Re: spasmus nutans
From: aandadrywall (anonymous@obgyn.net)
Tue Apr 10 12:06:32 2001
Dear Carynn,
I believe the condition you are talking about is nystagmus. My husband
also has this. I found some great web sites on it. Please feel free to
email me privately and I would be happy to send you the links.
Hugs, Anita
>----- Original Message -----
From: "Carlynn" <anonymous@obgyn.net>
To: "Multiple recipients of list ENDO" <anonymous@obgyn.net>
Sent: Tuesday, April 10, 2001 12:28 PM
Subject: spasmus nutans
> Someone asked if anyone had heard of Spasmus Nutans - well my son was
> born with it and is now ten - it is now starting to embarrass him mostly
> because of the head "bobbing" that happens - he doesnt even notice it is
> happening - he has the head tilting - to the left - when looking at
> things directly i.e. homework, t.v. etc. but not playing and hanging
> out - he was born with crossed eyes so he was diagonsed rather early
> around 6 months when they started patching his eyes and surgery at one
> and glasses ever since - not for vision but the stigma and shaking of
> his eyes - he has other problems as well with doctors guessing if
> related - delayed speech, and he is classified special ed. because of
> the speech. he is ten years old and embarrass to talk to new people - I
> hope this was helpful - if you have any other questions please let me
> know - i have been dealing with this for 10 years -
>
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