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Re: Difficult Decisions... How do you know what to choose?

From: Marcia (anonymous@obgyn.net)
Fri Mar 30 23:00:10 2001


Hi Michelle:

Well, you are going in the right direction, by reading as much as you can about your options. We need to know as much as we can to make intelligent decisions. Only with information, and experiences from other women, like here in this forum, and however many ways you can get more, more, more knowledge...that is how you get to the point of knowing what to do.

How old are you, and how long have you had endo? For most of us with chronic and acute endo, surgery is really the only lasting solution, but you need an endo specialist to help you...a hysterectomy is not the only solution...if you would like, I can send you Belle's dr. list on Monday (I don't have it at home), there are a lot of websites to help you gather more knowledge.

In the end, you have to decide for yourself, listen to your body and what it is telling you, what the pain is telling you...as you probably know, any medical therapy such as Lupron, Danocrine, or Depo-Provera, are only bandaids that shrink the tissue, and lessen our symptoms...they cannot cure it...and we certainly can't be on these things for the rest of our reproductive lives.

It takes time to learn, and it has taken me a long 5 years to know as much as I Know now, and I would have made different choices, had I known...but if I can help in any way to help you with your choices and decisions, I will do my best.

Pain-free wishes to you,

--
Marcia

At Fri, 30 Mar 2001, Michelle wrote: > >I have been reading anything I can get my hands on to help me in the >decision of which treatment is best???? Lupron makes me crazy, I'm >afraid of taking Danocrine, I'm too young for a hysterectomy, and the >birth control pills aren't stopping my pain. A presacral neurectomy has >been recommended by one doctor. How can a "lay person" like me learn >enough to make the right decisions?? I have read journal articles about >PSN over and over just to make sure I understand the possible risks and >outcomes. I'm torn about what to do because of the controversies and >differences of opinions between doctors. How do you know who to >trust... who to listen to for guidance? How do you make these >decisions?? Please help!




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