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Re: ((Misty))
From: misty (anonymous@obgyn.net)
Mon Aug 20 17:37:04 2001
Wendi,
Hi ya! Im doing ok. Its really weird being that way because I feel so
lazy. :) Its that awful? You wake up and ready to go back to bed. But,
I just bare the days as it comes. I thought about seeing if my
therapist might know of a pain specialist. I have so many questions I
know they would get tired of seeing me. My doctor put me on loratabs
but, I dont take them due to it making me sleep. I have enough problems
staying awake!! I have dutes as well as the rest of you all. I cant
take morphin because morphin dont do nothing for me. It would be like
taking a asprin. They got medications that either make you tired or
dont work as far as pain.
The pain has to come from somewhere! Why did they put cortizone (in)
your back? I have never heard of anyone that had that done before. The
swelling sounds like your retaining alot of water, but yet the rashes
sounds like an alergic reaction or your nerves. I have had my nerves to
put rashes on me but the worst was the rashes dried out and cracked
open.
Dont let them confuse you, you tell them what you feel it is from. Its
not good to be confussed. The thing with Endo, you can get it over your
lungs, bowels, kidneys, etc. And we really dont know how that would
effect us (meaning all types of symptoms). I seen some girls pictures
online where the endo covered her bowels and would cause her to have
problems using the bathroom. Its really strange how it can cause so
many problems. I just wish they would put a finger on it and say this
is why this happens. Doctors (ARE) supposed to know everything related
to this. Thats what makes me so sad.
I am so sorry you are in so much pain. When I read these posts it lets
me know there are people out there that have it worse then me. Best
wishes in the days ahead, and I hope you get to feeling better! ( You
are in my prayers! )
Sincerely,
Misty
At Mon, 20 Aug 2001, Wendi wrote:
>
>Misty,
>Hey there. How are ya? I too, suffer from fatigue. I don't know if
>it's actually the disease that causes it, or the pain from the Endo. The
>pain justs exhausts me. I saw a pain specialist last Tuesday and he put
>a bunch of cortizone in my back. He seems to think that Endometriosis
>has nothing to do with why I'm in so much pain. I've had quite a few
>specialists say that now. All they are doing is confusing me though. I
>also wonder why I still swell. I already had a hysterectomy, and my
>hands still swell up. Today I'm a little concerned because it looks
>like I've got some kind of rash on my hand. My pain has been extremely
>intense as well. My back, my shoulders, my arms, and both of my legs
>are KILLING me!! I wonder what it is?? Who knows.
>Anyway, you take care and MANY pain free wishes to you.
>Hugs,
>Wendi
>At Sun, 19 Aug 2001, misty wrote:
>>
>>Wendi, Thats ok. I was starting to worry about you. Sorry to hear
>>about your weekend I know it can ruin it. Mine dont hurt that much
>>until it gets irrated (by doctor) or start to ovulate. I wanted to ask
>>a question if thats ok. I experience being tired all the time is that
>>included with what goes on? I noticed a few years ago staying tired
>>(wanting to sleep all the time). Sorry to ask so many questions. I
>>just know you all experience different things but yet in the same area.
>>I hope things go well for you and best of luck to you.
>>((Loves))
>>
>>Respectfully,
>>Misty
>>
>>At Sun, 19 Aug 2001, Wendi wrote:
>>>
>>>Hi Misty,
>>>Sorry I haven't gotten back to you sooner. I had a very long painful
>>>weekend. I did want to let you know however that I did get your email.
>>>Hope your pain has eased. Talk to you soon,
>>>Loves,
>>>Wendi
>>>
>>>At Fri, 17 Aug 2001, misty wrote:
>>>>
>>>>Wendi,
>>>>I sent you a email did you recieve it? I wasnt sure if you had or
>>>>hadn't.
>>>>
>>>>Respectfully,
>>>>Misty
>>>>
>>>>At Mon, 13 Aug 2001, Wendi wrote:
>>>>>
>>>>>Hi Misty,
>>>>>I've been experiencing pain in both of legs in the thigh and knee area
>>>>>for about two years now as well as the balloon inflated lower abdomen.
>>>>>My gynecologist always believed that this pain was to due to
>>>>>Endometriosis and because all of the laps that I got as well as being on
>>>>>Lupron, and Danazol weren't working he thought would be best if I got a
>>>>>hysterectomy. In January of this year I went ahead and got the
>>>>>hysterectomy and for some reason or another, (they're still trying to
>>>>>figure it out), I still have that same burning knifelike pain in my
>>>>>legs. My stomach still bloats up as well. It bothers me that you were
>>>>>recently diagnosed with Endometriosis and your doctor already wants you
>>>>>to get a hysterectomy. After my hyst, is when I found this forum and
>>>>>found out that there are numerous Endometriosis specialists that can
>>>>>actually excise all of the disease without removing your female organs.
>>>>>Belle, one of the most knowledgeable angels here has a list of some Endo
>>>>>specialists all over the world. She can email them privately if you ask
>>>>>her. Just some friendly advice, because even if your hysterectomy does
>>>>>help your pain, you may not even need one. You might want to give one
>>>>>of those specialists a try. I'm actually waiting for my new insurance
>>>>>to kick in and then I'm going to go see Dr. Cook in California.
>>>>>Supposedly he's supposed to be very good. If you don't mind me asking
>>>>>what state do you live in?? I'm here for you if you need me. If you
>>>>>prefer to email me privately that would be fine too.
>>>>>Hope you feel better soon hun.
>>>>>(((Hugs))
>>>>>Wendi Farbstein
>>>>>Wfarbs@cs.com
>>>>>
>>>>>At Sun, 12 Aug 2001, MIss wrote:
>>>>>>
>>>>>>I was recently diagnosed with endo and a cyst on my
>>>>>>ovary. He is giving me 1 month to see how I feel (pain
>>>>>>wise). If I dont feel any better I get a hysterctomy
>>>>>>at the age of 24. Does anyone understand why pain
>>>>>>developes in the upper legs to knee caps? I also get
>>>>>>an instant swelling in my lower abdomin like almost a
>>>>>>balloon inflated and very uncomfortable to bend over
>>>>>>or set. Anyone got any clues to that one? Just curious
>>>>>>because I havent had a follow up yet with my doctor as
>>>>>>to the reasons and effects of a cyst or endo. I go
>>>>>>this Friday. I am very unknowledgeable to these female
>>>>>>things. I'm really new. Glad to know there is people
>>>>>>that does have the same problem.
>>>>>>
>>>>>>God Bless,
>>>>>>Thanks,
>>>>>>Misty
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