ENDO Messages for June, 2001: Re: Ann Marie/Please read Ann Marie!!!!!!

Re: Ann Marie/Please read Ann Marie!!!!!!

From: Becca (anonymous@obgyn.net)
Thu Jun 21 17:02:35 2001

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In reply to: Ann-Marie: "post hysterectomy/ continued problems looking for right direction to answers"

Hi Ann Marie,

I'm Becca,(age of partial 30yrs) I had a partial in Sept of 99' and have just completed the process with ovaries in May 01'. Well i can relate to your problem although i don't have many answers. Seems after the partial i have aquired allergies and sinus problems (yes from surgery not sure why but its true). I also was sent to physical therapy for a few months after the first surgery come to find out some of us can handle surgery but it tramatizes others of us (thats what it did to me). My body was not strong enough, i also have sciatic nerve problems since the partial (no one wants to say the dr. nicked anything but i'll always believe he did). Well back to the physical therapy i had what is called myafascia release all on the legs, back, hips (everything below the waist). They did this release on my diaphram also it helped so much with the breathing (my husband learned how to do all of this from the PT and they approved me for a theracane all for my use at home they saved me for sure). I'd really like to speak with you more as some of what you have i really think this will help you, can't hurt to try right.The no energy i have had since the last surgery also. Please feel free to contact me at mgraham@telepak.net

I look forward to hearing from you and take care and hang in there. I can attest to the fact that it can get better.

Take care, Becca >
>I am 33 and have had complete and total hystercomy since the age of 23.
>I have had continued problems with pain (cramping) and breathing
>disorders that no-one can seem to figure out.
>My first thought was it could be implants of endometrial material that
>were missed and that a typical phyiscian that is unsure of endometriois
>may not pick this up.
>I recently had many tests.. including pulmenary function test, stress
>test, and a few various tests. All the doctors say well I think this
>test or that test should be done. ... Well, but this is okay and that
>is okay. But I continue to feel drawn, tired, and sore with difficulty
>breathing. I am becoming more and more a very shallow breather. During
>excersice .. ie. yard work, walking, swimming, I become faint and gasp
>for air, and have side pains running down.
>I wondered if there was a study clinic that deals with endometriois and
>they may be able to pin point if that is what it is?
>Any sugestions???
>My current obgyn doctor says that it is unlikely that you would still
>have endo.
>The original doctor that did the hyst. has a different opionion of that.
>He is getting on with his years and I would like to get fresh eyes with
>new techonoly, but I am having difficulty finding that person at this
>point.
>I am sure that there are alot of us like this out there, but how do we
>get were we need to go.. without banging our heads against the wall?? I
>went to the doctor site.. but I didn't find what I thought I would.
>Help!!!
>Ann-Marie

Next message: Becca: "Re: Samantha"
Previous message: Becca: "Re: Kristy"
In reply to: Ann-Marie: "post hysterectomy/ continued problems looking for right direction to answers"

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