ENDO Messages for March, 2001: Re: oophorectomy and hormones

Re: oophorectomy and hormones

From: Wendi (anonymous@obgyn.net)
Wed Mar 7 21:35:26 2001

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At Wed, 7 Mar 2001, suzanne wrote: >
>I was 39 years old when I had my tah/bso. My diagnosis was ovarian
>tumors. After the tah/bso I found out I had severe invasive endo,
>adenomyosis and adhesions. My doctor told me he got all the endo and
>put me on prempro. Within 2 months my pain came back with a vengence,
>including terrible back, leg & pelvic pain. I discovered then that
>hysterectomy is not a cure for endo and that I more than likely still
>had endo in my pelvis. I went off hrt which plunged me into a terrible
>surgical menopause.
>
>8 months after my hysterectomy, I had lap with Dr. Redwine, an endo
>specialist. He found a great deal of endo in my pelvis - on my bowels
>in 3 areas, 1 requiring a bowel resection, on my bladder, ureters,
>cul-de-sac, broad, utersacral & round ligaments were also excised and my
>entire peritoneum was invaded by endo. After this surgery, I was
>finally endo free and resumed hrt. I am on bio-natural estrogen and
>compounded testosterone.
>
>I felt totally betrayed by the ob/gyn that performed my hysterectomy. He
>lied to me and I will never forget that. But when I had lost all faith
>in the medical community, in stepped Dr. Redwine and gave me my life
>back. If your doctor is not familiar with the many different
>appearances of endo, or lacks the surgical skills to remove endo from
>delicate organs such as bowels & bladder, you may still have some endo
>in your pelvis.
>
>Endo loves estrogen and by adding estrogen while still having endo in me
>it was like he was putting out fire with gasoline. Endo also creates
>it's own estrogen - aromatase, so even if you don't have ovaries the
>endo can still feed itself.
>
>I highly recommend the book Endometriosis Sourcebook by Mary Lou
>Ballweg. It contains accurate information regarding the modern concepts
>of endo, including endo persisting after hysterectomy. Also Dr.
>Redwine's website is located at
>http://www.scmc.org/endo.html Since having my hysterectomy and lap
>surgery with endo specialist, I have met many, many women who still
>suffer with endo after tah/bso.
>
>At Thu, 1 Mar 2001, anonymous wrote:
>>
>>I am 50 yrs. old and was diagnosed with 2 suspicious ovarian cysts. An
>>oophorectomy was done laparoscopically and stage IV endometriosis was
>>found. Some implants were removed but not all. I have no history of
>>pain except an acute attack in Dec. which lead to the discovery of my
>>cysts. I have had some achiness in my lower back on occasion. I was
>>given Prempro after my surgery. I am wondering if anyone else has had a
>>similar case and what happened on HRT. I also am concerned about future
>>bowel and bladder problems...

Hi Suzanne, Well that's great news about you being pain free. I'm so sorry that you got a hysterectomy for nothing. I can say I do know the feeling. I had a hysterectomy on January 15th of this year, and I too feel betrayed. My doctor that I've had for 6 years has suddenly decided that he doesn't think I need to be his patient anymore and I'm still in post-op. I think after reading all the material on Dr. Redwine I'm going to give him a try. Unfortunately, I do live in Arizona and am not sure how I'm going to see him. My current doctor is or I thought he was an excellent doctor and I am very disappointed in him. Just curious, the leg pain that you experienced, was that in one or both of your legs? My main concern as far as pain, is severe pain in both of my legs and in my upper back. I was just hospitilized for 8 days, two days ago for an abscess in my bowel. Was wondering if Endo had anything to do with that. The doctors at the hospital were so confused. Glad to hear you are doing fine. Write back soon, Sincerely, Wendi Farbstein Phoenix,Arizona

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