Re: Very frustrated with doctor....colleen
From: Jennifer (anonymous@obgyn.net)
Wed Feb 28 08:07:11 2001
Yes! The same thing happened to me. I had surgery at the end of October
and started Lupron. After my 3rd shot, I went 3 weeks feeling better than I
ever had. On the 4th week though, my pain got intolerable. I went back to
my doctor who scheduled me for surgery right away. Sure enough, my right
side was covered with adhesions and my left side was covered in endo again.
I asked him what our next plan of attack was and he said that we have tried
everything. The only thing left is to wait it out and if the pain comes
back, take everything out.
-----Original Message-----
From: anonymous@obgyn.net [mailto:anonymous@obgyn.net
Sent: Tuesday, February 27, 2001 10:53 PM
To: Multiple recipients of list ENDO
Subject: Re: Very frustrated with doctor....colleen
Colleen,
My doctor also told me that my pain would be knocked out by Lupron even
though I continued to have pain throughout the shots. Needless to say I
fired her, she consistently would'nt listen and insisted on putting me
on BCP's which I could not tolerate. My new gyn finds it interesting
that after my 3rd shot of Lupron, my pain subsided and then came right
back when I was due for the fourth shot and continued from there. This
ever happen to anyone?
I am now faced with a second surgery, lap, possible oopherectomy (my
left ovary keeps getting adhered to the bowel because of endo), possible
laporotomy and possible hysto ( I consented to all of the above because
I do not want to keep having surgeries over and over. If things look
bad take care of them now.) Keeping my fingers crossed.
Karen
At Tue, 27 Feb 2001, Andrea wrote:
>
>Colleen,
>I have been to 10 docs, had 4 laps and been on Lupron and Danazol each 6
>months each and all from age 21 to 24. I just had my last lap January 31st
>and that was with Dr. K in Milwaukee and I can honestly say that I have had
>zero pain since my surgery! I can not even believe I am saying this, I
have
>no pain. It all matters on what doctor you see. Definitely get a referral
>from some other women in your area. I never thought I would have relief.
I
>truly believe that this doctor is one of the top in the world and he got
>every bit of endo and I was a chronic pain sufferer.. I am a big believer
in
>that only when they get all the endo are you relieved of your pain...
>Andrea V
>>----- Original Message -----
>From: Marcia <anonymous@obgyn.net>
>To: Multiple recipients of list ENDO <anonymous@obgyn.net>
>Sent: Tuesday, February 27, 2001 4:18 PM
>Subject: Re: Very frustrated with doctor
>
>> Hi Colleen:
>>
>> Yes!! Get a new doctor. If possible, go to an endo specialist. You are
>> right, endo does not magically go away with either surgery or shots.
>> There can still be microscopic endo causing your pain, or even adhesions
>> left behind by surgery. And there is no such thing as "killing" off all
>> the rest of your endo. What a quack!! The shots, whether it be Lupron
>> or Zoladex, shrink the endo tissue, not get rid of it entirely. I've
>> been through 2 surgeries and Zoladex four times, and I still have it.
>> Some are lucky enough to have remission when it is all removed
>> successfully, and the absence of their pain is the indicator. If your
>> pain is still the same, in the same spot, it's your endo, not your back.
>>
>> Good luck and get that new doc!!
>>
>> Marcia
>>
>> At Tue, 27 Feb 2001, Colleen wrote:
>> >
>> >--Boundary_(ID_VcgjMJHRuiAHviXM/LFa9A)
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>> >
>> >I went to the doctor's today for my three month Lupron shot and had a
>horrible experience. I have had pain even though I've been on the Lupron
for
>three months and it has been extra bad these past couple of weeks. My
doctor
>today told me that I couldn't possibly be in pain because of the endo, that
>much of it was removed in my surgery last June and that the rest of it
would
>have been killed off by the Lupron. She said she was 100 percent positive
my
>pain wasn't because of the endo. She went on to say that it was probably
>something else like back pain and that I should try seeing an
accupuncturist
>or a chiropractor to figure this out. This is very disturbing to me. Mainly
>because I was under the impression that Lurpon doesn't always work in
>getting rid of the endo and either does surgery. I thought there were no
>guarentees with this disease. Why else would I be in pain? I am fine except
>for all this pain. It sounds like she is just giving up on me. She can't
>guarentee me anyth!
>> ing witho
>> >ut looking inside during a lap and actually seeing if there is anything
>left, right?
>> >Any input would be greatly appreciated. Am I right in thinking that I
>need a new doctor?
>> >Colleen
>> >
>> >--Boundary_(ID_VcgjMJHRuiAHviXM/LFa9A)
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>> >
>> >I went to the doctor's today for my three month
>> >Lupron shot and had a horrible experience. I have had pain even though
>I've been
>> >on the Lupron for three months and it has been extra bad these past
>couple of
>> >weeks. My doctor today told me that I couldn't possibly be in pain
>because of
>> >the endo, that much of it was removed in my surgery last June and that
>the rest
>> >of it would have been killed off by the Lupron. She said she was 100
>percent
>> >positive my pain wasn't because of the endo. She went on to say that it
>was
>> >probably something else like back pain and that I should try seeing an
>> >accupuncturist or a chiropractor to figure this out. This is very
>disturbing to
>> >me. Mainly because I was under the impression that Lurpon doesn't always
>work in
>> >getting rid of the endo and either does surgery. I thought there were no
>> >guarentees with this disease. Why else would I be in pain? I am fine
>except for
>> >all this pain. It sounds like she is just giving up on me. She can't
>guarentee
>> >me anything without looking inside during a lap and actually seeing if
>there is
>> >anything left, right?
>> >Any input would be greatly appreciated. Am I right
>> >in thinking that I need a new doctor?
>> >Colleen
>> >
>> >--Boundary_(ID_VcgjMJHRuiAHviXM/LFa9A)--
>>
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