Re: Vitamins (((Yen)))
From: Yen (anonymous@obgyn.net)
Wed Aug 29 13:41:51 2001
Hi Marlene and All:
LOL Marlene, I don't have any particular knowledge re vitamins, that is
why I was asking you lol! I've heard of potassium gluconate, potasssium
citrate, etc., and was wondering whether one is better than the other --
I have no idea. I have heard that one should be careful when taking
potassium supplements, but that is all I know -- guess I'd have to check
with a doc about it.
Re the buffered vitamin C, I've never tried it -- I got that suggestion
off of the IC website:).
I take it that you were fortunate enough to not have the
bowel/intestinal endo?
Warmest Regards,
Yen
At Wed, 29 Aug 2001, Marlene wrote:
>
>Hi Yen:
>
>I don't mind sharing that with you at all *smiles* and I trust ya lol.
>Your knowledge of vitamins seems to be more extensive than mine, so
>maybe you could help me or suggest something alternate to what I am
>taking.
>
>My doctor only said that I could supplement with vitamins and didn't
>give me any guidelines. So, I just purchased a generic brand (Jamieson)
>potassium 50 MG take 1 a day and a 500 MG of Vitamin C Western Family
>brand, it's not coated it's a chewable vitamin.
>
>Would appreciate you letting me know if either of these is contrary to
>what your Doctor advises.
>
>Thank you for your help.
>
>Warm hugssss
>Marlene
>http://www.geocities.com/marsbar3005/endostory.html
>
>At Wed, 29 Aug 2001, Yen wrote:
>>
>>Hi Marlene and All:
>>Marlene, would you please share with me the name and strength of the
>>potassium which you take -- I've heard of so many versions and am also
>>curious as to what strength one generally takes (I promise you won't be
>>held liable LOL, I know it is each individuals responsibility to check
>>with their doc:-)). Also, do you take a buffered vit C, or is that not
>>necessary?
>>
>>Yes, a few years ago, I had the whole gastro workup -- upper GI, barium
>>enema, and, last winter, a colonoscopy -- all 100% clear.
>>The Prevacid has really helped re the nausea and indigestion -- so far
>>though, it seems I can't miss a dose w/o experiencing the nausea and
>>indigestion. My gastro doc suggested I may need to be on it for life --
>>I don't know about that lol -- I hope not. I think its endo related --
>>of course, I don't "know" that is the case, but I really think it may
>>be. Speaking of, do you (this includes also endo members) happen to
>>know the symptoms of bowel/intestinal endo?
>>
>>Warmest Regards,
>>Yen
>>
>>At Sun, 26 Aug 2001, Marlene wrote:
>>>
>>>Hi Yen:
>>>
>>>I am really happy to hear that you have found a difference with avoiding
>>>the "trigger" items in your diet. I found that I had an improvement in
>>>my pain once I knew the major things to avoid too. Other foods I am
>>>learning as I go. The supplement I take is a pure potassium vitamin and
>>>vitamin C.
>>>
>>>Fortunately I've never experienced nausea or indigestion during my
>>>chronic pain state. But as you mentioned, IC could be like endo where
>>>not everyone experiences the same symptoms, or you could have multiple
>>>conditions. I know that as far as being able to tolerate certain foods,
>>>IC sufferers vary.
>>>
>>>Just wondering if your Doctor has referred you to a Gastronologist for
>>>tests? Two of the many tests I went through was a barium enema and upper
>>>GI. With the nausa and indigestion there might be something there to
>>>check on.
>>>
>>>I wish you well in finding out and alleviating your nausea and
>>>indigestion, endo is enough in itself to have to go through without
>>>added symptoms and pain from other conditions.
>>>
>>>Warm hugssss and pain free wishes
>>>
>>>--
>>>Marlene
>>>http://www.geocities.com/marsbar3005/endostory.html
>>>
>>>At Fri, 24 Aug 2001, Yen wrote:
>>>>
>>>>Hi Marlene, AJ, and All,
>>>>Marlene, after reading your post, I now really wonder whether my
>>>>urologist dx'd me correctly -- BUT, since eliminating many "trigger
>>>>items", my frequency, urgency, etc. has gotten quite a bit better --
>>>>SOOOO, if I can live w/o one more dx of yet another "incurable"
>>>>disease/syndrome/whatever, I'll take it lol. I'll take one day at a
>>>>time and see how it goes -- at this point, that appears to be one of the
>>>>least of my problems (knocking on wood as I type this lol -- with my
>>>>luck, I'll end up with a major IC flare tomorrow).
>>>>Since reading some of your "atypical IC symptoms", I think my gyn may
>>>>have been right and my urologist may have been wrong re the IC dx (but I
>>>>don't know) -- should my (possible IC) symptoms flare again, I'll pursue
>>>>it further (hopefully, that won't be necessary -- I don't want anymore
>>>>ailments!!!).
>>>>***The urologist told me that IC wouldn't cause the severe nausea and
>>>>indigestion -- so even if he misdx'd me re IC, according to him, even if
>>>>I had IC, the nausea and indigestion would be totally unrelated. Maybe
>>>>I have a number of things going on with me???
>>>>
>>>>****Marlene, did you happen to also experience severe nausea and
>>>>indigestion (upon awakening and throughout the day) with your IC -- or
>>>>is he correct that they are unrelated? Maybe IC presents itself
>>>>differently in women with endo?
>>>>
>>>>You see, at this point, I'm more concerned re the nausea, indigestion,
>>>>and inability to tolerate my old, higher estrogen bc pill -- I'm trying
>>>>to figure out the answer but don't seem to be doing too good a job of it
>>>>lol.
>>>>
>>>>BTW, what is the name of the vitamins which you take? Do you take a
>>>>multi or individual vitamins specifically geared toward your IC?
>>>>
>>>>Warmest Regards,
>>>>Yen
>>>>
>>>>At Sun, 19 Aug 2001, Marlene wrote:
>>>>>
>>>>>Hi Yen:
>>>>>
>>>>>Most definitely forums are wonderful, this one in particular *smiles*. I
>>>>>have learned so much from the women here through their posts of sharing
>>>>>their first hand experiences.
>>>>>
>>>>>I hope that your urologist has diagnosed you correctly too and not
>>>>>doubting his/her expertise, I just know that in my situation IC was
>>>>>almost the last thing that was thought of as to one of the causes of my
>>>>>pelvic pain. I had multiple conditions causing me pain, Polycystic
>>>>>Ovarian Syndrome, Endo, Adhesions and IC.
>>>>>
>>>>>I hope I can describe the pain in my back properly. It was central
>>>>>above my tail bone but felt more internal than bone related...if that
>>>>>makes sense. I am not sure what you mean by mid sacral region though or
>>>>>maybe that is the same thing?? Initially it was thought that my
>>>>>abdominal pain was caused by my ovaries because that is where my pain
>>>>>appeared to be, left and right sided. They removed them and 2 weeks
>>>>>after that I had pain continue. My gyne at the time dismissed me and
>>>>>told me my pain would get better in time, yeah like that happened
>>>>>lol....
>>>>>
>>>>>Before being diagnosed with IC I had read a little about it, but I
>>>>>doubted that I had it...because I didn't have any urgency or frequency,
>>>>>which for most IC sufferers is usually the major symptom or complaint.
>>>>>All I had was internal central burning pain.
>>>>>
>>>>>Potassium is most definitely an important part of our diet (the heart)
>>>>>as well as Citric Acid is. I supplement both with vitamins. I was told
>>>>>by my Doctor that the vitamins are broken down differently in our body
>>>>>than the foods we consume so taking a vitamin supplement is different
>>>>>than eating foods containing those elements.
>>>>>
>>>>>My diet is something I must still be careful with. There are other
>>>>>things I have eaten that I have narrowed down as causing me discomfort,
>>>>>in addition to the ones I mentioned before, strawberries and peacans for
>>>>>instance, both cause me pain. In the beginning I kept track of what I
>>>>>had eaten and if my pain worsened (up to 3 days after), I realized I
>>>>>could not tolerate it.
>>>>>
>>>>>I really hope that you aren't diagnosed with IC, because there is no
>>>>>cure for it, and IC sufferers can have flare ups where their pain is
>>>>>very intense. There are treatment options but none the less it is an
>>>>>auto-immune condition without a cure.
>>>>>
>>>>>If you would like to email me privately with any more questions, please
>>>>>do. I wish you well in treating/determining your pelvic pain.
>>>>>
>>>>>Best wishes and regards
>>>>>
>>>>>--
>>>>>Marlene
>>>>>http://www.geocities.com/marsbar3005/endostory.html
>>>>>
>>>>>At Sat, 18 Aug 2001, Yen wrote:
>>>>>>
>>>>>>Hi Marlene and All,
>>>>>>Marlene, all of us thank you for adding to the discussion -- thats how
>>>>>>we learn -- the sharing of thoughts, ideas, experiences, etc. -- aren't
>>>>>>forums great :-)! You mentioned that your IC pain did also radiate to
>>>>>>the back and that your symptoms were not "typical" IC symptoms -- now I
>>>>>>really wonder whether my urologist dx'd me accurately -- I hope so.
>>>>>>Would you please share with me a description of your IC symptoms which
>>>>>>radiated into the back? Was it in the mid-sacral region, tailbone
>>>>>>region, region behind the ovaries, etc.? Also, did you ever experience
>>>>>>bladder spasms which radiated to the back and if yes, what did that feel
>>>>>>like?
>>>>>>Thanks for the tip re potassium foods -- I wasn't aware that they
>>>>>>exacerbate IC. I thought that potassium is a nutritional necessity, if
>>>>>>so, how do you incorporate the required potassium into your diet? Or is
>>>>>>your IC no longer an issue -- in other words, is it manageable at this
>>>>>>point or must you always watch your dietary intake?
>>>>>> Would appreciate any and all infor you care to share:-).
>>>>>>Warmest Regards,
>>>>>>Yen
>>>>>>
>>>>>>At Sat, 18 Aug 2001, Marlene wrote:
>>>>>>>
>>>>>>>Hi Yen and Kristy:
>>>>>>>
>>>>>>>I just wanted to add to your discussion of IC.
>>>>>>>
>>>>>>>After being diagnosed with endo when my ovaries were removed I continued
>>>>>>>to have chronic pelvic pain.
>>>>>>>
>>>>>>>I suffered with this delibitating pain until I was diagnosed with IC,
>>>>>>>nine months later via cystoscopy. Like endo being diagnosed via
>>>>>>>laporoscope IC can only be accurately diagnosed through a cystoscopy. I
>>>>>>>did not have the typical symptoms of IC pain. No burning while voiding
>>>>>>>or urgency, just constant pain, which at times radiated to my back. My
>>>>>>>pain was constant and was low central, and it felt like an internal
>>>>>>>burning pain.
>>>>>>>
>>>>>>>It was not until I was diagnosed and began an elimination diet of no
>>>>>>>caffiene, tomatoes, potatoes, bannanas, foods containing citrus acid
>>>>>>>that I began to feel relief. It was explained to me that potassium
>>>>>>>makes urine more acidic so that is why it's recommended to eliminate it
>>>>>>>from your diet (this can be supplemented with vitamins). I also was
>>>>>>>prescribed elmiron. This is a med that rebuilds the bladder lining.
>>>>>>>
>>>>>>>I hope you don't mind me adding to your discussion, my only wish is to
>>>>>>>help. After suffering debilitating pain for so long that was
>>>>>>>unexplained and was told to live with it, I empathsize with all women
>>>>>>>suffering pelvic pain.
>>>>>>>
>>>>>>>Pain Free/Comfortable Wishes
>>>>>>>
>>>>>>>--
>>>>>>>Marlene
>>>>>>>http://www.geocities.com/marsbar3005/endostory.html
>>>>>>>
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