ENDO Messages for August, 2001: Re: IC

Re: IC

From: Yen (anonymous@obgyn.net)
Sat Aug 18 17:11:17 2001

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Hi Marlene and All, Marlene, all of us thank you for adding to the discussion -- thats how we learn -- the sharing of thoughts, ideas, experiences, etc. -- aren't forums great :-)! You mentioned that your IC pain did also radiate to the back and that your symptoms were not "typical" IC symptoms -- now I really wonder whether my urologist dx'd me accurately -- I hope so. Would you please share with me a description of your IC symptoms which radiated into the back? Was it in the mid-sacral region, tailbone region, region behind the ovaries, etc.? Also, did you ever experience bladder spasms which radiated to the back and if yes, what did that feel like? Thanks for the tip re potassium foods -- I wasn't aware that they exacerbate IC. I thought that potassium is a nutritional necessity, if so, how do you incorporate the required potassium into your diet? Or is your IC no longer an issue -- in other words, is it manageable at this point or must you always watch your dietary intake? Would appreciate any and all infor you care to share:-). Warmest Regards, Yen

At Sat, 18 Aug 2001, Marlene wrote: >
>Hi Yen and Kristy:
>
>I just wanted to add to your discussion of IC.
>
>After being diagnosed with endo when my ovaries were removed I continued
>to have chronic pelvic pain.
>
>I suffered with this delibitating pain until I was diagnosed with IC,
>nine months later via cystoscopy. Like endo being diagnosed via
>laporoscope IC can only be accurately diagnosed through a cystoscopy. I
>did not have the typical symptoms of IC pain. No burning while voiding
>or urgency, just constant pain, which at times radiated to my back. My
>pain was constant and was low central, and it felt like an internal
>burning pain.
>
>It was not until I was diagnosed and began an elimination diet of no
>caffiene, tomatoes, potatoes, bannanas, foods containing citrus acid
>that I began to feel relief. It was explained to me that potassium
>makes urine more acidic so that is why it's recommended to eliminate it
>from your diet (this can be supplemented with vitamins). I also was
>prescribed elmiron. This is a med that rebuilds the bladder lining.
>
>I hope you don't mind me adding to your discussion, my only wish is to
>help. After suffering debilitating pain for so long that was
>unexplained and was told to live with it, I empathsize with all women
>suffering pelvic pain.
>
>Pain Free/Comfortable Wishes
>
>--
>Marlene
>http://www.geocities.com/marsbar3005/endostory.html
>

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