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Re: Newcomer - could I have endo? (Long post - sorry)
From: Heather (anonymous@obgyn.net)
Fri Mar 30 22:14:38 2001
Carrie,
I know what your husband means whe he says that. My boyfriend says the same thing...if I'm in pain then something must be wrong. But unfortuanlty they still don't know why.
I hope you find help and welcome to the forum..
Heather Blue
>From: anonymous@obgyn.net (carri)
>Reply-To: anonymous@obgyn.net
>To: Multiple recipients of list ENDO
>Subject: Newcomer - could I have endo? (Long post - sorry)
>Date: Fri, 30 Mar 2001 18:07:26 -0600
>
>Hello Ladies,
>
>I'm usually nervous about posting to web sites but you all seem so
>supportive and sincere that I'm going to take the leap.
>
>I have been dealing with a frustrating situation for about two years. It
>began when I started having episodes of mild pain. Always in my right
>side and the onset was always at night. This continued to get worse so
>that I started to keep records. The pain would come about every 5 or 6
>weeks. It always started at night and lasted about 6 ot 8 hours, always
>in my right side. It felt like a hot poker was going through my body
>front to back right at my waist.
>
>The situation has become progressively worse. The episodes are still
>spaced 5 to 6 weeks apart (although the last was only 3 weeks). The
>pain has now become crippling. Darvocet, Vicoden (left over from knee
>surgery) hardly work at all. The pain goes from my back to my front,
>radiates down into my groin and at its worst shoots down my hip and
>thigh. I can now have dull pain for a week with a second, smaller
>attack several days later (I call them after shocks). I am now left
>weak and ill for at least a week afterwards. I always have a dull ache
>in my back.
>
>I've had many tests: pelvic ultrasound, 2 CAT scans, barium enema. ALL
>NEGATIVE.
>
>In terms of medical history: I'm 45 with 3 children. As a teenager I
>had horrible cramps - only able to control with narcotic pain meds.
>After having first child (18 yrs ago) my cramps really settled down. Now
>my periods are painful but manageable. I've been treated once for
>endometrial hyperplasia. Here's where some of you will yell at me (and
>I deserve it) but I'm a smoker so can't take birth control which is what
>my very unsympathetic OB/GYN recommends.
>
>I've just switched to a new internist hoping he might be of help. To be
>honest it seems like all the doctors I've been working with had to take
>a test to make sure they had NO SENSE OF HUMOR before they were allowed
>to go into practice. ER doc said I should just go to pain management
>but my husband says no way something that hurts this bad can't be right
>and we have to find out what's wrong.
>
>To all of you who suffer so much more than me I'm so very sorry for your
>pain. You've helped me to feel grateful. At least I have some good
>weeks spaced between the bad.
>
>Has anyone experienced symptoms like mine and could you give me advice?
>
>Thanks
>
>--
>Carri
>
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