ENDO Messages for March, 2001: Angie

Angie

From: Wendi (anonymous@obgyn.net)
Tue Mar 6 18:10:55 2001

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At Sun, 25 Feb 2001, Wendi wrote: >
>At Sun, 25 Feb 2001, Angie wrote:
>>
>>Hey Guys, (Wendi & Lynn) I know I wasn't invited to this conversation,
>>but I, too, had a tah/bso 16 months ago for endometriosis. I, too,
>>continued to have pain. The kicker is...right after surgery I hurt from
>>head to toe -- not just pelvic pain. The doctors told me that I had
>>fibromyalgia -- I didn't buy it because I'd never had it prior to
>>surgery, and my "gut instinct" just told me that wasn't so. I still
>>have pain from endo, but the "fibromyalgia" pain is now gone. I'm not
>>saying that neither of you have it -- perhaps you do -- but for me,
>>getting the right HRT was the kick in the pants my body needed to get
>>rid of the awful body and joint aches. I literally felt like my body
>>was being torn apart. I couldn't take any of the traditional HRT they
>>prescribe, and finally found a good combination of natural hrt that
>>helped -- no, I'm not a "snake oil salesman", but it might be something
>>you want to check into if you think the same connection holds true for
>>you (no fibromyalgia BEFORE the tah/bso, but was told you have it
>>shortly AFTER the tah/bso). If you want more info, please contact me. I
>>have alot of resources on the subject that you can read for yourself.
>>I'm still struggling with the endometriosis pain, but the fibromyalgia
>>"like" pain is gone (thank goodness, I was ready to put my head in the
>>oven).
>>
>>I wish you both luck, and pain free days.
>Hi Angie,
>I have trouble distinguishing which pain is from which disease
>personally. The doctors showed me pictures of Endometriosis and I got a
>hysterectomy for it, but the truth is that the pain I had before is
>exactly the same now. I was never one to have heavy periods, in fact
>they were for only four days, and with both of my children, I had no
>problem getting pregnant. My doctor that just did the Hyst in January
>now says he won't prescribe me pain medication because its no longer a
>gynelogical problem, but nothings changed!!! I told his nurse that
>somebody's in trouble. I refuse to get all of my female parts taken out
>and now he doesn't even want anything to do with me. What a jerk. I
>trusted him with my life and he just shattered it. Anyway, I would like
>to try that natural hormone. I doubt it if it's going to help but why
>not give it a shot? It's seems that no matter what any of the doctors
>do, I'm bound to be in pain 24 hours a day, 7 days a week for the rest
>of my entire life. It's so unfortunate. Do you know are there any
>girls that have extreme pain 24 hours a day, or does it come and go?
>It's so hard because my legs hurt so bad that it really is hard to make
>it up the stairs. I wonder if its because I've been working on my feet
>for so many years. Who knows, I just wish everyone would just feel
>better for God sakes. Wouldn't that be a beautiful thing? Babble,
>babble. Have a wonderful day and good luck to you. Any tips on
>Fibromyalgia would be greatly appreciated.
>Wendi Farbstein
>>
>>--
>>===================================================
>>At Sun, 25 Feb 2001, Wendi wrote:
>>>
>>>At Sat, 24 Feb 2001, LYNN,BASTIAN wrote:
>>>>
>>>>At Tue, 8 Dec 1998, anonymous@obgyn.net wrote:
>>>>>
>>>>>I had several lap surgeries to remove endometriosis and finally a
>>>>>hysterectomy.
>>>>>that was 1 year ago and also have Fibromyalgia. I'm in the dark on how many of
>>>>>us there are, nobody really likes to talk about having either ailment.I TO AM GOING THROUGH LAP. SURG. THURSDSAY MARCH 1ST...IF THEY FIND ENDOMETRIOSIS THEY WILL DO A FULL HYSTERECTOMY THEN AND THERE...YES I'M AFRAID , I ALSO SUFFER FROM FYBROMIALGIA. I'M NOT SURE WHAT TO EXPECT. I'M 29 AND HAVE A 10 YEAR OLD SON. IF YOU HAVE ANY INFO TO HELP ME PLEASE SEND IT ...THANK YOU LYNN 'B'
>>>>
>>>>--
>>>>LYNN 'B'
>>>>
>>>Hi Lynn,
>>>Was wondering if you have any personal information you could give me
>>>about fibromyalgia. I've researched it many times, but would like to
>>>talk to somebody that actually has it. My rheumatologist thinks I may
>>>have that, but I just don't know what to do. I also have Endometriosis
>>>and had a hysterectomy on January 15th and am still in major, major
>>>pain. Not sure. Anyway, have a great day, and if I can answer any
>>>questions for you I will.
>>>Thank you,
>>>Wendi
>>
>>--
>>adrite@hotmail.com
>>

Sorry I haven't written sooner I just spent 9 days in the hospital what a fun experience that was. Anyway, was wondering what natural HRT it is that you're taking. I would love to try it. Let me know. Thanks for your help, Wendi Farbstein

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