it, with the exception of excisional surgery and removal of the disease. But so few doctors know how to perform this surgery.Which is said to be the most difficult surgery, harder than cancer to remove. Endometriosis is an auto immune disease, where misplaced endometrial tissue, which belongs inside the uterus, is found outside the uterus. This misplaced endometrial tissue, bleeds internally, the blood has no where to escape to and so it causes swelling and irritation and then this all in turn, causes debilitating, unbearable pain. Later forming adhesions and often causing infertility. Infact Endometriosis is the leading cause of infertility in the world and some patients do present with no pain and only infertility, this makes the disease even harder to understand and diagnose. Some women with severe disease have no pain or symptoms besides infertility and others who have minimal disease, have a huge amount of pain. The only Consistency with Endometriosis is the Inconsistencies. There is a desperate need for education, not only for the public to be aware but mainly amongst the medical community it general. None of them seem to be able to handle or treat an Endometriosis Sufferer. When a doctor doesn't know or understand something and he can't go and look it up, due to the lack of updated information in the medical books available, then he can't be the God, that he thought he was or wants to be. If thats the case and he feels like a failure, this can be very bruising to a training doctor's ego, let alone the best Gyneacologist, who is not up todate on a disease, which is becoming way out of hand. There are only a couple of handfuls.. of recognized Endometriosis Specialists worldwide, they are just few and far between. The doctors who have branched into Endometriosis, have either worked in infertility or as endocrinologist's or a gyneacologist who has branched into endoscopic surgery( keyhole surgery) These doctors are very hard to find and sufferers need all the help they can get at finding them. Otherwise many sufferers get onto a merry-go-round of continuous surgeries, each causing more adhesions and more pain and if all their disease is not excised and every bit cut out, it can only take a few weeks to a month before it may all grow back. The patient then again presents in pain and surgery is the only way to check on the disease. The patient is very quickly labelled a complainer or even a hypochondriac. So ofcourse they give into more surgery. It is a terrible merry-go-round to get on and then to get off it, can be very hard, by then all the damage has been done. Some women are reporting up to over 20 surgeries. If they had had a recognized endo surgeon, in the first place, for their first surgery, they may have been put into remission, in the early years of their disease. Endometriosis Sufferers are encouraged to join their local Endometriosis Association and organizations in their country. A good place to start is at the website http://www.endometriosis.org or Http://www.endocenter.org Go to the Support page on this site http://www.endometriosis.org and it lists alot of the Endometriosis Association's or Organizations all over the world. There is also a Great first ever made, Up todate Documentary called Endometriosis The Inside Story go to http://www.endometriosis.org/html/video.html and you can read all about it and its reviews or even how to order it. There is help out there but you have to look hard for it and researching Endometriosis is the sufferer's best weapon, against this insidious and extremely painful disease. Get educated and quickly. By Belle Browne R.N., Copy Right 2001 .
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