ENDO Messages for July, 2001: Re: To remove ovaries or not

Re: To remove ovaries or not

From: D.N. (anonymous@obgyn.net)
Mon Jul 30 10:07:38 2001

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Reply: D.N.: "Re: To remove ovaries or not"

Hi Lauren,

I respect your opinion, however I wanted to clarify my reason for believing removal of both ovaries at the time of a hyst is important for those of us with endo. The chance for further surgeries is higher for than without endo. All the endo has to be removed and unless you have a expert in endo doing the surgery - they probably won't be able to get it all. Some endo doesn't have color. I researched and talked to people who had hysts before I had mine. I didn't know about the endo until after that surgery. If I did- both ovaries would have been gone with my hyst. My right ovary was completely healthy at that surgery.

The pain I have is more than just a simple cyclical pain. It is extremely painful- up there with being hit in the stomach. I have a permananetly swollen lymph node that is around the area endo was found during my first surgery. It is about 3 inches long. When I now have a "period" or cycle it becomes extremely painful- If I move the wrong way or sneeze-the pain stops me in my tracks. If I had had both ovaries removed at the first surgery- this would not be happening to me. By the time I had my second surgery, my ovary was covered with endo and adhesions, thus now I have ORS. Remember everytime you have surgeries it increases your chances for adhesions and complications. Also many doctors do not do a simple laparoscopy after you have had a laparotomy because increased chances of adhesions. So every surgery you have will be a major one.

I pray that I will be able to handle this pain. I do not want to have surgery again. But, it the pain becomes too great or if I ended up with a obstructed ureter (my ovary had adhered to it) or obstructed bowel, surgery may have to happen again. Both my surgeries were extremely difficult. And this is coming from someone who did have very bad bleeding (fibroids) and pain (like labor pains) with her periods. And I still have cramps without a uterus, not as intense, but nonetheless cramps.

I am writing because I feel so strongly about this. If I can help someone avoid what I have gone through, then my experience will not be in vain.

Best wishes, D.N.

At Mon, 30 Jul 2001, Lauren wrote: >
>Hi, I am considering having a hyst, but will definitley keep one ovary at least and my cervix if I do go the hyst route. I have done extensive research about hysts, and would like to have my own natural hormones for as long as possible.Alot of Dr's feel that one should take out anything that might cause trouble later on, I personally disagree. Tell men to loose their testicles 'in-case' they get testicular cancer, they will laugh at you.
>Yes, there is always a chance that you will still have some pain from the endo after a hyst, but the bad period pain and heavy bleeding will be gone.
>I am personally more than willing to still have cyclical pain, and have a yearly pap smear to avoid deterioration in my sex life,vaginal & bladder prolapse, and avoid taking artificial hormones for the rest of my life. I also feel that I am too young to be coping with bone loss, brittle bones, Hot flashes, night sweats, mood swings and trying to find the right HRT for me.
>So there are my personal reasons for this opinion, but you need to evaluate your situation and do what is best for you.
>Best of luck in making your decesion.
>((((HUGS))))
>LAUREN

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