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Re: Wait on your Hysterectomies, please!!!

From: anonymous@obgyn.net
Thu May 24 21:21:45 2001


Hello Everyone!

I just want to reiterate...that a hysterectomy is a last resort for women who have tried everything. This should not be an option for a female who just found out she has endometriosis, especially at a young age. As you can see, in these stories that women have posted about their hysterectomies...the women have usually suffered for years and years before coming to this conclusion that a hysterectomy is crucial. I write this only because doctors for a while, and some still do, will over- prescribe hysterectomies as a way out. This was something reported publicly in the news about 5 to 9 years back.

Another bit of information for women that feel that estrogen is only produced while your uterus and ovaries are in their bodies or by hormone replacement....there is evidence of "estrogen like" or estrogen mimicking chemicals that can trigger the onset of more endo even after a hysterectomy. So, even after a hysterectomy....total detoxification is still suggested. This means that all women should be watchful of their surroundings, including living environment and nutritional intake, so as to not jeopardize their endocrine and immune systems. This should be a continued practice among all endo women infinitely.

As for everyone being different, I agree everyone is different and treatments are different for everyone, but I am against the marketing and glorification of hysterectomies as a way out from endo. It is not a solution, because if it were, our forum webpage would be one page saying --- have endo? have a hyst! the end. We would have closed up shop here at the forum a long time ago.

I met with over 60 endo women at one time during a meeting and seriously could not find one woman that was willing to sacrifice wholeheartedly when it came to diet. Diet is very important when it comes to endo. Literally, not one woman was willing to give up her usual foods, some being those that triggered pain. The stories of funny flatulent occurrences were overwhelming and extremely common, but not one woman was either willing to put 2 and 2 together or wanted to admit it. Afterall, looking at ingredients in our foods is very difficult. (Info regarding dairy free foods that some of you may not have known....some dairy free foods contain chemicals that will still trigger the symptoms of dairy allergies.)

It is believed that endo is more complex and serious than just lesions inside causing pain. If we complicate the disease by not allowing our bodies to rest...then our bodies cannot fight or reduce the pain as much as they can, on their own.

One example...I've literally subjected myself to experimentation with my doctor since 1999. I signed a release as to the effect on my body and we will soon be asking for more women to try some of the experiments also. My pain had completely left until I was subjected to certain chemicals. The endo was triggered over and over again with specific hormones. Some being chemical and some being foods. In my case, I am highly allergic to many foods in my old diet, which apparently is common with endo women, but many women don't know it and continue to put allergens into their bodies. When you inhibit your immune system by intake of allergens..the possibility that your endo will feel worse, is heightened. Also... Check your city. Your city may have chemicals around that cause your endo to feel worse. This is one theory that brings up the issue of research in regions. While some women are fine after treatments, some live in other regions that get a different result.

Yes, everyone may be different and treatments may be different for everyone, but not all will get the same result if you haven't tried almost everything. In some cases, strictly eating different foods or even moving out of town or state. If this is not something you have tried, you haven't tried everything. This time...just my 10 cents.

In a message dated 5/23/01 6:42:55 AM Pacific Daylight Time, anonymous@medispecialty.com writes:

> I just wanted to comment to you Joyce AMEN!!!! All of our situations are
> very different, and to choose a hyster is on a situation by situation
> basis, I too, at the age of 32 have had the hyster after 12 yrs of endo
> and am so RELIVED.... I am now pain free, I do understand that if my
> doctor has missed any underlying enod, that when I start my HRT (have
> delayed it for certain reasons) there is a possiblity of it reoccuring,
> but that is a chance I am willing to take to be able to live my life
> normally again with my husband and two children.




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