ENDO Messages for March, 2001: Re: 20 Days till hysterectomy and confused if it the right option for me

Re: 20 Days till hysterectomy and confused if it the right option for me

From: molly (anonymous@obgyn.net)
Thu Mar 15 23:28:07 2001

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At Tue, 13 Mar 2001, lynn wrote: >
>At Tue, 13 Mar 2001, dayshope wrote:
>>
>>I am 30yrs old. I have 2 kids. I have been married for 10yrs. I have
>>been living with endometriosis for the past 8yrs. I have had 3 laps. I
>>have taken lupron 2x,depo prevero,and various birth control pills. I am
>>still in unbearable pain. i am scheduled to have a hyst on 4-3-01. I
>>was fine with the idea until i researched endo and found out that even
>>with a total hyst the endo can reoccur and in fact it comes back in 63%
>>of women. What i don't understand is how is that possible? please
>>help!!!!!
>I JUST HAD A HYSTERECTOMY JANUARY 15 2001. I FEEL BETTER THAN I EVER
>HAVE. I HAVE SUFFERED FROM ENDOMETRIOSIS FOR9 YEARS. I HAVE ONE CHILD
>AND SO DESPERATLY WANTED ANOTHER. AFTER HAVING MY DAUGHTER AND LOSING A
>TWIN WITH HER AND THEN GETTING PREGNANT AND HAVING A MISCARRIAGE. WE
>KEPT TRYING AND AT AN ULTRASOUND I WAS DIAGNOSED WITH POSSIBLE ENDO.
>UNTIL THAT TIME I HAD NEVER HEARD OF IT AND EVEN THOUGH I HAD SEVERE
>PAIN DOCS ALWAYS TOLD ME IT WAS NOTHING, I THEN WAS BEING TOLD IT WAS
>POSSIBLY WHAT WAS WRONG AND THEN THEY STARTED SHOVING MEDS AT ME I WAS
>ON DEPOT LUPRON, DEPOT PROVERA, BIRTH CONTROL PILLS. I THEN DECIDED TO
>GO TO A SPECIALIST WHO DID A LAP AND TOLD ME I HAD STAGE 3 ENDO. HE
>THEN GAVE MORE MEDS BUT TOLD ME I DID NOT HAVE A GOOD CHANCE TO HAVE A
>BABY SO I TOOK THE MEDS FOR AWHILE AND I JUST KEPT GETTING WORSE UNTIL I
>COULD NOT STAND IT AND THE ONLY OTHER CHOICE I HAD WAS THE HYSTERECTOMY.

>KNOWING THAT I COULD NOT SPEND THE REST OF MY LIFE THIS WAY I DECIDED

Hi Ladies.....Maybe I can explain why sometimes some women still have pain following hysterectomy. I am 35 years old and have had 8 surgeries related to endo/adhesional disease, including complete hysterectomy and 3 bowel resections. I am an internet research fanatic and have come across various factors. First off the best way to prevent this from happening is to receive surgery only from an endo specialist. This is usually only a GYN not OB, who also sometimes specializes in infertility. Many times endo returns after hyst. because the surgeon was unable to remove every microscopic bit of endo....an endo specialist is better trained to identify all the endo and also has the appropriate skills to remove it properly. Any endo left will multiply and spread. Secondly, estrogen feeds endo. and gives it the energy to grow and spread. Younger endo women have to take estrogen following hyst. thereby possibly fueling the endo. and increasing the liklihood of regrowth. Also, there has been some very recent research that has led some scientists to believe that endo. may in fact have the ability to produce small amounts of estrogen, in addition our ovaries are not the only glands in the body to produce estrogen . Endo does not need neccesarily large amounts of estrogen to grow. A little can go a long way in some women, for what ever reason, that are predisposed. Thirdly, many women with severe endo. are left with a horrible byproduct of endo even after it is removed and that is ADHESIONS. Adhesions develope as a part of the bodies natural healing process, similar to scar tissue, if it makes it easier to understand. Unfortunately they effect you the same way in regards to pain, and no there really is no cure for severe adhesions other than repeated surgeries which just cause more adhesions. Again your best bet is to see a surgeon who only deals with gals like us that knows the techniques and products available that discourage adhesion formation. I hope this post helps you to understand. Hysterectomy is not a cure all, nor can anyone give you a 100% gaurantee. It is the most final option and it also creates a whole different list of things that need to be dealt with in regards to menopausal symptoms and HRT. I suggest you do some serious research on the web and also a little soul searching too before deciding. Once you do it you can not look back...so you really need to be confident and informed. For me hysterectomy definitely eased my pain level and I do not regret the decision. Every woman is different. Good Luck and God Bless, Molly >GO AHEAD WITH IT AND LET ME TELL YOU IT WAS THE HARDEST THING I EVER HAD
>TO DO WANTING A BABY AS BAD AS I DID.WHEN MY SURGERY WAS OVER AND THE
>PATHOLOGIST REPORTS CAME BACK THE ENDO HAD STARTED TURNING TO CANCER.GOD
>HAS AWAY OF WORKING THINGS OUT FOR THE BEST, JUST KEEP THAT IN MIND AND
>SAY A LITTLE PRAYER.
>
>--
>LYNN BEVERAGE
>

--
mollyanne

Next message: B.: "Re: Endo Chat Room is back Open"
Previous message: wanda: "Re: no subject received Thu, 15 Mar 2001 08:34:08 -0600"
In reply to: lynn: "Re: 20 Days till hysterectomy and confused if it the right option for me"
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Reply: Wendi: "Molly and Hysterectomy"

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