ENDO Messages for March, 2001: Re: 3 mos post-hysterectomy chronic pain

Re: 3 mos post-hysterectomy chronic pain

From: suzanne (anonymous@obgyn.net)
Fri Mar 2 07:30:11 2001

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I had tah/bso for severe endo, adhesions and adenomyosis. Within 2-3 months after that surgery my pain came back with a vengence. I also had severe bladder and bowel symptoms. Hysterectomy is not a cure for endometriosis, so there is a chance you may still have endometriosis in your pelvis.

I had surgery with an endo specialist 8 months after the tah/bso and he found a great deal of endo left in me (even though the first doc swore he got it all!).

Endo was found on my bladder, ureters, colon, rectum, vagina, and broad, round and utersacral ligaments. Plus my entire peritoneum was invaded with endo. If your surgeon is not an endo specialist, he may not be familiar with the many appearances of endo, including microscopic and may have left some.

The Endometriosis Sourcebook contains much information regarding endometriosis continuing after hysterectomy. Also the following website may be helpful: http://www.scmc.org/endo/html/reprint7.html

It was a difficult time in my life, especially after going to the endo of the line and still be suffering. But I am happy to say I am endo free and pain free after 26 years with this disease. I only wish I had known about the endo specialists sooner.

You can e-mail me anytime at living@nwlink.com

-- suzanne

At Wed, 28 Feb 2001, anonymous wrote: > >Hello everybody, >I am 3 mos post-op TAHBSO,for uterine wall thickness endo.I also had a >prolasped sigmoid colon,cystic cervix & ovaries.My left ovary contained >a large 4cm abcess.I was re-hospitalized 7 days post-op for multiple >seroma's(fluid collections)recieved 7 days of IV antibiotics.I have been >closly followed by my surgeon,CAT scans,labwork.All but one seroma has >resolved and it is 3mm round buy 4 inches long and is located between my >bladder and rectum.I have been on oral antibiotics(leviqin)until 2 weeks >ago. >I have chronic pain(threw away pain pills..didnt help noway)in my lower >addomen,sharp,and intensed by walking,sneezing,laughing,and peeing.I >have a chronic clear vaginal discharge which cultures negative for >bacteria.I have been treated by my urologist twice this month for UTI. >My spouse and I only recently attempted intercourse and noticed that the >discharge became very heavy and I felt a sharp pain in the upper left >vagina and left side pain.I also have developed right elbow >pain,bilateral hip pain and sharp shooting pain down the backs of both >legs when i stand from a sitting posistion,sometimes I have rectal pain >as well.Sorry i have rambled,but I am really concerned,my Gyna just >keeps telling me about the same.Will see him in the morning.Is this >common so far out after surgery or has anyone else have or had the >same??? Thanx

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