Re: Newcomer - could I have endo? (Long post - sorry)
From: Marcia (anonymous@obgyn.net)
Fri Mar 30 23:07:51 2001
Hi Carri:
I agree with Emily, and think you should try to see an endo
specialist...if you would like, on Monday I can send you Belle's dr.
list, but I would need your e-mail.
I know what you mean about shockers, although I have never thought of
describing it that way. Mine is more like a stabbing pain that radiates
backwards to my hip when it is really bad, and at times it shoots down
my right leg...I am feeling like it is my right ovary that is causing
some of this pain, although I have had endo in that whole area too.
Well, you have come to the right place for support, I can tell you that.
And you do need to have a lap done, to actually see what is going on
inside there...endo can't be seen by ultrasound or MRI.
I hope this helps a little, you are not alone, by any means,
Pain-free wishes to you,
--
Marcia
At Fri, 30 Mar 2001, carri wrote:
>
>Hello Ladies,
>
>I'm usually nervous about posting to web sites but you all seem so
>supportive and sincere that I'm going to take the leap.
>
>I have been dealing with a frustrating situation for about two years. It
>began when I started having episodes of mild pain. Always in my right
>side and the onset was always at night. This continued to get worse so
>that I started to keep records. The pain would come about every 5 or 6
>weeks. It always started at night and lasted about 6 ot 8 hours, always
>in my right side. It felt like a hot poker was going through my body
>front to back right at my waist.
>
>The situation has become progressively worse. The episodes are still
>spaced 5 to 6 weeks apart (although the last was only 3 weeks). The
>pain has now become crippling. Darvocet, Vicoden (left over from knee
>surgery) hardly work at all. The pain goes from my back to my front,
>radiates down into my groin and at its worst shoots down my hip and
>thigh. I can now have dull pain for a week with a second, smaller
>attack several days later (I call them after shocks). I am now left
>weak and ill for at least a week afterwards. I always have a dull ache
>in my back.
>
>I've had many tests: pelvic ultrasound, 2 CAT scans, barium enema. ALL
>NEGATIVE.
>
>In terms of medical history: I'm 45 with 3 children. As a teenager I
>had horrible cramps - only able to control with narcotic pain meds.
>After having first child (18 yrs ago) my cramps really settled down. Now
>my periods are painful but manageable. I've been treated once for
>endometrial hyperplasia. Here's where some of you will yell at me (and
>I deserve it) but I'm a smoker so can't take birth control which is what
>my very unsympathetic OB/GYN recommends.
>
>I've just switched to a new internist hoping he might be of help. To be
>honest it seems like all the doctors I've been working with had to take
>a test to make sure they had NO SENSE OF HUMOR before they were allowed
>to go into practice. ER doc said I should just go to pain management
>but my husband says no way something that hurts this bad can't be right
>and we have to find out what's wrong.
>
>To all of you who suffer so much more than me I'm so very sorry for your
>pain. You've helped me to feel grateful. At least I have some good
>weeks spaced between the bad.
>
>Has anyone experienced symptoms like mine and could you give me advice?
>
>Thanks
>
>--
>Carri
>
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