ENDO Messages for August, 2001: Re: IC (((AJ)))

Re: IC (((AJ)))

From: Marlene (anonymous@obgyn.net)
Sun Aug 19 19:07:16 2001

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In reply to: AJ: "Re: IC"
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Reply: Kristy: "A note about Elmiron and DMSO"

Hi AJ:

It's amazing how many women have other conditions in addition to endo, IBS and IC being just being two of them.

The only med I have been prescribed is Elmiron. I began the elmiron treatment in March and by June started to feel relief from the pain. Although it was mentioned that sometimes it can take as much as 6 months. As much as I felt better, I still had pain so the urologist did the procedure you explained. He distended my bladder and poured a solution called DMSO into it. I was tender for about a day and 1/2 but really was glad I had it done because the discomfort I was having was alleviated.

When I was researching IC I did a search on Elmiron and came across a web site that had a 1-800 number where you could obtain more info. The site is:

http://www.elmiron100.com/pre_tp.html

Click on the section that asks if you are on Elmiron and another window will come up that has a toll free number you can call to obtain more info.

Anyways...I phoned and about 6 weeks later I received a newsletter from an IC support group, a video and an audio casssette. The information in that was really good and was sent free of charge. I live in Canada and the US office redirected me to a Canadian toll free number.

Now I have written a book lol.....I wish you well in your IC treatment AJ, if you are wondering about anything else and would like to email me privately, please do.

Warm wishes and regards

-- Marlene http://www.geocities.com/marsbar3005/endostory.html

At Sat, 18 Aug 2001, AJ wrote: > >Geez ladies, ya'll caught me by suprise. It shocked me that anyone >mentioned IC and I never even thought about bringing it up on the forum. >I've been going to a uroligist for a few months now. I had the >cystoscopy, hydrodystention, and another test done a few months ago. The >only results that came back was inflammation of no known cause. My >urologist has tried many many meds for me, but so far none have helped. >Oh ya, and during the part of the test that you are awake and they fill >your bladder, she said that my bladder holds very little compared to >others, but while I was asleep, it was fine?!?! The day of the tests she >started me on Pyridium Plus and Ditropan XL 5 mg then to 10 mg. That >didn't have any effect whatsoever. So she started me on Detrol 4 mg a >day and Elmiron 300mg a day. I've been on these since July 27 and I >haven't really noticed any improvement. I know that someone mentioned >being on Elmiron, how long have you been on it and how long did it take >to start showing improvement?? My urologist is very caring and explains >everything soooo well, it's a great improvement from what I'm used to. I >have an appt with her on the 23 for a f/u. She told me the last time >that I saw her that we would try these meds and if they didnt do any >good that I would have to go into the office once a week or once a >month(I can't remember which, my memory has been getting really bad >lately) and she would use a catheter to put meds inside my bladder. She >said that this is a treatment for IC also. I was wondering if anyone >has tried this. I really don't want to do it. I mean it's bad enough >to have a catheter once, but it hurts sooo bad and I'm a big wuss when >it comes to catheters lol. Anyway, sorry for making this so long, but I >needed to ask these questions and see what yall thought about it all. >Thanks for reading this novel!! lol >Take Care and God Bless, >AJ

Next message: Joyce: "Re: 1-a-month LupronWeek 2"
Previous message: Marlene: "Re: IC (((Yen))) (long reply)"
In reply to: AJ: "Re: IC"
Next in thread: Kristy: "A note about Elmiron and DMSO"
Reply: Kristy: "A note about Elmiron and DMSO"

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