ENDO Messages for July, 2001: Re: Can't take this anymore

Re: Can't take this anymore

From: April (anonymous@obgyn.net)
Thu Jul 26 14:33:28 2001

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Hi Rhonda,

Don't give up! You know your body better than any doctor or specialist! Don't give up!! Hi, my name is April. I am 27 years old. I was diagnosed in 1995 with Endometriosis, polycystic cysts on both ovaries, severe adhesions and all the other problems related to endo. I have had 4 surgeries- the last one Dec 2000 being a hysterectomy but keeping my ovaries. I have been on Depo-Lupron before my 3rd surgery. I have gone thru so many doctors..I lost count really..I have heard that my husband beats me to it's in my head and I have all these other problems. So many times I wanted to give up and I did for about 10 minutes but then I refused to let this disease win. I refused to let those doctors win! So I started giving my new doctors an interview. I asked them their theories and beliefs on Endometriosis. I asked them if they were able to be opened minded on a disease that has no true known cause and no true known cure. I am still searching for a better doctor but I have also educated myself on this disease because I am the one that has to live with this disease!! I do not have any lving children- I lost my only child when I was 28 weeks pregnant- she lived a precious 15 minutes of life. I am divorced- 2 years now and have met a wonderful, caring man whom I am engaged to. He has two beautiful little boys ages 2 and 3 whom we are fighting for joint custody right now! I am having symptoms of the disease. Last month I had a ruptured cyst and the ultrasound shows multiple cysts on my ovaries-particually my left. I have a feeling that the adhesions are present. I also am dealing with migraines from hell right now and chronic fatigue. I have very dry skin from the neck down and oily from the neck up..I have these damn little hairs that like to grow on my chin and neck as well as my breasts. I deal with IBS, Allergies to dairy, allergies to chemicals-cleaning products, Asthma, Allergies to cats, dogs, and grass (which I have 3 cats and 1 dog). I believe these are ALL Related symptoms of Endometriosis! It's a horrible disease but I refuse to give up. I want to but I can't. I want to live a happy life. I am tired of being Bitchy all the time. I am tired of being tired. But I refuse to give up! Count your blessings. You have a wonderful husband and beautiful children! They didn't bargain for this but you didn't either- Stick together and you can overcome any obsticle. Love is stronger than any pain!! Here is something I wrote before my hyst last year! Endometriosis My Strength

You are there by my side Even when I beg you to leave You stand close or hide When I start to forget You remind me to believe When I think my life is almost normal You hit my hormonal Oh, how I hate you so But have grown to love you more To learn all I can, to fight with you not against Yes, I know your dirty secret And I play your painful games But you know I don’t give in easily Even when you think you’ve got me made You sometimes laugh at my treatments to rid of you You sometimes give me a break and hide You are my enemy, friend, love You are apart of me and I you You call yourself Endometriosis I call you My Strength.

-- April Sunshine 9/2000

I know this is long but I just wanted to say- Don't give up!! t Thu, 26 Jul 2001, Rhonda Pape wrote: > >I am desperate for help. I am 38 years old. For the past 10 years, I >have been having a problem that no one seems to be able to help me with. >I have seen 17 doctors, including 2 phsycologist (sp). My husband and I >are very much in love and have a wonderful sex life but... after sex if >I have an orgasm, I pay for days. I have horrible bloating, gas, sick >at my stomach and diarhea. I have been married since I was 20 years >old. This did not always happen. I have been told by the dr.'s that >there is no way that one could have anything to do with the other. That >the body is not connected in any way for this to happen. All I know is >that in this body it's happening. I have dealt with dr's getting angry >with me because of this. I had given up seeking help through dr's. Now >after six years of dealing with this, I feel I can't do it anymore. I'm >scared I am going to ruin a wonderful relationship with my husband if I >don't find the answer to this soon.I have three children ranging from >ages 6-19. I was diagnosed with endometriosis after my third child and >had a partial hystorectomy trying to help this problem which did not >work. I have for years thought about writing to magazines and talk >shows but have been to embarrassed. I have become so desperate lately >that I have started telling all of my friends just to reach out and see >if anyone has ever heard of anything like this. No one has. > >Please help me.

Next message: Gena: "Hysterectomy for Endo curing fibro?"
Previous message: Kristy: "Re: Endo's own estrogen(Trisha)"
In reply to: Rhonda: "Can't take this anymore"
Next in thread: Tina: "Re: Can't take this anymore"
Reply: Tina: "Re: Can't take this anymore"

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