Re: Vitamins (((Yen)))
From: Marlene (anonymous@obgyn.net)
Wed Aug 29 16:28:15 2001
Hi Yen:
Too cute....I thought you knew about them *smiles*. Perhaps someone at
the forum with this type of knowledge could help both of us out here
then lol, as well as what info you get from your Doctor.
I was really fortunate not to have bowel/intestinal endo, so I'm not
sure of the symptoms, sorry I didn't answer that in the earlier post. I
am happy to hear that all your GI tests were negative, but I also
understand how frustrating it is to undergo a battery of tests and
nothing shows up and your symptoms and pain still remains.
I hope that you get the answers to the source(s) of your naseau,
indigestion and pain soon.
Warm hugsss
--
Marlene
http://www.geocities.com/marsbar3005/endostory.html
At Wed, 29 Aug 2001, Yen wrote:
>
>Hi Marlene and All:
>
>LOL Marlene, I don't have any particular knowledge re vitamins, that is
>why I was asking you lol! I've heard of potassium gluconate, potasssium
>citrate, etc., and was wondering whether one is better than the other --
>I have no idea. I have heard that one should be careful when taking
>potassium supplements, but that is all I know -- guess I'd have to check
>with a doc about it.
>Re the buffered vitamin C, I've never tried it -- I got that suggestion
>off of the IC website:).
>I take it that you were fortunate enough to not have the
>bowel/intestinal endo?
>
>Warmest Regards,
>Yen
>
>At Wed, 29 Aug 2001, Marlene wrote:
>>
>>Hi Yen:
>>
>>I don't mind sharing that with you at all *smiles* and I trust ya lol.
>>Your knowledge of vitamins seems to be more extensive than mine, so
>>maybe you could help me or suggest something alternate to what I am
>>taking.
>>
>>My doctor only said that I could supplement with vitamins and didn't
>>give me any guidelines. So, I just purchased a generic brand (Jamieson)
>>potassium 50 MG take 1 a day and a 500 MG of Vitamin C Western Family
>>brand, it's not coated it's a chewable vitamin.
>>
>>Would appreciate you letting me know if either of these is contrary to
>>what your Doctor advises.
>>
>>Thank you for your help.
>>
>>Warm hugssss
>>Marlene
>>http://www.geocities.com/marsbar3005/endostory.html
>>
>>At Wed, 29 Aug 2001, Yen wrote:
>>>
>>>Hi Marlene and All:
>>>Marlene, would you please share with me the name and strength of the
>>>potassium which you take -- I've heard of so many versions and am also
>>>curious as to what strength one generally takes (I promise you won't be
>>>held liable LOL, I know it is each individuals responsibility to check
>>>with their doc:-)). Also, do you take a buffered vit C, or is that not
>>>necessary?
>>>
>>>Yes, a few years ago, I had the whole gastro workup -- upper GI, barium
>>>enema, and, last winter, a colonoscopy -- all 100% clear.
>>>The Prevacid has really helped re the nausea and indigestion -- so far
>>>though, it seems I can't miss a dose w/o experiencing the nausea and
>>>indigestion. My gastro doc suggested I may need to be on it for life --
>>>I don't know about that lol -- I hope not. I think its endo related --
>>>of course, I don't "know" that is the case, but I really think it may
>>>be. Speaking of, do you (this includes also endo members) happen to
>>>know the symptoms of bowel/intestinal endo?
>>>
>>>Warmest Regards,
>>>Yen
>>>
>>>At Sun, 26 Aug 2001, Marlene wrote:
>>>>
>>>>Hi Yen:
>>>>
>>>>I am really happy to hear that you have found a difference with avoiding
>>>>the "trigger" items in your diet. I found that I had an improvement in
>>>>my pain once I knew the major things to avoid too. Other foods I am
>>>>learning as I go. The supplement I take is a pure potassium vitamin and
>>>>vitamin C.
>>>>
>>>>Fortunately I've never experienced nausea or indigestion during my
>>>>chronic pain state. But as you mentioned, IC could be like endo where
>>>>not everyone experiences the same symptoms, or you could have multiple
>>>>conditions. I know that as far as being able to tolerate certain foods,
>>>>IC sufferers vary.
>>>>
>>>>Just wondering if your Doctor has referred you to a Gastronologist for
>>>>tests? Two of the many tests I went through was a barium enema and upper
>>>>GI. With the nausa and indigestion there might be something there to
>>>>check on.
>>>>
>>>>I wish you well in finding out and alleviating your nausea and
>>>>indigestion, endo is enough in itself to have to go through without
>>>>added symptoms and pain from other conditions.
>>>>
>>>>Warm hugssss and pain free wishes
>>>>
>>>>--
>>>>Marlene
>>>>http://www.geocities.com/marsbar3005/endostory.html
>>>>
>>>>At Fri, 24 Aug 2001, Yen wrote:
>>>>>
>>>>>Hi Marlene, AJ, and All,
>>>>>Marlene, after reading your post, I now really wonder whether my
>>>>>urologist dx'd me correctly -- BUT, since eliminating many "trigger
>>>>>items", my frequency, urgency, etc. has gotten quite a bit better --
>>>>>SOOOO, if I can live w/o one more dx of yet another "incurable"
>>>>>disease/syndrome/whatever, I'll take it lol. I'll take one day at a
>>>>>time and see how it goes -- at this point, that appears to be one of the
>>>>>least of my problems (knocking on wood as I type this lol -- with my
>>>>>luck, I'll end up with a major IC flare tomorrow).
>>>>>Since reading some of your "atypical IC symptoms", I think my gyn may
>>>>>have been right and my urologist may have been wrong re the IC dx (but I
>>>>>don't know) -- should my (possible IC) symptoms flare again, I'll pursue
>>>>>it further (hopefully, that won't be necessary -- I don't want anymore
>>>>>ailments!!!).
>>>>>***The urologist told me that IC wouldn't cause the severe nausea and
>>>>>indigestion -- so even if he misdx'd me re IC, according to him, even if
>>>>>I had IC, the nausea and indigestion would be totally unrelated. Maybe
>>>>>I have a number of things going on with me???
>>>>>
>>>>>****Marlene, did you happen to also experience severe nausea and
>>>>>indigestion (upon awakening and throughout the day) with your IC -- or
>>>>>is he correct that they are unrelated? Maybe IC presents itself
>>>>>differently in women with endo?
>>>>>
>>>>>You see, at this point, I'm more concerned re the nausea, indigestion,
>>>>>and inability to tolerate my old, higher estrogen bc pill -- I'm trying
>>>>>to figure out the answer but don't seem to be doing too good a job of it
>>>>>lol.
>>>>>
>>>>>BTW, what is the name of the vitamins which you take? Do you take a
>>>>>multi or individual vitamins specifically geared toward your IC?
>>>>>
>>>>>Warmest Regards,
>>>>>Yen
>>>>>
>>>>>At Sun, 19 Aug 2001, Marlene wrote:
>>>>>>
>>>>>>Hi Yen:
>>>>>>
>>>>>>Most definitely forums are wonderful, this one in particular *smiles*. I
>>>>>>have learned so much from the women here through their posts of sharing
>>>>>>their first hand experiences.
>>>>>>
>>>>>>I hope that your urologist has diagnosed you correctly too and not
>>>>>>doubting his/her expertise, I just know that in my situation IC was
>>>>>>almost the last thing that was thought of as to one of the causes of my
>>>>>>pelvic pain. I had multiple conditions causing me pain, Polycystic
>>>>>>Ovarian Syndrome, Endo, Adhesions and IC.
>>>>>>
>>>>>>I hope I can describe the pain in my back properly. It was central
>>>>>>above my tail bone but felt more internal than bone related...if that
>>>>>>makes sense. I am not sure what you mean by mid sacral region though or
>>>>>>maybe that is the same thing?? Initially it was thought that my
>>>>>>abdominal pain was caused by my ovaries because that is where my pain
>>>>>>appeared to be, left and right sided. They removed them and 2 weeks
>>>>>>after that I had pain continue. My gyne at the time dismissed me and
>>>>>>told me my pain would get better in time, yeah like that happened
>>>>>>lol....
>>>>>>
>>>>>>Before being diagnosed with IC I had read a little about it, but I
>>>>>>doubted that I had it...because I didn't have any urgency or frequency,
>>>>>>which for most IC sufferers is usually the major symptom or complaint.
>>>>>>All I had was internal central burning pain.
>>>>>>
>>>>>>Potassium is most definitely an important part of our diet (the heart)
>>>>>>as well as Citric Acid is. I supplement both with vitamins. I was told
>>>>>>by my Doctor that the vitamins are broken down differently in our body
>>>>>>than the foods we consume so taking a vitamin supplement is different
>>>>>>than eating foods containing those elements.
>>>>>>
>>>>>>My diet is something I must still be careful with. There are other
>>>>>>things I have eaten that I have narrowed down as causing me discomfort,
>>>>>>in addition to the ones I mentioned before, strawberries and peacans for
>>>>>>instance, both cause me pain. In the beginning I kept track of what I
>>>>>>had eaten and if my pain worsened (up to 3 days after), I realized I
>>>>>>could not tolerate it.
>>>>>>
>>>>>>I really hope that you aren't diagnosed with IC, because there is no
>>>>>>cure for it, and IC sufferers can have flare ups where their pain is
>>>>>>very intense. There are treatment options but none the less it is an
>>>>>>auto-immune condition without a cure.
>>>>>>
>>>>>>If you would like to email me privately with any more questions, please
>>>>>>do. I wish you well in treating/determining your pelvic pain.
>>>>>>
>>>>>>Best wishes and regards
>>>>>>
>>>>>>--
>>>>>>Marlene
>>>>>>http://www.geocities.com/marsbar3005/endostory.html
>>>>>>
>>>>>>At Sat, 18 Aug 2001, Yen wrote:
>>>>>>>
>>>>>>>Hi Marlene and All,
>>>>>>>Marlene, all of us thank you for adding to the discussion -- thats how
>>>>>>>we learn -- the sharing of thoughts, ideas, experiences, etc. -- aren't
>>>>>>>forums great :-)! You mentioned that your IC pain did also radiate to
>>>>>>>the back and that your symptoms were not "typical" IC symptoms -- now I
>>>>>>>really wonder whether my urologist dx'd me accurately -- I hope so.
>>>>>>>Would you please share with me a description of your IC symptoms which
>>>>>>>radiated into the back? Was it in the mid-sacral region, tailbone
>>>>>>>region, region behind the ovaries, etc.? Also, did you ever experience
>>>>>>>bladder spasms which radiated to the back and if yes, what did that feel
>>>>>>>like?
>>>>>>>Thanks for the tip re potassium foods -- I wasn't aware that they
>>>>>>>exacerbate IC. I thought that potassium is a nutritional necessity, if
>>>>>>>so, how do you incorporate the required potassium into your diet? Or is
>>>>>>>your IC no longer an issue -- in other words, is it manageable at this
>>>>>>>point or must you always watch your dietary intake?
>>>>>>> Would appreciate any and all infor you care to share:-).
>>>>>>>Warmest Regards,
>>>>>>>Yen
>>>>>>>
>>>>>>>At Sat, 18 Aug 2001, Marlene wrote:
>>>>>>>>
>>>>>>>>Hi Yen and Kristy:
>>>>>>>>
>>>>>>>>I just wanted to add to your discussion of IC.
>>>>>>>>
>>>>>>>>After being diagnosed with endo when my ovaries were removed I continued
>>>>>>>>to have chronic pelvic pain.
>>>>>>>>
>>>>>>>>I suffered with this delibitating pain until I was diagnosed with IC,
>>>>>>>>nine months later via cystoscopy. Like endo being diagnosed via
>>>>>>>>laporoscope IC can only be accurately diagnosed through a cystoscopy. I
>>>>>>>>did not have the typical symptoms of IC pain. No burning while voiding
>>>>>>>>or urgency, just constant pain, which at times radiated to my back. My
>>>>>>>>pain was constant and was low central, and it felt like an internal
>>>>>>>>burning pain.
>>>>>>>>
>>>>>>>>It was not until I was diagnosed and began an elimination diet of no
>>>>>>>>caffiene, tomatoes, potatoes, bannanas, foods containing citrus acid
>>>>>>>>that I began to feel relief. It was explained to me that potassium
>>>>>>>>makes urine more acidic so that is why it's recommended to eliminate it
>>>>>>>>from your diet (this can be supplemented with vitamins). I also was
>>>>>>>>prescribed elmiron. This is a med that rebuilds the bladder lining.
>>>>>>>>
>>>>>>>>I hope you don't mind me adding to your discussion, my only wish is to
>>>>>>>>help. After suffering debilitating pain for so long that was
>>>>>>>>unexplained and was told to live with it, I empathsize with all women
>>>>>>>>suffering pelvic pain.
>>>>>>>>
>>>>>>>>Pain Free/Comfortable Wishes
>>>>>>>>
>>>>>>>>--
>>>>>>>>Marlene
>>>>>>>>http://www.geocities.com/marsbar3005/endostory.html
>>>>>>>>
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