ENDO Messages for March, 2001: Re: Post surgery pain

Re: Post surgery pain

From: Wendi (anonymous@obgyn.net)
Sat Mar 31 11:17:59 2001

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In reply to: anonymous@obgyn.net: "Post surgery pain"

At Sat, 31 Mar 2001, anonymous@obgyn.net wrote: >
>Hi, I had surgery 9 weeks ago and am still in pain. Everyone, including
>my doctor, thinks I should be back to normal by now but I am still in
>pain. I thought maybe the internet may have some helpful information
>and found this site. Perhaps one of you may be able to lead me to
>something helpful.
>
>I had a full hystorectomy (cervix & uterus) in 1993. Recovery was very
>painful (10 weeks). However, I don't feel I ever fully recovered. I
>have been unable to shop without having pain in my right side, back and
>traveling down my legs, especially while in the refrigerated sections of
>the grocery store. I've been treated for arthritis, Fibromyalsia, and
>by a Chiropractor. A little over a year ago I had a pelvic exam and
>ended up in the emergency room 12 hours later with intense pain. At
>that time a vaginal ultrasound revealed a cyst on my right ovary. I was
>treated with pain medication and sent home with instructions to see my
>regular physician, who gave me additional pain medication and advised no
>action as the cyst would go away on its own. (In the meantime, I'm
>still being treated for Rheumatoid Arthritis & Fibromyalsia) Well 10
>weeks ago I woke up to the same pain and thinking it was arthritis, I
>continued to work while taking pain medication. I did this for 4 days
>until I could not walk. I tried to get an appointment with my physician
>but they "could not fit me in for 2 weeks" so I called a Gynocologist
>thinking maybe it was a bad kidney infection. He seemed fairly
>confident that it was endometriosis and recommended a Laparoscopy. He
>advised prior to the proceedure that if it was as he suspected the right
>ovary would need to be removed and if that was revealed he would go
>immediately into surgery to remove it. Four hours later I came out of
>surgery with both ovaries removed, my bladder, bowels and pretty much my
>entire insides lasered because I was infested with endometriosis &
>adhesions. What I don't understand is how could I have that much
>endometriosis after I had a hystorectomy and why am I still hurting 9
>weeks after surgery? (Ironically, my pain in on the left side.) My
>disability insurance wants to know the same thing and have stopped all
>income after the standard hysto 6 week recovery.
>
>I know you ladies are not professionals but sometimes experience is
>better than formal education. Does anyone have any insite or suggested
>resource?
>
>Thanks in advance it has helped just sharing this with others who will
>understand.
>
>RV

Sounds like your having one heck of a time. I'm so sorry to hear that your hurting so badly. I was wondering, do you experience any abdominal pain as well as back and leg pain? I'm asking because I had a hysterectomy and oopherectomy done about 9 weeks ago for Endometriosis and Adenoymosis, and am still in major pain as well. It took me a very long time to make the decision to have one, and as I prayed and prayed in the hospital that this hysterectomy would do the trick, unfortunately it didn't. You did say that they are treating you for Fibromyalgia and Rheumatoid Arthritis, does that mean you are on steriods? And do those help at all? Although I cannot really give you the best advice because I haven't found a cure as well, I can tell you I understand your frustration with this pain. My main complaint to my doctors is severe back pain and miserable pain shooting down in my both legs. A couple of weeks ago I spent 9 days in the hospital for abdominal pain which ended up being an abscess and I told them while you got me here I want to be tested for everything, including all the auto-immune disorders. They said they would and come to find out they never did. I guess to doctors in the hospital it's O.K. to have back and leg pain everyday for the rest of your life, but it's not O.K. to have abdominal pain. I know as soon as my abdominal pain started easing that they didn't care anymore about the other stuff. As I lyed there reading my Merck Manual, I just prayed and prayed that I that would be the last time I would have to go to the hospital. Unfortunately, it didn't work. In the mean time, I got a new primary physician who is a total sweetheart, whose so fed up with everyone that he said you know what? We're just going to start all over again. He's getting me a new gynecologist, rheumatologist, neurologist and gastroenterologist. Although I am not a doctor and cannot give you medical advice I can advice you to try and hang in there. I know how frustrating it is to have so much pain and have no idea where it's coming from. Stay on top of it, and boy I sure hope you feel better soon. I really do. My thoughts and prayers will be with you, Sincerely, Wendi Farbstein

Next message: Kristene: "Re: BLADDER/endo"
Previous message: Melinda: "prayers please"
In reply to: anonymous@obgyn.net: "Post surgery pain"

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