Re: Does any one know about cysts in the cul de sac? (Sandy)
From: Andrea (anonymous@obgyn.net)
Wed May 2 18:02:50 2001
I had surgery with Dr. Koh on January 31st 2001 if anyone seeing him has any
questions about him and the office feel free to e-mail me... I feel the best
I have in 3 years and 12 doctors later!
Andrea
andrea@triver.com
>----- Original Message -----
From: Yen <anonymous@obgyn.net>
To: Multiple recipients of list ENDO <anonymous@obgyn.net>
Sent: Tuesday, May 01, 2001 1:05 AM
Subject: Re: Does any one know about cysts in the cul de sac? (Sandy)
> Dear Sandy,
> Sorry I missed your post. Yes, I have the nagging sacral/tailbone pain
> -- hate it. As a matter of fact, I'm feeling a bit of it right now as I
> type this post -- its not real bad at the moment, but I do feel it.
> As for answers, I have none. Maybe an endo expert would be able to
> figure it out?
> You're seeing Dr. Koh, right? He has a good reputation. (Lightbulb
> moment LOL) When you have your consult with Dr. Koh, ask him about it!
> And then if you would please be so kind, could you post to me what he
> says about this tailbone/sacral pain?
>
> Thanks Sandy :),
> Yen
>
> At Thu, 12 Apr 2001, Sandy wrote:
> >
> >I have pain in this area also, and I have my operative report from my
> >surgery on 3/2/01. They removed my left ovary and tube, which had a
> >large endometrioma that had engulfed them. Then it says, in exact
> >wording, "Her posterior cul-de-sac was noted to be filled with
> >hemosiderin deposits and a large amount of endometriosis including
> >the rectosigmoid colon." I'm seeing an endo-specialist in Mil., WI
> >in 2 weeks, since my surgeon didn't feel comfortable taking this
> >out at the time. She said it was in too delicate of an area. I
> >never had pain in this area before my operation, except for maybe
> >a day of irritable bowel problems on the first day of my period.
> >Now, it's like the stuff is growing in there by leaps and bounds.
> >My pain sometimes feels sharp and sudden in the area of the bowel,
> >and other times similar to cramps that I would normally feel in
> >my frontal-pelvic area, except that I'm feeling them back there
> >now. I've been on the toilet this last month, I swear, more than
> >I've been in the last year. It will feel like I have to have a
> >massive movement, and I'll sit there in pain from the cramps, and
> >all that comes out is a tiny bit. Then other times, I'll have to
> >"run" to the bathroom, and barely make it, and pretty much explode.
> >With either, it really never feels like I'm done going. I take
> >2-3 Advil before I go to bed, and that usually lets me sleep for
> >5-6 hours. If the pain gets really bad, I still have about 8
> >percocets left. (I don't take them unless it's really bad) I
> >hope this information is of some help to you. I know my story
> >probably doesn't sound too encouraging, but I'm hoping the
> >specialist can get the rest of this junk out of me, so I can
> >go back to feeling "normal" back there. Take care, Sandy
> >
> >At Sat, 7 Apr 2001, Yen wrote:
> >>
> >>Hi Belinda, Marcia, and All,
> >>
> >>Belinda, so you have the tailbone pain too?!!:-( -- hurts terribly,
> >>doesn't it -- Yes, I also have this problem. I am not a dr, but I can
> >>tell what I think (doesn't mean its correct though LOL) -- I am
> >>convinced, although my endo dr isn't LOL, that it is endo, IN FACT, I
am
> >>SURE of it. When I had my endo surgery a couple of years ago, I had
> >>endo throughout that entire region -- he excised what he saw but I felt
> >>that little spot in the tailbone region subsequent to the surgery --
and
> >>actually, on 2nd look lap, one month later, he looked but didn't see
> >>anything but my healed lining. I think that perhaps the endo was
either
> >>deeper in that region than realized (and subsequent to surgery, was now
> >>beneath freshly healed unblemished peritoneum ((?sp.)) and perhaps not
> >>at all visible to the doc.
> >>My tailbone pain is absolutely amazing LOL -- whenever I consume
> >>something estrogenic/endo irritant, it flares. Thats how I figured out
> >>the evening primrose oil wasn't good for me LOL -- one or two years
ago,
> >>whenever it was that I tried the primrose oil, my tailbone spot would
> >>flare. I wrote, on the Women's Health Forum (one of our sister
forums),
> >>to Dr. Marchbein and asked whether it was estrogenic -- I just didn't
> >>understand why I was getting a flare from the primrose oil and yet,
many
> >>endo websites contended that evening primrose oil is good for
> >>endo!!!!(thus my attempt to use the primrose oil). Well, Dr Marchbein
> >>said, yes, the evening primrose oil is estrogenic!
> >>And so it goes ....
> >>
> >>Now what to do to help alleviate the pain or flare -- avoid foods/items
> >>which bring on a flare -- of course, that doesn't always work and it
> >>doesn't work for everyone -- but it does work, for the most part, for
> >>me.
> >>
> >>Belinda, can you describe your tailbone pain? I have two or three types
> >>by the tailbone: 1) the burning sensation, 2) the whole region aches --
> >>sometimes with rectal pain involvement, and 3) the worst one which I
> >>experience often when eating/drinking the wrong thing -- the squeezing
> >>sensation of the tailbone. It feels as if a metal clasp is
> >>clamping/squeezing the tailbone region -- ach, it HURTS!
> >>
> >>So does any of this sound familiar to you?
> >>
> >>Pain-free wishes to you,
> >>Yen
> >>
> >>At Fri, 6 Apr 2001, Marcia wrote:
> >>>
> >>>Hi Belinda:
> >>>
> >>>I don't have this myself, but Yen posted this very same thing a couple
> >>>weeks, asking if anyone felt pain in their tailbone...
> >>>
> >>>Yen, did you see this? You two should talk about it.
> >>>
> >>>Pain-free wishes to you,
> >>>
> >>>--
> >>>Marcia
> >>>
> >>>At Fri, 6 Apr 2001, anonymous@obgyn.net wrote:
> >>>>
> >>>>help help help!!!!! I have a very severe pain in my lower region of
the
> >>>>tailbone, but not affecting the bone itself. Its like the pain is
> inside of
> >>>>me but pushing on my tailbone. I have no female organs and have had
many
> >>>>surgeries in the pelvic area. I am desperate for help. Please if
> someone
> >>>>gets this e-mail please try to give me some answers.
> >>>>
> >>>> Thank you
> >>>>
> >>>> Belinda
> >>>
>
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