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Re: Can't take this anymoreFrom: Tina (anonymous@obgyn.net)Sat Jul 28 19:00:08 2001
At Thu, 26 Jul 2001, April wrote: > >Hi Rhonda, > >Don't give up! You know your body better than any doctor or specialist! >Don't give up!! Hi, my name is April. I am 27 years old. I was >diagnosed in 1995 with Endometriosis, polycystic cysts on both ovaries, >severe adhesions and all the other problems related to endo. I have had >4 surgeries- the last one Dec 2000 being a hysterectomy but keeping my >ovaries. I have been on Depo-Lupron before my 3rd surgery. I have gone >thru so many doctors..I lost count really..I have heard that my husband >beats me to it's in my head and I have all these other problems. So >many times I wanted to give up and I did for about 10 minutes but then I >refused to let this disease win. I refused to let those doctors win! So >I started giving my new doctors an interview. I asked them their >theories and beliefs on Endometriosis. I asked them if they were able >to be opened minded on a disease that has no true known cause and no >true known cure. I am still searching for a better doctor but I have >also educated myself on this disease because I am the one that has to >live with this disease!! I do not have any lving children- I lost my >only child when I was 28 weeks pregnant- she lived a precious 15 minutes >of life. I am divorced- 2 years now and have met a wonderful, caring >man whom I am engaged to. He has two beautiful little boys ages 2 and 3 >whom we are fighting for joint custody right now! I am having symptoms >of the disease. Last month I had a ruptured cyst and the ultrasound >shows multiple cysts on my ovaries-particually my left. I have a >feeling that the adhesions are present. I also am dealing with >migraines from hell right now and chronic fatigue. I have very dry skin >from the neck down and oily from the neck up..I have these damn little >hairs that like to grow on my chin and neck as well as my breasts. I >deal with IBS, Allergies to dairy, allergies to chemicals-cleaning >products, Asthma, Allergies to cats, dogs, and grass (which I have 3 >cats and 1 dog). I believe these are ALL Related symptoms of >Endometriosis! It's a horrible disease but I refuse to give up. I want >to but I can't. I want to live a happy life. I am tired of being >Bitchy all the time. I am tired of being tired. But I refuse to give >up! Count your blessings. You have a wonderful husband and beautiful >children! They didn't bargain for this but you didn't either- Stick >together and you can overcome any obsticle. Love is stronger than any >pain!! Here is something I wrote before my hyst last year! >Endometriosis My Strength > >You are there by my side >Even when I beg you to leave >You stand close or hide >When I start to forget >You remind me to believe >When I think my life is almost normal >You hit my hormonal >Oh, how I hate you so >But have grown to love you more >To learn all I can, to fight with you not against >Yes, I know your dirty secret >And I play your painful games >But you know I don’t give in easily >Even when you think you’ve got me made >You sometimes laugh at my treatments to rid of you >You sometimes give me a break and hide >You are my enemy, friend, love >You are apart of me and I you >You call yourself Endometriosis >I call you My Strength. > >-- >April Sunshine >9/2000 > >I know this is long but I just wanted to say- Don't give up!! >t Thu, 26 Jul 2001, Rhonda Pape wrote: >> >>I am desperate for help. I am 38 years old. For the past 10 years, I >>have been having a problem that no one seems to be able to help me with. >>I have seen 17 doctors, including 2 phsycologist (sp). My husband and I >>are very much in love and have a wonderful sex life but... after sex if >>I have an orgasm, I pay for days. I have horrible bloating, gas, sick >>at my stomach and diarhea. I have been married since I was 20 years >>old. This did not always happen. I have been told by the dr.'s that >>there is no way that one could have anything to do with the other. That >>the body is not connected in any way for this to happen. All I know is >>that in this body it's happening. I have dealt with dr's getting angry >>with me because of this. I had given up seeking help through dr's. Now >>after six years of dealing with this, I feel I can't do it anymore. I'm >>scared I am going to ruin a wonderful relationship with my husband if I >>don't find the answer to this soon.I have three children ranging from >>ages 6-19. I was diagnosed with endometriosis after my third child and >>had a partial hystorectomy trying to help this problem which did not >>work. I have for years thought about writing to magazines and talk >>shows but have been to embarrassed. I have become so desperate lately >>that I have started telling all of my friends just to reach out and see >>if anyone has ever heard of anything like this. No one has. >> >>Please help me. >
-- Hi! Rhonda, I just wanted to say you are not alone with this disease. I have been battling this disease as well. I am 29 year old,and even with a strong marriage,it's hard. Men don't understand child birth,let alone something like this. I can't understand it myself,so we are all searching for the cure together. I know times get rough,I get depressed,and I have been dealing with depression,which I feel is from this disease called Endometriosis. It's hard for us,because this disease wasn't thought to be real till about two years ago. Just think if we didn't go see doctors who treated us like we were crazy,then this diseas would really be silent. I try to look on the bright side of this disease,because if you don't it will win,and being women,I know we can win this!!! I was lucky to have my children early,because after my daughter Nicole was born,it hit me hard,and even with a Hysterectomy,it's still there,since there is no cure,I don't feel wrong for making the decision to have a Hysterectomy,because I was well informed by my Gyn,and by my on research,and that a doctor didn't force me to have a Hysterectomy,and I am well aware that my next step may be comming soon,were I have to have my ovariest taken out. I am going to see the Gyn next week,I am having problems with pain on the ovaries,and stomach problems. I have noticed when you look for information on what symptoms this disease has,they just have pelvic pain,and bladder problems,stomach pain,but it maybe because a women is unsure about telling a doctor all her symptoms,I remember when I told one doctor all my symptoms,they looked at me like I was crazy,and I was afraid to get treated like I was,and most of the time I did. It amazes me how doctors can think a women is just going to waste her time complaining of pain to them,as it raising our children doesn't take up most of that time. Anyway,I am here if you would like to e-mail me. I hope you read all the messages people send you? I think having the chance to talk to other women with this disease is the most help of all!!! Please don't ever give up,I know it's hard when others have no idea what you are going through,and alot of them just don't give a darn. I do,I have been there and still am doing that. Take care Tina Pleas
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