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Angel check-in

From: Robyn Parkin (anonymous@obgyn.net)
Tue Apr 10 16:30:25 2001


Morning, endo-angels!

The roll-call begins in NZ, first land to see the sun!

I just read the last 3 lists - you all post when I'm (attempting to be) asleep! Wow, there's a lot going on out there. I was praying for all of you on my way to the train this morning - it's a beautiful Wellington morning, still, clear and warm (even though it should be autumn!), and I'm hoping that your days will be equally lovely. I always find it's easier to cope on a lovely day!

MARCIA: I know what you mean about this forum being your encouragement. It's so easy to get down and feel negative when our bodies are feeling grotty - the mind wants to join in! But I'm glad you're finding strength. I haven't heard of Healing Touch - being a Christian I prefer just plain ole' prayer for healing and strength! - but I firmly believe that having someone with you praying for you before surgery etc. can help enormously. When I had my lap I asked the hospital chaplain to come and pray with me just as I went into theatre and it helped heaps. Calm is all good....

LAUREN: Is this the one about all the angels in one basket?! Be thinking of (& praying for) you on your surgery day too. Man, your life sounds busy! I've found that with the endo I have to be really careful about how many commitments I shove into my life. I'm one of those "always doing" people, but have found that I can't so much now. Thanks too for your openness about sex - I've been wondering about some of that to. Does anyone else find their libido is sneaking off somewhere else?!

I can't remember who it was that was talking about fatigue - well, we all get it. There are days (like today) that when the alarm shrills in my ear that I can't stand up when I try to crawl out of bed; when I feel like a newborn kitten - all weak and wobbly! Those are the days when my head is stuffed with cottonwool and I feel vague and very "somewhere out there", and concentration is just not a happening thing. Sometimes those days aren't that sore - just tiring! I reckon it's a lot to do with the fact that fighting pain takes energy, and we have limited amounts of that. Also, if we're not sleeping well, we're tired as well as fatigued.

Well, on the Robyn front....

Grotty night. I managed to go to dance practice (which was good as we have a big performance on Easter Sunday morning), but came home feeling pretty zonked and still nauseous (dammit!). Unfortunately, the pain decided to visit.... in fact, I woke up screaming (poor hubby got a terrible shock!) and the little time I did sleep was haunted by horrible dreams. I'm now attempting to get an appointment with my specialist, and I'm going to give in and ask her about things to help me sleep. As I said to hubby this morning, all I want to do is sleep through the night (return to babyville....)

Not too bad so far this morning - due to 1000mg of Panadeine at 5am and 550mg of Synflex at 7.30! The only problem is the codeine does lovely things to the woolly feeling in my head! But - I'm on the hunt for stronger painkillers... I think I'll camp out in the ER tonight on the prowl for morphine (my favourite "recreational" drug! *grin*).

Anyway, will keep you posted. Love you all lots,

Robyn P

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