Re: 2nd opinion - CHAR & ALL - HYSTO NOT A CURE!! THANX SUSIE Q
From: Keri (anonymous@obgyn.net)
Mon Jun 25 20:12:49 2001
Thanx for your input Susie,
Your information is invaluable and I just hopethat the anon writer takes
heed to your words.
I agree that hystos may be right for some. It wish it was the end all
cure of endo.
We do all have to have faith that the future will hold a cure.
I guess anons negative abusive posting may come from being at the end of
ones tether with endo. I can't say for sure tho that anon is even a
sufferer.
I just hope your information is taken on board and not discarded.
You have re affirmed exactly what i was saying in my ifrst message, if
you don't know the good and the bad of all possible treatment options,
how can you make the right decision for your self. Its important to
listen take it on board and not judge. Take the information if it is
useful in helping you make the right decision for your treatment.
Thanx again Susie, my kindest regards to you you and yours. Best wishes
for better health
Keri McInerny
At Mon, 25 Jun 2001, SusieQ wrote:
>
>Hi ladies,
>
>I think there has been some serious miscommunication among posters and
>their doctors. I am providing some references from THE preeminent
>endometriosis doctors in the world for your information.
>
>Endometriosis Persisting After Castration -
>Removing Disease, Not Organs, Key To Long Term Relief by David Redwine,
>http://www.scmc.org/endo/html/reprint7.html
>
>>From Dr. Andrew Cook, Recurrent Endometriosis After Hysterectomy, found
>at http://www.drcook.com/adca4.html.
>
>I am a walking, talking example of endometriosis returning after
>hysterectomy. I had a wonderful doctor who removed all lesions,
>confirmed in pathology reports and on video. The basis for returning
>endometriosis can be HRT, but there are other sources including
>aromatase. Aromatase inhibitors are a new source of endo treatment for
>recurrent endo after hyst. An ariticle on OBGYN.net reviews this
>information as well, http://www.obgyn.net/endo/articles/erc_0827.htm
>
>Please remember ladies, that research is advancing every day. What was
>"true" ten years ago is outdated and inaccurate today. Ten years from
>now, hopefully, we will all have better care and more treatment options.
>Either way, we are all in the same boat together. Getting nasty or
>defensive helps no one. We all get differing information from our
>medical professionals...it's up to us to clarify and search out the most
>appropriate treatment.
>
>I hope this information helps some of you looking at the hysterectomy
>option. Hyst. has it's good points and bad points. But no treatment
>is 100% effective...if it sounds to good to be true, well...we all know
>the rest.
>
>luck and love, SusieQ
>
>>At Mon, 25 Jun 2001, Keri wrote:
>>>
>>>Char and anon
>>>
>>>i know you mean well char and what works for you is great. i sincerley
>>>hope your hysto WILL be your relief.
>>>
>>>But trust me, your research is incorrect. It is not your cure. The %
>>>of recurrance of endo after hysto is really very high.
>>>
>>>The problems associated with it of course HRT and numerous other
>>>factors!!
>>>
>>>ENDO is incurable!! It is all in the way you yourself as an individual
>>>manage your problems and pain.
>>>
>>>I DON'T trust ANYTHING my doctor says. They really don't know. They
>>>are fudging their way thru endo. We are all guinea pigs...
>>>
>>>The only people who can help with endo is the sufferers
>>>themselves.."US"!
>>>
>>>We suffer, we try the drugs, we suffer the side effects, we have the
>>>surgery, we suffer depression, confusion and possibly not having
>>>children. We suffer the effects it will all have on our relationships.
>>
>>I WOULD LIKE TO KNOW WHERE YOU GET THE INFO FROM THAT ENDO HAS A HIGH
>>PERCENTAGE OF GROWING BACK AFTER A HYST IS DONE. THE ONLY WAY ENDO CAN
>>GROW BACK AFTER YOU HAVE A HYST IS IF THEY DONT GET IT ALL OUT IN THE
>>FIRST PLACE. IF THE DOCTOR HAS GOTTEN OUT ALL OF THE ENDO YOU HAVE NO
>>UTERUS FOR THE ENDO TO GROW FROM. I DONT SEE HOW YOU CAN SIT HERE ON
>>THIS FORUM AND TELL PEOPLE THAT A HYST IS NOT A CURE FOR ENDO WHEN YOU
>>ARE NOT A DOCTOR. DIFFERNET DOCTORS DO THINGS DIFFERNET WAYS AND SOME
>>WORK AND SOME DONT. IT SOUNDS LIKE YOU HAVE HAD A FEW DOCTORS THAT
>>DIDNT KNOW WHAT THEY WERE DOING. YOU SURE HAVE A ANTI-TRUST ISSUE IT
>>SEEMS WITH THEM. THIS FORUM IS FOR ADVISE TO GIVE TO EACH OTHER. YOU
>>ARE NOT GIVING ADVICE OR SUPPORT BUT NEGATIVE THOUGHTS YOU HAVE. MAYBE
>>YOU SHOULD JUST TELL PEOPLE ABOUT THE SITES THAT YOU HAVE AND LET THEM
>>READ FOR THEMSELVES AND MAKE THE DECISON THEMSELVES AND TRY TO BE A
>>LITTLE MORE SUPPORTIVE IN THE FUTURE.
>>
>>>HYSTO is NOT the best option. Plus Char, you are only in the 6 months
>>>phase, see how you are over the next 5 years. i hope for you i am
>>>wrong, we all deserve some relief from endo. i just hope in looking for
>>>that relief you haven't been cheated.
>>>
>>>For you this decision is right, for others...never recommend....the
>>>options are there for us all BUT........
>>>
>>>For anyone making this decision, consider all aspects carefully before
>>>choosing such a radical procedure. There is no going back after a hysto
>>>and there are no guarantees it will be effective. You also have a
>>>million other problems that you will have to face. Know about them
>>>BEFORE making this decision. This is VITAL!!
>>>
>>>Take care guys...choose carefully, after all it your life you are
>>>talking about.
>>>
>>>Pain free wishes
>>>
>>>--
>>>Keri McInerney
>>>
>>>>At Sat, 23 Jun 2001, anonymous wrote:
>>>>>
>>>>>I have a copy of my U/S. It states
>>>>>
>>>>>Enlarged uterus 9.8 x 3.8 x 5.5 cm.
>>>>>edometrial stripe 6 cm
>>>>>evidence of uterine mass (what is that??)
>>>>>
>>>>>large septated cystic mass related to the left adnexa (please explian)
>>>>>mass measures 7.7 X 6.8 cm most likely related to ovary
>>>>>
>>>>>also states "do not see normal appearing ovarian tissue on Left.
>>>>>
>>>>>Right ovary may contain a couple tiny follicles.
>>>>>
>>>>>WHAT IS A ADNEXAL CYSTIC MASS. How big is 7.7 x 6.8 cm ??????
>>>>>
>>>>>I had a Lapascopy done approx. a year ago. The doctor said. I have a
>>>>>fibriod 2 cm in back of my uterus and she drained a cyst the size of a
>>>>>Lemon.. Im not sure L or R side. She also at that time said I had RT &
>>>>>Lft hydrosalpine (tubes?)
>>>>>
>>>>>She is recommending a full hysterectomy. Im 30 and had my tubes tide.
>>>>>With all considered is this my best option??
>>>>
>>>>Hello..I am sorry that I don't know what all that means..but in my
>>>>opinion if your dr is recommending that you have a full hysterectomy
>>>>then i say you should have one. I myself had one 6 months ago for
>>>>endo.. I had it on both my ovaries and had to have them both removed
>>>>along with my uterus and just about all my female organs. I do not
>>>>regret this one bit.. I have not had any pain that i had before from
>>>>the endo and i believe my Dr when he told me it won't come back. Now i
>>>>do know that some women on the forum believe that it will come back
>>>>after having a hysterectomy I myself chose to do the research on the
>>>>internet and after having numorous talks with my gyn and family dr and
>>>>years of pain i chose to have it. I am however having alitte problem
>>>>with HRT (hormone replacement therapy) but once i get the dose and the
>>>>right kind of hormone right i will be fine.. I hope you do lots of
>>>>research on this and make the right decision for you. If you need to
>>>>talk or have any question please feel free to email me privatly at
>>>>charlamb@hotmail.com or on the forum.
>>>>
>>>>--
>>>>Char :o)
>>>>>
>>>>>Thanks for all your help!!!!
>>>>
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