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Re: Endo & FibromyalgiaFrom: Sue (anonymous@obgyn.net)Tue Jul 31 22:50:58 2001
At Sun, 25 Feb 2001, Angie wrote: > >Hey Guys, (Wendi & Lynn) I know I wasn't invited to this conversation, >but I, too, had a tah/bso 16 months ago for endometriosis. I, too, >continued to have pain. The kicker is...right after surgery I hurt from >head to toe -- not just pelvic pain. The doctors told me that I had >fibromyalgia -- I didn't buy it because I'd never had it prior to >surgery, and my "gut instinct" just told me that wasn't so. I still >have pain from endo, but the "fibromyalgia" pain is now gone. I'm not >saying that neither of you have it -- perhaps you do -- but for me, >getting the right HRT was the kick in the pants my body needed to get >rid of the awful body and joint aches. I literally felt like my body >was being torn apart. I couldn't take any of the traditional HRT they >prescribe, and finally found a good combination of natural hrt that >helped -- no, I'm not a "snake oil salesman", but it might be something >you want to check into if you think the same connection holds true for >you (no fibromyalgia BEFORE the tah/bso, but was told you have it >shortly AFTER the tah/bso). If you want more info, please contact me. I >have alot of resources on the subject that you can read for yourself. >I'm still struggling with the endometriosis pain, but the fibromyalgia >"like" pain is gone (thank goodness, I was ready to put my head in the >oven). > >I wish you both luck, and pain free days. >Hi my name is Sue and I just found this website. I was looking at reoccuring endo and found your note. I too have endo and fibromyalgia. I first had surgery in '77 for removal of l ovary/tube; then '87 total hysto; '94 for reoccurance which included a colostomy for 6 months; surgery to remove another reoccurance in jan '01. Never had problems like after the last surgery. (Fibro was diagnosed in '00) About 2-3 months after last surgery had terrible pain on side of surgery. Dr found a hematoma (started bleeding) pain was gone for a short time - came back. went for CT's and they found another mass, not anymore hematoma's. Said it "probably" wasn't cancer. Didn't do anything, but I am still in a lot of pain - all they offer is pain killers! Now I just feel terrible - no energy, aches and pains all over! Anyone have any suggestions. I am 50. > >-- >=================================================== >At Sun, 25 Feb 2001, Wendi wrote: >> >>At Sat, 24 Feb 2001, LYNN,BASTIAN wrote: >>> >>>At Tue, 8 Dec 1998, anonymous@obgyn.net wrote: >>>> >>>>I had several lap surgeries to remove endometriosis and finally a >>>>hysterectomy. >>>>that was 1 year ago and also have Fibromyalgia. I'm in the dark on how many of >>>>us there are, nobody really likes to talk about having either ailment.I TO AM GOING THROUGH LAP. SURG. THURSDSAY MARCH 1ST...IF THEY FIND ENDOMETRIOSIS THEY WILL DO A FULL HYSTERECTOMY THEN AND THERE...YES I'M AFRAID , I ALSO SUFFER FROM FYBROMIALGIA. I'M NOT SURE WHAT TO EXPECT. I'M 29 AND HAVE A 10 YEAR OLD SON. IF YOU HAVE ANY INFO TO HELP ME PLEASE SEND IT ...THANK YOU LYNN 'B' >>> >>>-- >>>LYNN 'B' >>> >>Hi Lynn, >>Was wondering if you have any personal information you could give me >>about fibromyalgia. I've researched it many times, but would like to >>talk to somebody that actually has it. My rheumatologist thinks I may >>have that, but I just don't know what to do. I also have Endometriosis >>and had a hysterectomy on January 15th and am still in major, major >>pain. Not sure. Anyway, have a great day, and if I can answer any >>questions for you I will. >>Thank you, >>Wendi > >-- >adrite@hotmail.com >
-- Thanks for any info - Sue
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