Re: Vitamins (((Yen)))
From: Marlene (anonymous@obgyn.net)
Wed Aug 29 11:37:10 2001
Hi Yen:
I don't mind sharing that with you at all *smiles* and I trust ya lol.
Your knowledge of vitamins seems to be more extensive than mine, so
maybe you could help me or suggest something alternate to what I am
taking.
My doctor only said that I could supplement with vitamins and didn't
give me any guidelines. So, I just purchased a generic brand (Jamieson)
potassium 50 MG take 1 a day and a 500 MG of Vitamin C Western Family
brand, it's not coated it's a chewable vitamin.
Would appreciate you letting me know if either of these is contrary to
what your Doctor advises.
Thank you for your help.
Warm hugssss
Marlene
http://www.geocities.com/marsbar3005/endostory.html
At Wed, 29 Aug 2001, Yen wrote:
>
>Hi Marlene and All:
>Marlene, would you please share with me the name and strength of the
>potassium which you take -- I've heard of so many versions and am also
>curious as to what strength one generally takes (I promise you won't be
>held liable LOL, I know it is each individuals responsibility to check
>with their doc:-)). Also, do you take a buffered vit C, or is that not
>necessary?
>
>Yes, a few years ago, I had the whole gastro workup -- upper GI, barium
>enema, and, last winter, a colonoscopy -- all 100% clear.
>The Prevacid has really helped re the nausea and indigestion -- so far
>though, it seems I can't miss a dose w/o experiencing the nausea and
>indigestion. My gastro doc suggested I may need to be on it for life --
>I don't know about that lol -- I hope not. I think its endo related --
>of course, I don't "know" that is the case, but I really think it may
>be. Speaking of, do you (this includes also endo members) happen to
>know the symptoms of bowel/intestinal endo?
>
>Warmest Regards,
>Yen
>
>At Sun, 26 Aug 2001, Marlene wrote:
>>
>>Hi Yen:
>>
>>I am really happy to hear that you have found a difference with avoiding
>>the "trigger" items in your diet. I found that I had an improvement in
>>my pain once I knew the major things to avoid too. Other foods I am
>>learning as I go. The supplement I take is a pure potassium vitamin and
>>vitamin C.
>>
>>Fortunately I've never experienced nausea or indigestion during my
>>chronic pain state. But as you mentioned, IC could be like endo where
>>not everyone experiences the same symptoms, or you could have multiple
>>conditions. I know that as far as being able to tolerate certain foods,
>>IC sufferers vary.
>>
>>Just wondering if your Doctor has referred you to a Gastronologist for
>>tests? Two of the many tests I went through was a barium enema and upper
>>GI. With the nausa and indigestion there might be something there to
>>check on.
>>
>>I wish you well in finding out and alleviating your nausea and
>>indigestion, endo is enough in itself to have to go through without
>>added symptoms and pain from other conditions.
>>
>>Warm hugssss and pain free wishes
>>
>>--
>>Marlene
>>http://www.geocities.com/marsbar3005/endostory.html
>>
>>At Fri, 24 Aug 2001, Yen wrote:
>>>
>>>Hi Marlene, AJ, and All,
>>>Marlene, after reading your post, I now really wonder whether my
>>>urologist dx'd me correctly -- BUT, since eliminating many "trigger
>>>items", my frequency, urgency, etc. has gotten quite a bit better --
>>>SOOOO, if I can live w/o one more dx of yet another "incurable"
>>>disease/syndrome/whatever, I'll take it lol. I'll take one day at a
>>>time and see how it goes -- at this point, that appears to be one of the
>>>least of my problems (knocking on wood as I type this lol -- with my
>>>luck, I'll end up with a major IC flare tomorrow).
>>>Since reading some of your "atypical IC symptoms", I think my gyn may
>>>have been right and my urologist may have been wrong re the IC dx (but I
>>>don't know) -- should my (possible IC) symptoms flare again, I'll pursue
>>>it further (hopefully, that won't be necessary -- I don't want anymore
>>>ailments!!!).
>>>***The urologist told me that IC wouldn't cause the severe nausea and
>>>indigestion -- so even if he misdx'd me re IC, according to him, even if
>>>I had IC, the nausea and indigestion would be totally unrelated. Maybe
>>>I have a number of things going on with me???
>>>
>>>****Marlene, did you happen to also experience severe nausea and
>>>indigestion (upon awakening and throughout the day) with your IC -- or
>>>is he correct that they are unrelated? Maybe IC presents itself
>>>differently in women with endo?
>>>
>>>You see, at this point, I'm more concerned re the nausea, indigestion,
>>>and inability to tolerate my old, higher estrogen bc pill -- I'm trying
>>>to figure out the answer but don't seem to be doing too good a job of it
>>>lol.
>>>
>>>BTW, what is the name of the vitamins which you take? Do you take a
>>>multi or individual vitamins specifically geared toward your IC?
>>>
>>>Warmest Regards,
>>>Yen
>>>
>>>At Sun, 19 Aug 2001, Marlene wrote:
>>>>
>>>>Hi Yen:
>>>>
>>>>Most definitely forums are wonderful, this one in particular *smiles*. I
>>>>have learned so much from the women here through their posts of sharing
>>>>their first hand experiences.
>>>>
>>>>I hope that your urologist has diagnosed you correctly too and not
>>>>doubting his/her expertise, I just know that in my situation IC was
>>>>almost the last thing that was thought of as to one of the causes of my
>>>>pelvic pain. I had multiple conditions causing me pain, Polycystic
>>>>Ovarian Syndrome, Endo, Adhesions and IC.
>>>>
>>>>I hope I can describe the pain in my back properly. It was central
>>>>above my tail bone but felt more internal than bone related...if that
>>>>makes sense. I am not sure what you mean by mid sacral region though or
>>>>maybe that is the same thing?? Initially it was thought that my
>>>>abdominal pain was caused by my ovaries because that is where my pain
>>>>appeared to be, left and right sided. They removed them and 2 weeks
>>>>after that I had pain continue. My gyne at the time dismissed me and
>>>>told me my pain would get better in time, yeah like that happened
>>>>lol....
>>>>
>>>>Before being diagnosed with IC I had read a little about it, but I
>>>>doubted that I had it...because I didn't have any urgency or frequency,
>>>>which for most IC sufferers is usually the major symptom or complaint.
>>>>All I had was internal central burning pain.
>>>>
>>>>Potassium is most definitely an important part of our diet (the heart)
>>>>as well as Citric Acid is. I supplement both with vitamins. I was told
>>>>by my Doctor that the vitamins are broken down differently in our body
>>>>than the foods we consume so taking a vitamin supplement is different
>>>>than eating foods containing those elements.
>>>>
>>>>My diet is something I must still be careful with. There are other
>>>>things I have eaten that I have narrowed down as causing me discomfort,
>>>>in addition to the ones I mentioned before, strawberries and peacans for
>>>>instance, both cause me pain. In the beginning I kept track of what I
>>>>had eaten and if my pain worsened (up to 3 days after), I realized I
>>>>could not tolerate it.
>>>>
>>>>I really hope that you aren't diagnosed with IC, because there is no
>>>>cure for it, and IC sufferers can have flare ups where their pain is
>>>>very intense. There are treatment options but none the less it is an
>>>>auto-immune condition without a cure.
>>>>
>>>>If you would like to email me privately with any more questions, please
>>>>do. I wish you well in treating/determining your pelvic pain.
>>>>
>>>>Best wishes and regards
>>>>
>>>>--
>>>>Marlene
>>>>http://www.geocities.com/marsbar3005/endostory.html
>>>>
>>>>At Sat, 18 Aug 2001, Yen wrote:
>>>>>
>>>>>Hi Marlene and All,
>>>>>Marlene, all of us thank you for adding to the discussion -- thats how
>>>>>we learn -- the sharing of thoughts, ideas, experiences, etc. -- aren't
>>>>>forums great :-)! You mentioned that your IC pain did also radiate to
>>>>>the back and that your symptoms were not "typical" IC symptoms -- now I
>>>>>really wonder whether my urologist dx'd me accurately -- I hope so.
>>>>>Would you please share with me a description of your IC symptoms which
>>>>>radiated into the back? Was it in the mid-sacral region, tailbone
>>>>>region, region behind the ovaries, etc.? Also, did you ever experience
>>>>>bladder spasms which radiated to the back and if yes, what did that feel
>>>>>like?
>>>>>Thanks for the tip re potassium foods -- I wasn't aware that they
>>>>>exacerbate IC. I thought that potassium is a nutritional necessity, if
>>>>>so, how do you incorporate the required potassium into your diet? Or is
>>>>>your IC no longer an issue -- in other words, is it manageable at this
>>>>>point or must you always watch your dietary intake?
>>>>> Would appreciate any and all infor you care to share:-).
>>>>>Warmest Regards,
>>>>>Yen
>>>>>
>>>>>At Sat, 18 Aug 2001, Marlene wrote:
>>>>>>
>>>>>>Hi Yen and Kristy:
>>>>>>
>>>>>>I just wanted to add to your discussion of IC.
>>>>>>
>>>>>>After being diagnosed with endo when my ovaries were removed I continued
>>>>>>to have chronic pelvic pain.
>>>>>>
>>>>>>I suffered with this delibitating pain until I was diagnosed with IC,
>>>>>>nine months later via cystoscopy. Like endo being diagnosed via
>>>>>>laporoscope IC can only be accurately diagnosed through a cystoscopy. I
>>>>>>did not have the typical symptoms of IC pain. No burning while voiding
>>>>>>or urgency, just constant pain, which at times radiated to my back. My
>>>>>>pain was constant and was low central, and it felt like an internal
>>>>>>burning pain.
>>>>>>
>>>>>>It was not until I was diagnosed and began an elimination diet of no
>>>>>>caffiene, tomatoes, potatoes, bannanas, foods containing citrus acid
>>>>>>that I began to feel relief. It was explained to me that potassium
>>>>>>makes urine more acidic so that is why it's recommended to eliminate it
>>>>>>from your diet (this can be supplemented with vitamins). I also was
>>>>>>prescribed elmiron. This is a med that rebuilds the bladder lining.
>>>>>>
>>>>>>I hope you don't mind me adding to your discussion, my only wish is to
>>>>>>help. After suffering debilitating pain for so long that was
>>>>>>unexplained and was told to live with it, I empathsize with all women
>>>>>>suffering pelvic pain.
>>>>>>
>>>>>>Pain Free/Comfortable Wishes
>>>>>>
>>>>>>--
>>>>>>Marlene
>>>>>>http://www.geocities.com/marsbar3005/endostory.html
>>>>>>
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