Re: Angel check-in New Zealanders and Support Groups Around the World
From: B. (anonymous@obgyn.net)
Tue Apr 10 23:38:05 2001
Hi Lisa,
If you are looking for support in New Zealand here is what I have on my
website under New Zealand
New Zealand Endometriosis Foundation Inc.
PO Box 1683
Palmerston North 5301
New Zealand
Tel/Fax:(6)359-2613
e-mail: anonymous@obgyn.net
http://www.nzendo.co.nz
I hope this helps all the New Zealanders out.
Best Wishes,
Belle
P.S
For anyone else looking for a support group in your country or area go to
http://www.endometriosis.org/html/australasia.html and then on the left hand
side it has an area to select, like the Internet, Australasia and Europe
and North America and we have South Africa under Europe but I am planing on
changing that. Just thought I would let you all know so you can check it
out. Pain Free Wishes to ALL.
>----- Original Message -----
From: Lisa <anonymous@obgyn.net>
To: Multiple recipients of list ENDO <anonymous@obgyn.net>
Sent: Wednesday, April 11, 2001 12:41 PM
Subject: Re: Angel check-in
Hi Robyn, my name is Lisa and I have recently been diagnosed with endo.
I also live in Wellington and was wondering whether you knew of any sort
of contact groups in our area. I am extremely lucky in that my symptoms
do not seem to be anywhere near as bad as some of the wonderful ladies
who contribute to this forum but I am still rather nervous about the
whole situation! My specialist is Peter Dukes and he has put me onto a
long term treatment of Provera (possibly as long as 18-24 months without
breaking it) and I have been trying to find someone else who may have
been treated this way. I just started the tablets on Monday night
(along with what will probably be my last period for some time which
hopefully also means the decline of my symptoms and time off work) so am
not aware of any noticeable side effects as yet. Even so, it would be
great to be able to communicate with someone else who has been there...
I hope today has been a good day for you and all the other "Angels"!
At Wed, 11 Apr 2001, Robyn wrote:
>
>Morning, endo-angels!
>
>The roll-call begins in NZ, first land to see the sun!
>
>I just read the last 3 lists - you all post when I'm
>(attempting to be) asleep! Wow, there's a lot going on
>out there. I was praying for all of you on my way to
>the train this morning - it's a beautiful Wellington
>morning, still, clear and warm (even though it should
>be autumn!), and I'm hoping that your days will be
>equally lovely. I always find it's easier to cope on a
>lovely day!
>
>MARCIA: I know what you mean about this forum being
>your encouragement. It's so easy to get down and feel
>negative when our bodies are feeling grotty - the mind
>wants to join in! But I'm glad you're finding
>strength. I haven't heard of Healing Touch - being a
>Christian I prefer just plain ole' prayer for healing
>and strength! - but I firmly believe that having
>someone with you praying for you before surgery etc.
>can help enormously. When I had my lap I asked the
>hospital chaplain to come and pray with me just as I
>went into theatre and it helped heaps. Calm is all
>good....
>
>LAUREN: Is this the one about all the angels in one
>basket?! Be thinking of (& praying for) you on your
>surgery day too. Man, your life sounds busy! I've
>found that with the endo I have to be really careful
>about how many commitments I shove into my life. I'm
>one of those "always doing" people, but have found
>that I can't so much now. Thanks too for your openness
>about sex - I've been wondering about some of that to.
>Does anyone else find their libido is sneaking off
>somewhere else?!
>
>I can't remember who it was that was talking about
>fatigue - well, we all get it. There are days (like
>today) that when the alarm shrills in my ear that I
>can't stand up when I try to crawl out of bed; when I
>feel like a newborn kitten - all weak and wobbly!
>Those are the days when my head is stuffed with
>cottonwool and I feel vague and very "somewhere out
>there", and concentration is just not a happening
>thing. Sometimes those days aren't that sore - just
>tiring! I reckon it's a lot to do with the fact that
>fighting pain takes energy, and we have limited
>amounts of that. Also, if we're not sleeping well,
>we're tired as well as fatigued.
>
>Well, on the Robyn front....
>
>Grotty night. I managed to go to dance practice (which
>was good as we have a big performance on Easter Sunday
>morning), but came home feeling pretty zonked and
>still nauseous (dammit!). Unfortunately, the pain
>decided to visit.... in fact, I woke up screaming
>(poor hubby got a terrible shock!) and the little time
>I did sleep was haunted by horrible dreams. I'm now
>attempting to get an appointment with my specialist,
>and I'm going to give in and ask her about things to
>help me sleep. As I said to hubby this morning, all I
>want to do is sleep through the night (return to
>babyville....)
>
>Not too bad so far this morning - due to 1000mg of
>Panadeine at 5am and 550mg of Synflex at 7.30! The
>only problem is the codeine does lovely things to the
>woolly feeling in my head! But - I'm on the hunt for
>stronger painkillers... I think I'll camp out in the
>ER tonight on the prowl for morphine (my favourite
>"recreational" drug! *grin*).
>
>Anyway, will keep you posted. Love you all lots,
>
>Robyn P
--
Lisa
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