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Re: oophorectomy and hormonesFrom: Kathy (anonymous@obgyn.net)Thu Mar 8 14:03:06 2001
At Wed, 7 Mar 2001, suzanne wrote: > >I was 39 years old when I had my tah/bso. My diagnosis was ovarian >tumors. After the tah/bso I found out I had severe invasive endo, >adenomyosis and adhesions. My doctor told me he got all the endo and >put me on prempro. Within 2 months my pain came back with a vengence, >including terrible back, leg & pelvic pain. I discovered then that >hysterectomy is not a cure for endo and that I more than likely still >had endo in my pelvis. I went off hrt which plunged me into a terrible >surgical menopause. > >8 months after my hysterectomy, I had lap with Dr. Redwine, an endo >specialist. He found a great deal of endo in my pelvis - on my bowels >in 3 areas, 1 requiring a bowel resection, on my bladder, ureters, >cul-de-sac, broad, utersacral & round ligaments were also excised and my >entire peritoneum was invaded by endo. After this surgery, I was >finally endo free and resumed hrt. I am on bio-natural estrogen and >compounded testosterone. > >I felt totally betrayed by the ob/gyn that performed my hysterectomy. He >lied to me and I will never forget that. But when I had lost all faith >in the medical community, in stepped Dr. Redwine and gave me my life >back. If your doctor is not familiar with the many different >appearances of endo, or lacks the surgical skills to remove endo from >delicate organs such as bowels & bladder, you may still have some endo >in your pelvis. > >Endo loves estrogen and by adding estrogen while still having endo in me >it was like he was putting out fire with gasoline. Endo also creates >it's own estrogen - aromatase, so even if you don't have ovaries the >endo can still feed itself. > >I highly recommend the book Endometriosis Sourcebook by Mary Lou >Ballweg. It contains accurate information regarding the modern concepts >of endo, including endo persisting after hysterectomy. Also Dr. >Redwine's website is located at >http://www.scmc.org/endo.html Since having my hysterectomy and lap >surgery with endo specialist, I have met many, many women who still >suffer with endo after tah/bso. > >At Thu, 1 Mar 2001, anonymous wrote: >> >>I am 50 yrs. old and was diagnosed with 2 suspicious ovarian cysts. An >>oophorectomy was done laparoscopically and stage IV endometriosis was >>found. Some implants were removed but not all. I have no history of >>pain except an acute attack in Dec. which lead to the discovery of my >>cysts. I have had some achiness in my lower back on occasion. I was >>given Prempro after my surgery. I am wondering if anyone else has had a >>similar case and what happened on HRT. I also am concerned about future >>bowel and bladder problems... Thank you so much for your information. I see my surgeon(gyn/oncologist) on Monday for the first time since the operation. I'm hoping to get referred to a gynecologist that specializes in endo and hormones. I had no idea that I had endo until the surgery and was afraid that it was ovarian cancer, otherwise I would have proceeded differently.
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