Re: adenomyosis - from Keri
From: Keri (anonymous@obgyn.net)
Wed Jun 27 00:51:36 2001
Hi Kelly,
This procedure has been suggested to me several times here in Australia
for adneomyosis. I have it too and its unbearable at times.
I chose not to have it done as the doctor could not say that it would
definitely stop my pain. And long term effects were uncertain.
I recently went on Synarel, and although i have had an awful time with
the side effects of the drug and had to come off it after only 21/2
months, i must say it has helped my pain overall. My uterus is
virtually pain free at present. Even after sex very little pain..no
where near like before.
you just have to assess if you can put up with the side effects of the
drugs. i couldn't and have chosen to not take them anymore.
i must say tho, the drug has given my body a rest from the constant pain
and bleeding which have caused extreme iorn deficencies.
Good luck with your decision.
Take care
Keri
>
>Hello eveyone ! I'm new to this forum ,and i am looking for any
>information i can find. Iwas recently told i have adenomyosis . Now my
>problem is i'm not a candidate for birth control ,which is the way they
>try to control it .Anyway i have read , through tons of information that
>it really doesn't help anyway.I happen to come across this dr taoff 's
>website . He says he's an alternitive to hysterectomy . So i sent an
>e- mail to him explaining my problem . We talked on the phone , at
>which point i wasn't real sure about the procedure. So i made an appt.
>to go see this dr., which only added to my confusion. He said he can
>take the diseased part out of my uterus and my uterine lining , instead
>of hysterectomy. He said he started this procedure about 10 yrs ago ,
>only has done a little over a hundred with 100 % never getting it back
>.Now i have read so much i don't know what to think . I found some
>information that says it can't be done, because they said they can't
>tell if all the diseased part is gone . Saying it leaves bad scar
>tissue which leads to lots of risks like not being able to detect if i
>ever got any kind of cancer in my uterus . I wanted to know if anyone
>ever heard anything about this procedure or had it done , it is
>experimental .Alls i know is i'm scheduled for surgery on july 16 and
>i'm not really sure about the whole thing .I am scared to death that i
>might cause problems later in life . I think i'm just plan scared
>because everthing i'm reading says they can't do that , so i don't know
>what to think . But my dr. swears it can be done . But he's only one
>dr. most of the other drs don't believe in it . So where do i go from
>here?
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)